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Monday, March 11, 2019

Weight Gain, Starvation, & Gastroparesis

A friend of mine sent me a message about two months ago asking me questions about Gastroparesis because she was scared. The Gastroenterologist she saw told her a lot of different things that did not sound right to her, so she questioned it. I am very glad she did because he gave her a lot of misinformation that if she would have listened to, she might have died. The doctor she saw for her Gastroparesis told her she was too overweight for him to treat her.

He suggested that she go on a diet and starve herself a bit before he would consider treating her. She told him that she was starving and that her body was starving itself because she was unable to keep down food, which is why she went to the doctor. He told her that "starvation mode" was not a real thing. I was flabbergasted when she was relaying to me what he said. Additionally, she is also diabetic, so she cannot exactly "starve" herself (There is a lot of controversy regarding whether or not "starvation mode" is real. There are arguments on both sides but I will write about it, with arguments from both sides, and share sources, for you to make up your own minds).

I told her to see another doctor immediately because I know "starvation mode" is a real thing. My own doctor has told me that my body is starving itself from all of the vomiting and barely eating. I came home and did research immediately.

Some medical professionals see that patients are overweight and because they have this preconceived notion of what Gastroparesis is supposed to look like, they do not take the heavier Gastroparesis warriors seriously. I want to clarify that people can gain weight with Gastroparesis and they can also lose weight with it, too.

These are both complex issues with complex answers. I am glad my friend reached out to me to ask questions instead of following her doctor's advice to the letter, because I really do not know what would have happened to her if she had. I am so glad she was curious and smart enough to question the advice she was told, and went to get a second opinion. Sadly, this is not the first time I have heard this story. I have had a lot of people tell me that their doctors wanted them to lose weight first, before they would treat them, and/or some alternate versions of they did not need a feeding tube because they were too overweight for one. Let me make this VERY clear, your weight has nothing to do with malnutrition, vitamin deficiencies, or anything like that. I really hate it when medical professionals bring up weight, because it really sounds demeaning, patronizing, and I feel like I am being judged.


I made a survey to ask people with Gastroparesis whether or not they were treated differently because of their weight. I received sixty-three responses, which is amazing. They can be found HERE. To summarize the surveys I received, basically some doctors (not all), friends, and family members do not believe people have Gastroparesis if they are overweight. When you have Gastroparesis, you can gain weight or lose weight. Let's talk about weight gain first.**



“Eating too few calories, for too long of a period will cause your metabolism to slow down so much that it will prevent weight loss and even cause weight gain.”





Image Source: https://i.pinimg.com/originals/6f/21/6d/6f216d9733be5419e33ba262edde42fd.png





Weight gain can not only be attributed to starvation mode, where your metabolism slows, but could be caused by stress and anxiety in addition to your metabolism rate: http://www.emilysstomach.com/2017/01/mental-health-and-gastroparesis-part-1.html






Some of these sources refer to weight gain and starvation mode for dieting for healthy people, but it can be applied to Gastroparesis as well, since we do not have the luxury of eating to consider a diet.





Source: https://tinyurl.com/yapse9lm




Starvation is a severe deficiency in caloric energy intake. It is the most extreme form of malnutrition. In humans, prolonged starvation can cause permanent organ damage and eventually, death, according to the World Health Organization. The bloated stomach represents a form of malnutrition called kwashiorkor which is caused by insufficient protein despite a sufficient caloric intake.


My article called, "What Gastroparesis Does to the Body" that you can find HERE.

My article on Vitamin Deficiencies can be found HERE.





According to MedLine Plus,



"Kwashiorkor is a form of malnutrition that occurs when there is not enough protein in the diet.



Causes:

Kwashiorkor is most common in areas where there is:

Famine
Limited food supply
Low levels of education (when people do not understand how to eat a proper diet)


This disease is more common in very poor countries. It often occurs during a drought or other natural disaster, or during political unrest. These conditions are responsible for a lack of food, which leads to malnutrition.

Kwashiorkor is rare in children in the United States. There are only isolated cases. However, one government estimate suggests that as many as 50% of elderly people in nursing homes in the United States do not get enough protein in their diet.

When kwashiorkor does occur in the United States, it is most often a sign of child abuse and severe neglect.



Symptoms

Symptoms include:

Changes in skin pigment
Decreased muscle mass
Diarrhea
Failure to gain weight and grow
Fatigue
Hair changes (change in color or texture)
Increased and more severe infections due to damaged immune system
Irritability
Large belly that sticks out (protrudes)
Lethargy or apathy
Loss of muscle mass
Rash (dermatitis)
Shock (late stage)
Swelling (edema)



Exams and Tests

The physical exam may show an enlarged liver (hepatomegaly) and general swelling.

Tests may include:

Arterial blood gas
BUN
Complete blood count (CBC)
Creatinine clearance
Serum creatinine
Serum potassium
Total protein levels
Urinalysis



Treatment

Getting more calories and protein will correct kwashiorkor, if treatment is started early enough. However, children who have had this condition will never reach their full potential for height and growth.

Treatment depends on the severity of the condition. People who are in shock need treatment right away to restore blood volume and maintain blood pressure.

Calories are given first in the form of carbohydrates, simple sugars, and fats. Proteins are started after other sources of calories have already provided energy. Vitamin and mineral supplements are essential.

Since the person will have been without much food for a long period of time, eating can cause problems, especially if the calories are too high at first. Food must be reintroduced slowly.

Many malnourished children will develop intolerance to milk sugar (lactose intolerance). They will need to be given supplements with the enzyme lactase so that they can tolerate milk products.





Outlook (Prognosis)

Getting treatment early generally leads to good results. Treating kwashiorkor in its late stages will improve the child's general health. However, the child may be left with permanent physical and mental problems. If treatment is not given or comes too late, this condition is life threatening.




Possible Complications

Complications may include:

Coma
Permanent mental and physical disability
Shock





When to Contact a Medical Professional

Call your health care provider if your child has symptoms of kwashiorkor.




Prevention

To prevent kwashiorkor, make sure the diet has enough carbohydrates, fat (at least 10% of total calories), and protein (12% of total calories).




Alternative Names

Protein malnutrition; Protein-calorie malnutrition; Malignant malnutrition


Kwashiorkor is a condition resulting from inadequate protein intake. Early symptoms include fatigue, irritability, and lethargy. As protein deprivation continues, one sees growth failure, loss of muscle mass, generalized swelling (edema), and decreased immunity. A large, protuberant belly is common. The incidence of kwashiorkor in children in the United States is extremely small and it is typically found in countries where there is drought and famine.



Image Source: In the Article




References

Ashworth A. Nutrition, food security, and health. In: Kliegman RM, Stanton BF, St. Geme JW, Schor NF, eds. Nelson Textbook of Pediatrics. 20th ed. Philadelphia, PA: Elsevier; 2016:chap 46.

Kumar V, Abbas AK, Aster JC. Environmental and nutritional diseases. In: Kumar V, Abbas AK, Aster JC, eds. Robbins and Cotran Pathologic Basis of Disease. 9th ed. Philadelphia, PA: Elsevier Saunders; 2015:chap 9.

Manary MJ, Trehan I. Protein-energy malnutrition. In: Goldman L, Schafer AI, eds. Goldman-Cecil Medicine. 25th ed. Philadelphia, PA: Elsevier Saunders; 2016:chap 215.
Review Date 2/19/2018

Updated by: Neil K. Kaneshiro, MD, MHA, Clinical Professor of Pediatrics, University of Washington School of Medicine, Seattle, WA. Also reviewed by David Zieve, MD, MHA, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team."







Image Source: https://62e528761d0685343e1c-f3d1b99a743ffa4142d9d7f1978d9686.ssl.cf2.rackcdn.com/files/88935/area14mp/image-20150720-21056-kw51zj.png






Image Source: https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&ved=2ahUKEwjd-__GlfvgAhUlgK0KHcmTAIIQjRx6BAgBEAU&url=http%3A%2F%2Ftheconversation.com%2Fchemical-messengers-how-hormones-make-us-feel-hungry-and-full-35545&psig=AOvVaw3woiWmpXezgj7-o0y1ytU7&ust=1552430364356055






Image Source: https://www.healthline.com/health/low-blood-sugar-effects-on-body#1






I had no idea there was a hunger scale, like the pain scale, until I started doing research for this article.













According to Medical News Today,

"Malnutrition results from a poor diet or a lack of food. It happens when the intake of nutrients or energy is too high, too low, or poorly balanced. Undernutrition can lead to delayed growth or wasting, while a diet that provides too much food, but not necessarily balanced, leads to obesity. In many parts of the world, undernutrition results from a lack of food. In some cases, however, undernourishment may stem from a health condition, such as an eating disorder or a chronic illness that prevents the person from absorbing nutrients."



According to Fitness,

"Starvation is dangerous to deal with and leads to all sorts of problems, both mental and physical. Want to know what they are? Read this post and find out about the harmful and potentially dangerous side effects of starving yourself.

Starvation is a condition that is often accompanied by severe deficiency in your calorie intake. Starvation can be self-inflicted (hardcore dieters) or due to the presence of other conditions like anorexia or bulimia. Starvation can also lead to severe malnutrition and may permanently damage your internal organs.

Starvation isn’t something pleasant, and you should try and refrain from starving yourself, especially under the pretext of following a diet regime. To discourage you further, let’s look at some of the adverse effects of starvation in detail:


1. MALNUTRITION:

This is perhaps the most damaging effect of voluntary or forced starvation. Malnutrition is a terrible condition, and it affects most children in developing countries. Starvation usually means that you don’t eat much at all. This leads to many essential nutrients and vitamins being excluded from your diet. Malnutrition can lead to various mineral and nutrient deficiencies like Night blindness (vitamin A deficiency), Scurvy (Vitamin C deficiency) and even Anemia (Iron deficiency) (2).



2. DEHYDRATION:

The second most obvious result of starvation; just like a lack of food induces malnutrition, a lack of water can induce dehydration. This dehydration may in turn aggravate other problems and lead to cracked and exceedingly dry skin, along with other conditions like constipation, among others. Thus, it is important to remember to drink enough water, even if you are on a starvation diet. Starvation and dehydration depletes glycogen levels and disturbs electrolyte balance (3).



3. Decreased Resting Metabolic Rate:

Starvation can lead to a reduced resting metabolic rate. Your Basal metabolic rate or BMR is defined as the minimal rate of energy expenditure per time unit while you rest. Tests found that fasting prior to rest can lead to an increase in white adipose tissue (WAT) and decrease in flow to the brain. Other studies determine that starvation can induce a decrease in your basal metabolic rate.



4. Loss Of Monthly Menstrual Periods:

Starvation leads to many problems. One of these problems is it upsets how your periods are regulated. So, for those of you thinking about starvation diets, you might want to consider this before you begin. In some cases, if you are too underweight your body may simply cease to produce estrogen. A lack of fat can restrict your cells from converting cholesterol to extra estrogen. As starvation can lead to organ damage, body processes tend to slow down, which usually causes menstruation to stop (4).



5. Constipation:

Starvation can also induce constipation in many individuals. Studies on many anorexic individuals conclude that people who suffer from the disorder may suffer from severe starvation, which can lead to many disorders and requires the use of regular laxatives to be treated wholly. A case study on three severely anorexic women found that these women needed regular laxatives or enemas to help flush their colon. These women also ran a higher risk of suffering from rectal prolapse due to the overuse of laxatives (5).



6. Bone Loss:

A starved or starving individual may continue to lose weight at an alarming rate. Although the changes in your skin and musculature are quite obvious, but what about the changes in your bone structure! Did you know that starvation may lead to bone density loss? Well, usually when you consume a calorie-restricted diet, your bones are remodeled. The older bone breaks down and new bones form rapidly. However, your bone density reduces, which can lead to fragility (6).



7. Fatigue:

One of the most common side effects of starvation is fatigue. You have all heard about ‘eating to keep your strengths up,’ this idiom cannot ring any truer as eating a balanced diet helps provide energy for the body primarily, while helping keep diseases and infections at bay. Starvation upsets the balance of essential vitamins in your body and slows down physiological processes, which can also lead to fatigue and a feeling of faintness. Starvation is often associated with a feeling of lightheadedness (7).



8. High Blood Pressure:

Malnutrition and starvation can subject your body to many conditions, including high blood pressure. When you starve, essential nutrients like potassium and vitamin D aren’t consumed, which leads to a spike in blood pressure and many other deficiencies. All these factors ensure that starvation inevitably raises your blood pressure. In a study conducted on three groups of children, it was found that two groups: one malnourished and one recovering from malnourishment had significantly higher blood pressure readings than the children who weren’t malnourished at all.



9. Electrolyte Imbalance:

Starvation leads to a loss of nutrients, which results in the consumption of fewer electrolytes with each passing day. Heart-healthy Minerals like potassium, sodium, calcium and magnesium that promote proper heart function and heart health aren’t consumed when you don’t have enough food. Starving not only results in lesser nutrients, but also promotes electrolyte imbalance. Thus, remember to have mineral supplements if you are on a starvation diet.



10. Affects The Brain:

There have been many studies on how starvation can affect cognitive abilities and make you feel depressed. Try and recall how your friend snaps at you when she’s on a starvation diet. When we miss a meal, we often find ourselves dwelling on food and how it would feel to be properly fed.

You know that starvation can lead to many other physical symptoms like dehydration and fatigue that can impair your thinking abilities and also make you aggressive and jumpy. Starvation can also affect how you react to stress and can induce feelings of anxiety, irritability and even lead to chronic or clinical depression in some cases.

Now that you know how starvation can adversely affect your body, we hope that you will rethink about those starvation diets. They are just a quick fix and offer little long term benefit. Opt for a balanced regimen to lose weight."








Image Source: https://i.pinimg.com/564x/3a/31/c0/3a31c05ee329a6ee1ee8e7d0f7633b11.jpg







According to Health Line,



"Is 'Starvation Mode' Real or Imaginary? A Critical Look


Weight loss is generally seen as a positive thing. It can bring improved health, better looks and all sorts of benefits, both physical and mental. However, your brain doesn't necessarily see it that way. Your brain is more worried about keeping you from starving, making sure that you (and your genes) survive. When you lose a lot of weight, the body starts trying to conserve energy by reducing the amount of calories you burn. It also makes you feel hungrier, lazier and increases your cravings for food. This can cause you to stop losing weight, and may make you feel so miserable that you abandon your weight loss efforts and gain the weight back.

This phenomenon is often called 'starvation mode,' but is really just the brain's natural mechanism to protect you from starvation.


What Does 'Starvation Mode' Imply?

What people generally refer to as 'starvation mode' (and sometimes 'metabolic damage') is the body's natural response to long-term calorie restriction. It involves the body responding to reduced calorie intake by reducing calorie expenditure in an attempt to maintain energy balance and prevent starvation. This is a natural physiological response, and isn't really controversial. It is well accepted by scientists, and the technical term for it is 'adaptive thermogenesis.' I will use the term starvation mode in this article, although it really is a misnomer because true starvation is something that is almost completely irrelevant to most weight loss discussions. Starvation mode was a useful physiological response back in the day, but does more harm than good in the modern food environment where obesity runs rampant.


Calories In, Calories Out

Obesity is a disorder of excess energy accumulation. The body puts energy (calories) into its fat tissues, storing it for later use. If more calories enter the fat tissue than leave it, we gain fat. If more calories leave the fat tissue than enter it, we lose fat. This is fact. Pretty much all weight loss diets cause a reduction in calorie intake. Some by controlling calories directly (counting calories, weighing portions, etc), others by reducing appetite so that people eat fewer calories automatically. When this happens, calories leaving the fat tissue (calories out) become greater than the calories entering it (calories in). So we lose fat. However, the body doesn't see this in the same way as you do. In many cases, it sees this as the beginning of starvation. So the body fights back, doing everything it can to make you stop losing.

The body and brain can respond by making you hungrier (so you eat more, increasing calories in), but what is most relevant to this discussion here is what happens to the amount of calories you burn (calories out). Starvation mode implies that your body reduces calories out in an attempt to restore energy balance and stop you from losing any more weight, even in the face of continued calorie restriction. This phenomenon is very real, but whether this response is so powerful that it can prevent you from losing weight, or even start gaining despite continued calorie restriction, is not as clear.


What people refer to as 'starvation mode' is the body's natural response to long-term calorie restriction. It involves a reduction in the amount of calories your body burns, which can slow down weight loss. The amount of calories you burn can change.


The amount of calories you burn in a day can be roughly split into 4 parts:

Basal Metabolic Rate (BMR): The amount of calories your body uses to maintain vital functions, such as breathing, heart rate and brain function.

Thermic Effect of Food (TEF): The calories burned while digesting a meal. Usually about 10% of calorie intake.

Thermic Effect of Exercise (TEE): Calories burned during physical activity, such as exercise.

Non-Exercise Activity Thermogenesis (NEAT): Calories burned fidgeting, changing posture, etc. This is usually subconscious.

It involves a reduction in movement (both conscious and subconscious), and a major change in the function of the nervous system and various hormones.


There are several ways that the body burns calories. All of them can go down when you restrict calories for a long time. Studies Show That Calorie Restriction Can Reduce 'Calories Out.' Studies clearly show that weight loss reduces the amount of calories you burn. According to a large review study, this amounts to 5.8 calories per day, for each pound lost, or 12.8 calories per kilogram. What this means, is that if you were to lose 50 pounds, or 22.7 kilograms, your body would end up burning 290.5 fewer calories per day. The reduction in calorie expenditure can be much greater than what is predicted by changes in weight. For example, some studies show that losing and maintaining 10% of body weight can reduce calories burned by 15-25%. This is one of the reasons weight loss tends to slow down over time, and why it is so difficult to maintain a reduced weight. You may need to eat fewer calories for life! Keep in mind that it is possible that this metabolic 'slowdown' is even greater in some groups that have a hard time losing weight, such as postmenopausal women.



Muscle Mass Tends to Go Down

Another side effect of losing weight, is that muscle mass tends to go down. As you may know, muscle is metabolically active, and burns calories around the clock. However, the reduction in calorie expenditure is actually greater than can be explained by a reduction in muscle mass alone. The body becomes more efficient at doing work, so less energy than before is required to do the same amount of work. So calorie restriction makes you expend fewer calories for the physical activity (whether deliberate or subconscious) that you perform.

Weight loss and reduced calorie intake can lead to reduced burning of calories. On average, this amounts to about 5.8 calories per pound of lost body weight.



How to Avoid the Metabolic Slowdown

Keep in mind that your metabolism slowing down is simply a natural response to reduced calorie intake. Although some reduction in calorie burning may be inevitable, there are a number of things you can do to mitigate the effect. The single most effective thing you can do is resistance exercise.


Starvation mode is real, but it's not as powerful as some people think. It can make weight loss slow down over time, but it won't cause someone to gain weight despite restricting calories. It's also not an 'on and off' phenomenon, like some people seem to think. It's an entire spectrum of the body adapting to either increased or decreased calorie intake. Starvation mode is actually a terribly inaccurate term. Something like 'metabolic adaptation' or 'metabolic slowdown' would be much more appropriate. This is simply the body's natural physiological response to reduced calorie intake. Without it, humans would have become extinct thousands of years ago. Unfortunately, this protective response can cause more harm than good where overfeeding is a much, much greater threat to human health than starvation."


Let's talk more about starvation mode. I want to quote a couple of different sources, and they may say similar things, but I want to look at this closely since my friend's doctor said it wasn't a real thing or problem. I just do not believe that. My doctor, when I was in high school (when I first started vomiting and getting sick, but didn't know what was wrong) told me that my body was starving itself. He had to explain to me what that meant and at that time, I was sixteen and ninety pounds (I am 5'4"). He told me I had to supplement what I ate with Ensure, so I had to eat an entire meal and drink Ensure on top of it. I actually really started gaining weight in 2009, when I fell down a mountain and broke both of my knees. But, I digress, because that isn't the point.

The point is, I had a doctor confirm to me, personally, that starvation mode is VERY real and people's bodies handle it in different ways. My body was feeding off of itself, consuming my muscle mass and things like that. Starvation is VERY real and VERY dangerous. It is SO dangerous for medical professionals to tell anyone that.

You have to be your own advocate and research things that you may not understand, that you may have questions about, and/or even doubts about.

I do not want to disparage doctors in any way, but they do not know everything. They do their utter best to rule things out and to help you as much as they are able to, and there are REALLY great doctors out there who care, but there are also doctors who do not even know about Gastroparesis or the effects it can have on someone (and given as much knowledge as they have to retain, I do not fault them for this). I do not want to alienate any medical professionals out there, as I respect the job that you do. This article is mainly to help misunderstandings and to educate the medical professionals, hopefully, that told my diabetic friend with Gastroparesis, to lose some weight before he would treat her for Gastroparesis, and that 'starvation mode' did not exist. Well, I'm going to research it and prove it does.






Image Source: https://anabolicminds.com/forum/attachment.php?attachmentid=72947&d=1358175074








According to InBodyUSA,

"Research indicates people who used starvation diets for weight loss, eating 50% of their energy needs for three weeks, did decrease their body weight overall. However, they also reduced their lean muscle mass by 5%. If the state of starvation is maintained chronically, lean muscle mass and organ size are decreased by 20%.

Likewise, a study on mice found lean mass and lean muscle mass were sacrificed during starvation; however, body fat stores were relatively the same in mice on a control diet and obese mice on starvation diets.

Weight loss via starvation causes individuals to lose significant amounts of lean muscle mass and Lean Body Mass, which encompasses water, bones, organs, etc. Reducing the mass of your bones is problematic, as that decreases bone density and can make you more prone to injury. Conversely, increasing Lean Body Mass increases bone strength and density, a common concern for many Americans as they age.

One study using human participants indicated dropping significant amounts of calories from the diet lead to significant weight loss and decreased lean muscle mass. However, participants also gained back nearly all of the fat they lost, within 8 years.

This prompts the discussion and understanding of an important topic- metabolism. More so, chronic starvation leads to changes in metabolism. Metabolism and resting metabolic rate are directly linked to Lean Body Mass. A person with greater body mass will require more energy to function day to day, thus will have a larger basal metabolic rate (BMR). As weight decreases, so does BMR.

This means that there’s a certain number of calories necessary to maintain your lean mass. If you go below this number, your body will be forced to break down these muscle stores in order to create energy.

Starvation diets have far-reaching negative effects on the body. Starving to lose weight changes the metabolism, reduces lean muscle, reduces bone density, and decreases strength."











Image Source: https://www.sciencedaily.com/images/2017/01/170126081628_1_540x360.jpg




There is an interesting book about Starvation Mode by Leigh Peele (that is in ebook form, too). This is her research and take on Starvation Mode and the Effects and Symptoms,

"Different Effects and Symptoms of Starvation Mode

Starvation happens when the body is deprived of the essential nutrients it requires for proper function and survival. When the body does not receive these nutrients that come from food and liquids, side effects occur. One of the effects of starve mode is weight loss and many people use this method to lose unwanted weight. This is often done as an act of desperation because of stubborn weight that they are unable to lose with all other weight loss techniques they have tried in the past. Going on starvation mode is not recommended to be done often since it can have irreversible effects that could eventually lead to death.

On starvation mode, the body feeds itself with what is inside it. Because you take in only a few calories, you lose weight. It should, however, be noted that when few calories enter the body, the metabolism also slows down. Because the metabolism burns calories, it burns only a few calories once it slows down. The moment you start consuming food regularly, the weight will come back. This is because the body begins to comprehend that it is starving and so it shuts down your weight loss efforts for it to survive.

Some of the bad effects of starvation mode include failed diets and other mental and physical ailments. These results are brought about by the malnourishment and depression. Eventually you will gain the weight that you lost back due to your coping mechanisms when you are depressed.

Starvation obviously makes you lose weight. The body does not have any sustenance inside it. You can lose up to two pounds a day with starvation. While it may initially sound good, the effects of such drastic weight loss might result in a medical emergency. Your body and your organs might not be able to cope with not having sustenance for days at length.

Starvation can cause dehydration because the body lacks fluid it needs. It then uses water and fluids already stored in your body. The first organ to be affected is the kidneys and they shall fail and eventually stop working once your urine output stops. Your skin will lose rigidity and turgor and shall become extremely dry and stiff. When you become dehydrated, your heart rhythms become irregular and this shall lead to heart diseases.

Another one of the effects of starvation mode is electrolyte imbalance. Because there is loss of fluids and nutrients, there is no fuel available for the body to work properly. Electrolytes make the heart, nerve impulse and muscle impulse function properly. They also make oxygen flow steadily in the body. If the flow is disrupted severely, you may slip into a coma. Blood sugar levels quickly drop because of the absence of glucose even if the pancreas produces just a small amount of insulin.

During the ultimate stage of starvation, severe muscle atrophy happens. The muscle crumbles and lessens because the body feeds from itself. It uses its muscle mass so as to give energy to the bloodstream so that the organs will not shut down. Muscle spasms and twitches happen when the potassium level becomes dangerously low. Extreme weakness and paralysis may also happen. When the muscles break down, the nerve cells deteriorate, especially those in your spinal cord area which regulates movement. If the muscles are weak and do not function, you may not move freely at all.

Low blood pressure or hypotension is also a side effect of starvation mode. Aside from such bouts, the temperature of the body also drops. When the blood pressure becomes so low, shock may happen and this is a very dangerous condition because the body shots down just to survive. If hypotension is left untreated, death or coma will happen."










Gastroparesis can effect everyone differently. Everyone's bodies are different and so Gastroparesis is harder to treat because it varies so widely from person to person. I wrote about this in detail, and if you would like to read that article, you can find it here: http://www.emilysstomach.com/2018/04/gastroparesis-different-ways-it-effects.html

For the many different causes of Gastroparesis and the available treatment options, you can read here: http://www.emilysstomach.com/2018/10/the-many-causes-of-gastroparesis.html

I also do not want anyone to think that Gastroparesis is an eating disorder. It is not. It can be caused by an eating disorder, but Gastroparesis, itself, is a chronic, invisible illness. For specifics on the differences between the two, please read this article: http://www.emilysstomach.com/2015/04/gastroparesis-vs-eating-disorders.html


More sources can be found at:

NDTV.

SIGN OF THE TIMES.

LIVESTRONG.COM. "A lack of food can cause the body to go into starvation mode over time. Starvation mode is a metabolic response to the body being deprived of food, which may occur during periods of famine or economic depression, when using a fad diet, or when suffering from anorexia nervosa. A variety of specific signs and symptoms affect those whose body has gone into starvation mode."










SOURCE:KHAN ACADEMY.








SOURCE: https://www.youtube.com/watch?v=eZNu5bsCyEc



THE CONVERSATION.







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Monday, February 11, 2019

Information About The Different Kinds of Feeding Tubes Part 1

There are many kinds of feeding tubes out there that can help with Gastroparesis/DTP. I have approached this article a bit different because I do not have feeding tube experience, yet. For the first time for one of my blog articles, I asked warriors with feeding tubes answer a survey of frequently asked questions I have gotten regarding feeding tubes.

I will be splitting this up into two parts because I have received so many replies with personal stories and pictures. I am really impressed with the responses to the surveys I sent out for people with feeding tubes to answer to help those whom may have just had one placed, or whom may be on the fence regarding this decision. I will be expanding on the personal stories, survey answers, and pictures in the second part of this article. Thank you to everyone who were brave enough to help me out on this subject, and for helping people out there who might need extra guidance and reassurance.

I do not have any personal experience with feeding tubes, as I have stated above, so part one of my article will mostly be research.


***WARNING***

THIS ARTICLE DOES CONTAIN PHOTOS THAT MAY INCLUDE, BUT NOT LIMITED TO, FEEDING TUBE SITES, INFECTED FEEDING TUBE SITES, AND MAY CONTAIN GRAPHIC IMAGES IN RELATION TO FEEDING TUBES. I WANT TO WARN ANYONE WHO HAS A SQUEAMISH DISPOSITION, THAT THIS ARTICLE DOES IN FACT, CONTAIN PHOTOS.




I have been fortunate enough to encounter some wonderful people who have feeding tubes. They have shared their pictures with me, which you can find on my website (and some below this article),

https://emily-scherer.squarespace.com/feedingtube/





Source: Located on Image




According to The Feeding Tube Awareness Foundation (https://www.feedingtubeawareness.org/tube-feeding-basics/tubetypes/), these are the different kinds of feeding tubes,




Source: On Website Listed Above




Nasal Tubes (NG, ND, NJ)

Nasal tubes are non-surgical and temporary tubes placed through the nose and into the stomach or intestine. The choice between nasogastric (NG), nasoduodenal (ND), and nasojejunal (NJ) tubes depends on whether your child can tolerate feeding into the stomach or not.



NG-Tubes

NG-tubes enter the body through the nose and run down the esophagus into the stomach.




ND- or NJ-Tubes

ND-tubes are similar to NG-tubes, but they go through the stomach and end in the first portion of the small intestine (duodenum). NJ-tubes extend even further to the second portion of the small intestine (jejunum). Bypassing the stomach can be beneficial for those whose stomachs don’t empty well, who have chronic vomiting, or who inhale or aspirate stomach contents into the lungs.

My friend, Alley, was kind enough to share her NJ Tube story with me. You can read it here: http://www.emilysstomach.com/2014/03/an-nj-tube-story-by-alley-samms.html




All of the different nasal feeding tubes and placements.
Source:https://tinyurl.com/ychryage




Tips for Little Hands and Nasal Tubes

Babies and small children will often try to pull their nasal tubes out. At night, try putting mittens or socks on your child’s hands to keep him/her from pulling the tube out. You can tape the nasal tube (or feeding bag tubing) down the back of the shirt during the day to keep it out of the child’s way. At night, you may want to tape it further down the pajamas. If the pajamas are two-piece, you can run tubing inside the pajama leg to keep children from tangling.






Nasal Tube Considerations

They are non-surgical and temporary.
They are a good way to quickly get infants and children the nutritional benefits of tube feeding.
They can be helpful in determining if longer-term tube feeding will be beneficial.
Nasal tubes need to be taped to the cheek, which can be irritating to some children.
Little hands often succeed in pulling nasal tubes out. Make sure you discuss accidental removal with your doctor and have a replacement plan, because it will happen.
You may see increased nasal congestion, especially in infants.
Nasal tubes can make reflux, gagging, and oral aversions worse.
Nasal tubes can clog easily because they are very narrow. This is unlikely to happen with regular feeding, but may happen with medications that aren’t in liquid form. If your child has any medications that need to be crushed, discuss with your doctors if there is a liquid, compounded, or dissolvable form that can be used.
Some hospitals do not let infants or children go home with nasal tubes. Discuss this with your doctor in advance (if possible).
Nasal tubes are intended for short-term use. They need to be changed every 3 days to 4 weeks, depending on the type of tube. If longer-term tube feeding is needed, it may be time to discuss a G-tube (gastrostomy tube) that is placed directly into the stomach.
Nasal tubes are highly visible since they are taped to the face. They may draw unwanted attention because few people know what they are. They may also be confused with oxygen, since that is the reference point most people have when they see a tube near the nose.



Life at Home with a Nasal Tube

Parents and caregivers can learn how to place, or 'drop,' an NG-tube at home. You will need to be taught by a medical professional, because the correct placement is very important. Learning to replace the tube yourself makes it a lot easier to do routine changes and replace a tube that gets pulled out at home. You will need to check the placement of the nasal tube after you insert it. It is a good idea to confirm placement before the start of each feed and if your child vomits forcefully. You can get more information on NG tube placement, including videos, on our NG Tube Placement and Verification page.

Taping the tube properly to the face can also make a world of difference. Learn how on our Taping Nasal Tubes page.

NJ-tubes, and some ND-tubes, need to be placed by a radiologist with X-ray guidance to ensure correct placement. They cannot be changed at home.



Questions to Ask

Will it be an NG-, ND-, or NJ-tube?
Will we leave the hospital with this tube?
What should I do if the tube is pulled out?
How long will this tube be in place?
How often do we need to replace it?
How do we replace it?
At what point do we need to consider a more permanent tube, such as a G-tube?
Do I need to check placement before feeding or giving medication?
How do I check the placement?





Gastrostomy (G) Tubes

The most common type of feeding tube is the gastrostomy (G) tube. G-tubes are placed through the abdominal wall into the stomach. This sounds scarier than it is. The G-tube surgery can be performed in three ways: surgically through small incisions using a laparoscope, surgically using a larger open incision, or endoscopically using a scope into the stomach to create the stoma from the inside. The endoscopic method has become the method of choice at many hospitals; however, some institutions still place tubes surgically, and children with anatomic abnormalities or who need other procedures may require a surgical placement. For more information on surgical placement, see our page on G-Tube Surgery.

There are a number of types of G-tubes. Any kind of G-tube can be placed initially. Often it is the surgeon or the gastroenterologist who determines the first type of G-tube placed.




PEG and Long Tubes

These are one-piece tubes held in place either by a retention balloon or by a bumper. They are often used as the initial G-tube for the first 8-12 weeks post-surgery. PEG specifically describes a long G-tube placed by endoscopy, and stands for percutaneous endoscopic gastrostomy. Sometimes the term PEG is used to describe all G-tubes. Surgeons may place other styles of long tubes.


Source: https://www.feedingtubeawareness.org/tube-feeding-basics/tubetypes/g-tube/





Source: In the Image





Low Profile Tubes or Buttons


Source: https://www.feedingtubeawareness.org/tube-feeding-basics/tubetypes/g-tube/



These tubes do not have a long tube permanently attached outside the stomach. Instead, they have a tube called an extension set that is attached for feeding or medication administration and then disconnected when not in use. When an extension set is not attached to the button, it lies fairly flat against the body. There are two types: balloon and non-balloon.




Balloon Buttons

Balloon buttons are held in place by a water-filled balloon. Balloon buttons are the most common G-tube for children once the stoma (G-tube site) is fully healed, usually in 2-3 months. The use of balloon buttons as a first G-tube is increasing among medical professionals. Balloon buttons can be replaced at home after caregiver training.




Non-Stop Balloon Buttons

Some surgeons and gastroenterologists prefer the first G-tube to be a non-balloon button. Non-balloon buttons are harder to pull out than balloon buttons. Non-balloon buttons cannot be replaced at home. They are placed in the doctor’s office or at the hospital, sometimes with sedation or a topical pain reliever.




Gastric Tube Considerations

G-tubes can be more comfortable than nasal tubes and are a safer option for longer-term tube feeding.
There are low profile, button-style G-tubes that aren’t as noticeable under clothing.
The balloon button G-tubes can be replaced at home by a trained parent or caregiver.
Balloon buttons and tubes typically need to be replaced every 3 months, while non-balloon buttons need to changed less often, between every 6 months to a year.
G-tubes need to be placed surgically or endoscopically, and there is a recovery period after.
Little hands may also pull out G-tubes.
A common complication of G-tubes is the formation of granulation tissue (which looks like red, overgrown tissue around the tube site) during the healing process. It isn’t dangerous but it can be painful and irritating. It may also bleed easily. For more information, see the Granulation Tissue page (NOTE: The link can be reached if you click on "Granulation Tissue" but I have also included the article below).





Granulation Tissue




Source: https://www.feedingtubeawareness.org/troubleshooting/tube-sites/granulation-tissue/



Granulation tissue is typically red or pink soft tissue that appears bumpy or almost bubbly in nature. It is the body’s attempt to heal the tube site. It can bleed very easily and may grow quite rapidly. However, while granulation tissue may be bothersome, it is not dangerous.

Your doctor can use Silver Nitrate to cauterize (or remove) the tissue, or may prescribe steroid creams, such as Triamcinolone (Kenalog) ointment. There are several different strengths of Triamcinolone cream, so ask for a stronger version if the low strength does not work. Silver Nitrate chemically “burns” off the granulation tissue already there, but does not prevent it from growing back. Make sure to cover the unaffected tissue around the stoma with petroleum jelly or a barrier cream to prevent damaging the healthy skin. It is normal for the granulation tissue to look brown and quite awful after having Silver Nitrate applied.

Another option for treatment is GranuLotion, an over-the-counter product that many parents use to help treat granulation tissue. Home remedies that may help include Tea Tree Oil, Maalox or another antacid, Calmoseptine Ointment, or aloe vera (fresh or gel form).

Stabilizing tubes and extensions can help by reducing friction at the tube site. You can tape them to the stomach or create a tab that can be pinned to a diaper or clothing by folding the tape back onto itself.

Keeping the area dry is extremely important to prevent granulation tissue. At first the site may leak. But within 4-6 weeks, the leakage should diminish. Some families prefer to keep the tube site open to air, some use gauze under the button, and some use cloth tube pads. Using G-tube pads can also help reduce friction and absorb leaks to keep the area dry. Certain types of dressings, such as Mepilex, may also be helpful.

Have your doctor check the sizing of the feeding tube, as an incorrectly sized tube can make granulation tissue worse.



Additional Resources:

Site Care Tips for Feeding Tube Stomas from Complex Child. This has wonderful information in it, It has tips on how to deal with yeast around the button/tube site, how to secure it, clean it, and dress it. This site has a lot of useful information in it, including how to handle a bacterial infection.

Granulation Tissue 101 from Feeding Raya. This blog contains pictures of Raya and how the mother deals with issues like granulation, and contains pictures. It is a wonderful resource for those new to feeding tubes or for seasoned veterans with questions.




Sizing for G-tubes

All G-tubes are sized by the width of the tube, which is measured using the French scale, across the diameter of the tube. G-tube buttons require a second measurement, in centimeters, based on the length of the tube’s stem (the part of the tube that is placed in the stoma or tube site). For example, a 16Fr 1.5cm tube has a French size (diameter) of 16 and a stem length of 1.5cm. The size is listed on MIC-KEY and AMT button G-tubes. G-tubes should have enough room between the tube and the skin to allow one or two coins to slide under. If the tube is pressing tightly against the skin or has much more room, your child may need a different stem size.



For more information about feeding tubes, please visit:

https://www.feedingtubeawareness.org/tube-feeding-basics/tubetypes/



I also wanted to share some personal stories I received from people with different feeding tubes. I asked them a series of questions that I have been asked in my support groups many times, and they were kind enough to answer those questions and share their stories.


Kristin G. writes,




Stewart W. writes,


"I thought I'd let you know my experience with an NG tube.

My specialist and I decided that due to my on going weight loss (my nausea was so bad that all I was getting was a maximum of about 300 calories a day from Ensure Plus), I had to be admitted to the hospital for two weeks in order to get an NG tube.

The NG tube was fitted on that Friday after my admission, but it was not pleasant. I will say that swallowing afterwards did feel sore but nothing compared to an endoscopy. I was told by the doctor that some people do not tolerate them beforehand, and unfortunately I am one of those people.

Since being diagnosed with Gastroparesis, I have always noticed what feels like a lump in my throat. If I try to touch it, it makes my nausea worse. Furthermore, I am also being treated for polyps in my sinuses and these issues made the tube unbearable. I suffered from the worst headache I have ever had for three days straight, along with really bad nausea. I'm lucky that I'm not actually sick very much.

My stomach also had trouble with the feed itself and the pump was only set at 25ml per hour. However, even this caused stomach pain, burping, and diarrhea all night (had a fight with the nurses in the morning for not calling them. I was in a private room so had my own loo and just got on with it. I'm used to this anyway).


I saw the nutritionist on the second day and she had me sipping Ensure Plus, one 250ml every two hours, but it took an hour and a half to finish it.


On the third day, I eventually emailed my specialist and told him what was happening, all of the problems I was having with the tube. He said there was no point persevering further and to just get it removed. I'm in the UK but am lucky enough to have private health care, so you get answers to emails even at eight pm on a Sunday night. Otherwise, the nurses wouldn't be able to do anything without the doctor's approval, in which case I would have done it myself.

I honestly think I could have gotten used to the throat part if it wasn't for the blinding headache. I couldn't even lift my head off the pillow.

It even affected my state of mind and I felt really down. I was actually quite tearful. I even texted my wife and kids and told them I didn't want any visitors at first, but as soon as the tube came out, I was fine. It was weird.

Only 10 minutes after the removal my headache was almost completely gone I'm assuming it was irritating my sinuses and the nausea calmed back down to it's usual which seemed nothing in comparison.

We agreed that if I could get 1800 calories a day minimum, then I could go home within the week. I need 2400 but 1800 should stop me loosing weight, it's pretty much a 12 hour a day job as I need to take it so slowly.

My GI wants to see me in a week to discuss what we are going to do going forward as all I am having is Ensure plus , scandishake and coffee of course.

He has talked about a PEJ tube to bypass my stomach but we will see what happens.

Since coming home I have managed to keep my calorie intake up even just making my latte with fortified milk (unflavored scandishake)
650 calories per cup (go me 😁 ).

Unfortunately today the nausea is real bad so not much going in.

I don't want anybody to take my negative experience as the only outcome as the guy in the room next to me had no issues outside of slight discomfort for a day or two, which he said was helped by letting strepsils throat sweets dissolve in his mouth."

The people below were brave enough to share their pictures for Tubie Awareness Month. They gave me permission to post their pictures and I want to commend them for it. They are true warriors, really, anyone with a chronic illness is."