Find us on Google+ Gastroparesis: help

Copyright

“You agree that you will not modify, copy, reproduce, sell, or distribute any content in any manner or medium without permission."
Showing posts with label help. Show all posts
Showing posts with label help. Show all posts

Monday, April 9, 2018

Gastroparesis and Eating Disorders Part Deux: What is the Difference?

I was watching a documentary about Amy Winehouse, and I had so much going on personally when she was going through her own troubles, that I did not give her a lot of thought. I was really sick, and knew there was something really wrong with me but the doctors who were testing me for different things could not find an answer, until 2012, when I was finally diagnosed with Gastroparesis. I had never heard of Gastroparesis before then and made it my mission to find out more about it, start my blog to keep track of research, and start Facebook pages and groups to help others who may have been diagnosed with the same.

I have been really sick the past week because of allergies to things growing, so I have a lot of mucus production, plus the nausea that comes with the mucus draining down my throat, and the throwing up of mucus and stomach acid because I have not been able to eat. I watch movies and listen to music to distract myself from the nausea, and I also use it to get me through the vomiting attacks. That sounds weird, I know, but it helps me to have something else to focus on. Because I have been sick for the past week, I've finally gotten to see Amy. I want to say that I have written about Gastroparesis vs Eating Disorders in the past, and you can read it here: http://www.emilysstomach.com/2015/04/gastroparesis-vs-eating-disorders.html.

I loved Amy Winehouse's music and her voice was a welcomed change at the time from the other voices already on the scene. She was not a part of a girl group, she did not look like a carbon copy of anyone, and she maintained her individuality. That is a feat that is hard to do in the entertainment industry when people are trying to market you, and are concerned with sales. I wanted to talk about her because something in her documentary bothered me more than anything else that was mentioned. She went to her mother and father, telling them about a diet she found where she could eat anything, and then vomit it all back up later. Her parents can be heard in the film saying they thought it would pass. However, it would not pass because it was bulimia.

According to National Eating Disorders (NEDA)

"Bulimia nervosa is a serious, potentially life-threatening eating disorder characterized by a cycle of bingeing and compensatory behaviors such as self-induced vomiting designed to undo or compensate for the effects of binge eating.



Image Source: http://www.geronguide.com/gallery/index.php/Bulimia-Nervosa/bulimia-06




DIAGNOSTIC CRITERIA

According to the DSM-5, the official diagnostic criteria for bulimia nervosa are:

Recurrent episodes of binge eating. An episode of binge eating is characterized by both of the following:

Eating, in a discrete period of time (e.g. within any 2-hour period), an amount of food that is definitely larger than most people would eat during a similar period of time and under similar circumstances.

A sense of lack of control over eating during the episode (e.g. a feeling that one cannot stop eating or control what or how much one is eating).

Recurrent inappropriate compensatory behavior in order to prevent weight gain, such as self-induced vomiting, misuse of laxatives, diuretics, or other medications, fasting, or excessive exercise.

The binge eating and inappropriate compensatory behaviors both occur, on average, at least once a week for three months.
Self-evaluation is unduly influenced by body shape and weight.

The disturbance does not occur exclusively during episodes of anorexia nervosa.




WARNING SIGNS & SYMPTOMS OF BULIMIA NERVOSA

Emotional and behavioral

In general, behaviors and attitudes indicate that weight loss, dieting, and control of food are becoming primary concerns

Evidence of binge eating, including disappearance of large amounts of food in short periods of time or lots of empty wrappers and containers indicating consumption of large amounts of food

Evidence of purging behaviors, including frequent trips to the bathroom after meals, signs and/or smells of vomiting, presence of wrappers or packages of laxatives or diuretics

Appears uncomfortable eating around others

Develops food rituals (e.g. eats only a particular food or food group [e.g. condiments], excessive chewing, doesn’t allow foods to touch)

Skips meals or takes small portions of food at regular meals

Disappears after eating, often to the bathroom

Any new practice with food or fad diets, including cutting out entire food groups (no sugar, no carbs, no dairy, vegetarianism/veganism)

Fear of eating in public or with others

Steals or hoards food in strange places

Drinks excessive amounts of water or non-caloric beverages

Uses excessive amounts of mouthwash, mints, and gum

Hides body with baggy clothes

Maintains excessive, rigid exercise regimen – despite weather, fatigue, illness, or injury—due to the need to “burn off ” calories

Shows unusual swelling of the cheeks or jaw area

Has calluses on the back of the hands and knuckles from self- induced vomiting

Teeth are discolored, stained

Creates lifestyle schedules or rituals to make time for binge-and-purge sessions

Withdraws from usual friends and activities

Looks bloated from fluid retention

Frequently diets

Shows extreme concern with body weight and shape

Frequent checking in the mirror for perceived flaws in appearance

Has secret recurring episodes of binge eating (eating in a discrete period of time an amount of food that is much larger than most individuals would eat under similar circumstances); feels lack of control over ability to stop eating

Purges after a binge (e.g. self-induced vomiting, abuse of laxatives, diet pills and/or diuretics, excessive exercise, fasting)

Extreme mood swings

Physical

Noticeable fluctuations in weight, both up and down

Body weight is typically within the normal weight range; may be overweight

Stomach cramps, other non-specific gastrointestinal complaints (constipation, acid reflux, etc.)

Difficulties concentrating

Abnormal laboratory findings (anemia, low thyroid and hormone levels, low potassium, low blood cell counts, slow heart rate)

Dizziness

Fainting/syncope

Feeling cold all the time

Sleep problems

Cuts and calluses across the top of finger joints (a result of inducing vomiting)

Dental problems, such as enamel erosion, cavities, and tooth sensitivity

Dry skin

Dry and brittle nails

Swelling around area of salivary glands

Fine hair on body

Thinning of hair on head, dry and brittle hair (lanugo)

Cavities, or discoloration of teeth, from vomiting**

Muscle weakness

Yellow skin (in context of eating large amounts of carrots)

Cold, mottled hands and feet or swelling of feet

Menstrual irregularities — missing periods or only having a period while on hormonal contraceptives (this is not considered a 'true' period)

Poor wound healing


Impaired immune functioning





Image Source: https://anorexianervosaforpharmacists.weebly.com/eating-disorders.html





Many people with bulimia nervosa also struggle with co-occurring conditions, such as:

Self-injury (cutting and other forms of self-harm without suicidal intention)
Substance abuse
Impulsivity (risky sexual behaviors, shoplifting, etc.)
Diabulimia (intentional misuse of insulin for type 1 diabetes)
Learn more about co-occurring conditions





Image Source: https://www.fullcirclehealthcareinc.com/eating-disorders.html





HEALTH CONSEQUENCES OF BULIMIA NERVOSA

The recurrent binge-and-purge cycles of bulimia can affect the entire digestive system and can lead to electrolyte and chemical imbalances in the body that affect the heart and other major organ functions.

The body is generally resilient at coping with the stress of eating disordered behaviors, and laboratory tests can generally appear perfect even as someone is at high risk of death. Electrolyte imbalances can kill without warning; so can cardiac arrest. Therefore, it’s incredibly important to understand the many ways that eating disorders affect the body."
**You can get the same dental effects from Gastroparesis, see my article: http://www.emilysstomach.com/2017/12/gastroparesis-effects-on-dental-health.html





Image Source: https://it.123rf.com/photo_71030037_la-bulimia-%C3%A8-un-disturbo-alimentare-binge-eating-e-tentativi-di-sbarazzarsi-del-cibo-consumato-segni-e.html




Image Source: http://gi-north.com/are-you-at-risk-for-gastroparesis/


I found this article while I was doing research on eating disorders and Gastroparesis. I thought it would bring hope to those who have both, or maybe just have an eating disorder. According to Mirror Mirror, Eating Disorder Help,

"GI Symptoms in Eating Disorders

Gastrointestinal (GI) complications are commonly seen with anorexia, bulimia and binge eating disorder. Heartburn, gas, bloating, early fullness, nausea, abdominal distention, rectal pain, constipation or diarrhea might be considered simply 'irritable bowel syndrome' – potentially delaying rapid diagnosis and treatment of an underlying eating disorder. Often referred to as functional gut disorders, there is an impairment in the body’s normal 'functioning,' such as delayed movement of food through the digestive tract, hypersensitivity of intestinal nerve cells, and the way in which a person’s brain responds to these stimuli (1). Re-feeding and in turn, recovery, is difficult physically as well as emotionally.


Anorexia Nervosa, Restricting-Type

gastrointestinal symptoms eating disorders

Prolonged food restriction causes muscular atrophy of the entire digestive tract. This leads to slow stomach emptying (called Gastroparesis) and is a direct cause of the trapped gas, bloating and abdominal distention seen with anorexia. Post-meal pain, pressure and constipation can be quite severe.

Consumption of sugar-free products and high fiber fruits and vegetables to blunt hunger can add to GI discomfort. Sorbitol — found in sugar-free gums and mints, and fructose –found in many fruits — can increase gas production. Psychological factors such as depression and/or anxiety, as well as pelvic floor dysfunction, can lead to heightened awareness of pain sensations in the gut, making the problem feel even worse (2,3).

A rare but documented cause of severe abdominal pain can be seen in extremely malnourished individuals. It is called Superior mesenteric artery (SMA) syndrome and is caused by compression of the artery by the first portion of the intestines called the duodenum (4). This is a medical emergency and therefore is imperative that individuals struggling with overcoming any type of eating disorder work with medical professionals to safely guide and monitor them.



Bulimia Nervosa

Purging can lead to a condition known as acute sialadenosis, in which the parotid glands become swollen and painful. This condition will cause an individual to have a characteristic “chipmunk-like” appearance. Treatment involves warm compresses, tart candies, and anti-inflammatory medication (5). Individuals struggling with bulimia also experience gas, bloating, indigestion and constipation as well as gastritis, an inflammation of the lining of the stomach causing upper abdominal pain.

Upper GI symptoms of acid reflux occur due to repeated bouts of self-induced vomiting. The valve (called a sphincter) that controls the connection between the stomach and esophagus becomes floppy, allowing stomach acids and partially digested foods to back up through the esophagus and into the throat. This is involuntary and may cause erosion of the mucosa of the esophagus, leading to a condition known as Barrett’s esophagus, a pre-cursor to esophageal cancer (3). Repeated bouts of self-induced vomiting can ultimately cause tears in the esophagus, referred to as a Mallory Weiss Tears. Vomiting blood is a very frightening experience and requires emergency medical care. Daily vomiting can put tremendous strain on the heart muscle resulting in arrhythmias, palpitations and death (4).

Bloodwork may show characteristic abnormalities more commonly seen when purging becomes frequent and habitual. The pancreas and liver enzymes may be elevated without other symptoms and electrolyte levels may be abnormal (5,6)

Difficulty swallowing is another problem commonly seen in anorexia and bulimia and may be related to the loss of muscle tone in the esophagus. It is important to see a physician when a patient complains of difficulty swallowing while increasing nutrition.




Image Source: http://www.eatingdisorderpro.com/2013/02/28/diabulimia/





Other purging disorders – Laxatives, Diuretics and Exercise

Laxative abuse has been reported in more than 1/3 of patients with eating disorders. Patients believe they are purging calories to stay thin, when in fact, most absorption of calories occurs in the small intestine. Most commonly (though not exclusively) seen in patients with bulimia, laxative abuse causes the bowel to become dependent on laxative stimulation to pass a bowel movement. Individuals who use laxatives, diuretics or both (to purge calories) become severely and chronically dehydrated. Kidney function can then suffer impairment from chronic depletion of blood flow due to dehydration. Stimulant laxatives work by irritating the nerves that stimulate the colon to cause frequent watery stools, while bulk-forming laxatives work by increasing stool mass to the point the bowels force it out.

This chronic overstimulation can cause complete bowel shutdown which is referred to as cathartic colon. Once a patient’s colon becomes incapable of transporting fecal material, they may require partial or complete colon resection, or even require a colostomy bag (7,8). Additionally, stopping these behaviors ‘cold turkey’ can cause extreme fluid shifts, renal shutdown and life threatening electrolyte imbalance. This is referred to as Pseudo-Bartters syndrome. (5,6) Medical practitioners need to carefully monitor patients as they wean off laxatives and diuretics for this reason. Over exercise is another form of purging behavior.



Rectal Prolapse

Rectal prolapse occurs when the rectum protrudes outside the opening of the anus. Although not a common feature, rectal prolapse has been seen in patients who binge and purge, and in patients suffering from severe constipation and/or laxative abuse.

Increased intraabdominal pressure from vomiting, among other factors such as medication, poor diet and low fiber intake contribute to this condition. Surgical treatment is the definitive treatment for recurring prolapse but steps to prevent further constipation are essential. (5,6)




Binge Eating Disorder

Individuals who binge-eat tend to have erratic and irregular eating patterns around all meals, in turn causing a host of GI symptoms including constipation, gas, bloating and diarrhea.

Patients with anorexia who binge eat are at risk for acute gastric dilatation. This is due to slow gastric emptying and overeating large volumes in the face of weakened stomach musculature. The large quantity of food exceeds the stomach’s ability to empty which obstructs of blood flow to the stomach and intestines. The result is potential rupture of the stomach (4). Symptoms include vomiting, severe abdominal distention and pain.




Practical Suggestions to Reduce GI Discomfort While Recovering

It is advisable to see a physician to evaluate the many causes of gastrointestinal distress. Although many symptoms mentioned resolve with normal eating, it is important to rule out the potentially serious GI issues we see commonly with eating disorders.

The best long term relief for the discomfort accompanying normalized eating at the start of recovery is to schedule meals, snacks and fluids at regular intervals, and to sit calmly and mindfully while eating. Often referred to as “the rule of threes” (7,8) it is advisable to consume three meals and three snacks, at least three hours apart. Re-introducing foods as well as any type of nutritional supplementation should be done under the proper care and guidance of a physician and the dietitian to collaboratively treat these problems in a multidisciplinary approach.



GI Symptoms in Eating Disorders



Constipation Relief

For people with eating disorders, adequate fluids and fiber are the first line treatment for chronic constipation. It is advisable to increase fiber intake slowly to avoid additional gas and bloating. Examples of fiber-rich foods include whole grain breads and cereals, bran, nuts and seeds, lentils, beans and some fruits and vegetables.

Patients who are continuing to struggle with constipation should consult with their physicians for any potential medication needs. The fact remains that with continued good eating over time, many of these GI complains will resolve.



Gas, Bloating and Cramping

Physicians will recommend simethicone (Gas-X) to help with gas pain, and recent clinical guidelines by the American College of Gastroenterology suggest the use of metoclopramide (Reglan) to help with slow gastric emptying (9). Metoclopramide increases muscle contractions in the upper digestive tract and speeds up the rate at which the stomach empties into the intestines. This medication must be given with caution, however, as it can affect the heart rate of someone with anorexia.

One of the main goals in treating the GI symptoms of bulimia is to reduce and eliminate purging behavior. In cases where associated heartburn is frequent doctors will recommend a protein-pump inhibitor, a medication that protects the esophageal wall by reducing the stomach’s production of gastric acid.

In some cases, therapies to calm the gut including meditation or anti-anxiety meds, can be quite helpful. It is important to note that 'special' diets, or eliminating certain foods in an attempt to alleviate symptoms is not wise to try while in recovery. Dietitians need to individualize meal plans for the specific needs of each client.




Final Words

If you are in recovery or caring for someone in recovery, the abdominal discomfort with eating is very real. The body has gotten used to eating smaller amounts of food and the additional anxiety of increasing intake is truly distressing. As long as you’ve consulted a medical professional, the best treatment for GI upset is to continue following a plan of regular meals and snacks. Some patients have found heat pads or hot water bottles placed directly on the belly after meals to be helpful when pain is severe.





New Research Ahead – The Role of the Intestinal Microbiota

New research on the role of the intestinal microbiota in anorexia and other eating disorders is exciting. This research looks at the enteric nervous system, comprised of more than 100 million nerve cells lining your entire GI tract. This neural complex is thought to be equivalent to “a second brain” affecting digestion, weight regulation and even mood. Entirely new treatments are on the horizon as we begin to understand the interactive regulation that now clearly exists between the gut and the brain (10). Hopefully, we will continue to find new treatments for the gastric distress that eating disorder sufferers encounter as they work towards meaningful recovery.




Image Source: http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/psychiatry-psychology/eating-disorders/




About The Author:

Erica Leon, MS, RDN, CDN, CEDRD is the founder of Erica Leon Nutrition. She specializes in nutrition counseling for eating disorders and unhealthy eating patterns, as well as intuitive eating coaching.

Thank you so much to the following clinicians who kindly (and generously) reviewed this paper for accuracy of content:

Marcia Herrin, EdD, MPH, RDN, LD, FAED
Fellow, Academy of Eating Disorders
Author: The Parent’s Guide to Eating Disorders (Gurze Press, 2007) & Nutrition Counseling in the Treatment of Eating Disorders (Brunner-Routledge, 2013)

Patsy Catsos, MS, RDN, LD
Digestive Health Expert
Author: IBS—Free at Last! (2012)
Nutrition Works

References:

1) Janssen, P. Viewpoint, Can eating disorders cause functional gastrointestinal disorders? Neurogastroenterol Motil 2010; 22:1267-1269.

2) Wang, X, Luscombe, G, Boyd, C et al, Functional gastrointestinal disorders in eating disorder patients: Altered distribution and predictors using Rome III compared to Rome II criteria, World J Gastroenterol 2014; Nov 21; 20 (43): 16293 – 16299.

3) Sato, Y, and Fukudo, S, Gastrointestinal Symptoms and disorders in patients with eating disorders, Clin J Gastroenterol 2015; 8:255-263.

4) Norris, et al. Gastrointestinal Complications Associated with Anorexia Nervosa: A Systematic Review. Int J Eat Disord 2016; 49:3 216-237.

5) Mehler, S & Walsh, K, Electrolyte and Acid-Base Abnormalities Associated with Purging Behaviors. Int J Eat Disord 2016; 49:3 311-318.

6) Forney, J, Buchman-Schmitt, J et al, The Medical Complications Associated with Purging. Int J Eat Disord 2016; 49:3 249-259.

7) Herrin, M & Larkin, M, Nutrition Counseling in the Treatment of Eating Disorders, 2nd ed. Publ. Taylor & Francis, 2012.

8) Herrin, M & Matsumoto, N, The Parent’s Guide to Eating Disorders, 2nd Ed. Publ. Gurze Books, 2007.

9) Camilleri, M et al. Clinical Guideline: Management of Gastroparesis. Am J Gastroenterol, 2013; 108: 18-37.

10) Kleiman, S, Carroll, I, et al. Gut Feeling: A Role for the Intestinal Microbiota in Anorexia Nervosa? Int J Eat Disord 2015; 48 (5):449-451."


There is a wonderful documentary that looks into recovery of people who are facing an eating disorder. Even if you have Gastroparesis and no eating disorder, I would recommend this video highly. It brought me to tears. It's a really well done documentary:

https://youtu.be/mU6MT6Bzyw0



Eating disorders like Bulimia can lead to motility disorders like Gastroparesis. A lot of people have trouble understanding the difference between an eating disorder like Bulimia and a motility disorder like Gastroparesis, because both include vomiting and with Gastroparesis, there is the ability to get full easily because you retain food in your stomach because the stomach does not function normally.

People with Gastroparesis can gain weight instead of losing weight, but that does not mean they are not malnourished or vitamin deficient. A lot of people with Gastroparesis lose weight, and they do not want to lose the weight because they get down to scary levels of weight loss. Most people end up with a feeding tube at that point or TPN, because there is not much in the way of treatment for Gastroparesis. Bulimics can develop Gastroparesis and motility disorders because of the vomiting and weight loss. They can damage their vagus nerve, which controls so much in your body. if you do have an eating disorder and have been diagnosed with Gastroparesis, I do have a support group that you can join to talk to others and get support from others in the same position at: https://www.facebook.com/groups/GPandEDSupport/. You are NOT alone.

Gastroparesis, according to the Mayo Clinic, is a condition that affects the normal spontaneous movement of the muscles (motility) in your stomach. Ordinarily, strong muscular contractions propel food through your digestive tract. But if you have gastroparesis, your stomach's motility is slowed down or doesn't work at all, preventing your stomach from emptying properly. Gastroparesis can interfere with normal digestion, cause nausea and vomiting, and cause problems with blood sugar levels and nutrition. The cause of gastroparesis is usually unknown. Sometimes it's a complication of diabetes, and some people develop gastroparesis after surgery. There is no cure for Gastroparesis.

The Medscape Journal of Medicine has a really detailed, in depth look into Gastroparesis and what causes it. You can read the article here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2258461/, but I will post an excerpt here,

"Gastroparesis presents with symptoms of gastric retention and nongastrointestinal manifestations, with objective evidence of delayed gastric emptying in the absence of mechanical obstruction. Diabetic, idiopathic, and postsurgical gastroparesis are the most common forms, although many other conditions are associated with symptomatic delayed gastric emptying (Table 1). Gastroparesis is estimated to affect up to 4% of the US population[1] and may produce either mild, intermittent symptoms of nausea, early satiety, and postprandial fullness with little impairment of daily function, or relentless vomiting with total disability and frequent hospitalizations. A recent report estimated that inpatient costs for patients with severe gastroparesis approach $7000/month.[2]

Gastroparesis presents with a constellation of symptoms. In one study, nausea was reported by 93% of patients whereas early satiety and vomiting were noted by 86% and 68%, respectively.[3] In another series, nausea, vomiting, bloating, and early satiety were reported by 92%, 84%, 75%, and 60% of patients, respectively.[4] Many patients in both case series (89% and 46%) also reported abdominal pain (Table 2). Others experience heartburn from acid reflux into the esophagus that is facilitated by fundic distention which increases the rate of transient lower esophageal sphincter relaxations.[5] Although some gastroparetics with frequent vomiting lose weight and develop malnutrition, most patients were overweight or obese in one series, indicating that the disorder does not necessarily restrict food intake.[6] Phytobezoars are organized concretions of indigestible food residue that are retained within the stomach. These may increase gastroparesis symptoms or produce a palpable epigastric mass, gastric ulceration, small intestinal obstruction, or gastric perforation.[7] Bezoars are eliminated by endoscopic disruption and lavage, enzymatic digestion (papain, cellulose, or N-acetylcysteine), and dietary exclusion of high-residue foods. Variably delayed gastric emptying may cause unpredictable food delivery in diabetics with gastroparesis, affecting glycemic control and increasing risks of both severe hypo- and hyperglycemia.[8]

Gastroparesis has many causes. In a case series of 146 gastroparesis patients seen at a large US tertiary medical center, 29% had underlying diabetes, 13% developed symptoms after gastric surgery, and 36% were idiopathic.[4] The mean age of onset for gastroparesis is 34 years. Eighty-two percent of cases occur in women.[4]"



Image Source: http://studylib.net/doc/7356614/super-cereal-recipes



If you do have an eating disorder, and you want to get help - there are several ways you can do so. You can make an appointment with your primary doctor, who can refer you to a doctor who can help you. There are several numbers you can call for help and links below (click on the bold words):

Shoreline Eating Disorders.

Eating Disorder Hope.

National Eating Disorders.

Help Guide - Helping Someone with an Eating Disorder.

Selah House.

Magnolia Creek - Bulimia Help for Women.

National Eating Disorders Collaboration.

Bulimia.com - for 24/7 hour advisors to help you, call 1-866-578-1604.






Image Source: https://www.eatingrecoverycenter.com/blog/2016/04/30/eating-recovery-day-why-we-celebrate





I am not a doctor, I am a researcher. Please call your doctor if you have any questions or concerns so that they may decide the best care for you. Everyone is different. Everyone with Gastroparesis is different. I just wanted to distinguish between eating disorders and Gastroparesis, and to make sure people know that eating disorders can lead to Gastroparesis as well. Like I said before, if you have any questions or concerns, please consult your doctor.

Tuesday, December 20, 2016

Please SHARE and Help River, My Nephew, Who Has a Rare Form of Brain Cancer

This is my two year old nephew River.


My two year old nephew was diagnosed with a rare form of brain cancer (tumor). He's only a baby. It would mean the world to my family if you could add him to your prayer lists and/or donate to his cause. I'm trying to buy my step father a plane ticket out there to see him, because he can't afford a ticket this Christmas. I want to be able to surprise him with one so that he can spend some time with his grandson. If you could share this link, I'd appreciate it. I just want to do what I can for River. He's a special boy who doesn't deserve to go through this hell. Please help me help a Christmas miracle happen. <3 I am raising money to help my step father get up there to spend time with River. Any leftover money will be donated to his medical expenses, because there are a lot of them, and he's on medicaid. I never ask for anything like this, but this is family and this is important to me. UPDATE: River is back in the hospital with a fever and vomiting. They're going to do a spinal tap.

http://www.gofundme.com/help-step-father-see-nephew

***PLEASE SHARE AND GIVE IF YOU CAN***

#RiverWarriors #RiverWILLBeatCancer

This is the rare form of brain cancer he has been diagnosed with: http://en.m.wikipedia.org/wiki/Atypical_teratoid_rhabdoid_tumor

I plan on doing more research about this particular type of cancer.

According to Wikipedia,

"Atypical teratoid rhabdoid tumor (AT/RT) is a rare tumor usually diagnosed in childhood. Although usually a brain tumor, AT/RT can occur anywhere in the central nervous system (CNS) including the spinal cord. About 60% will be in the posterior cranial fossa (particularly the cerebellum). One review estimated 52% posterior fossa, 39% sPNET (supratentorial primitive neuroectodermal tumors), 5% pineal, 2% spinal, and 2% multi-focal.[1]

In the United States, three children per 1,000,000 or around 30 new AT/RT cases are diagnosed each year. AT/RT represents around 3% of pediatric cancers of the CNS.[2] Around 17% of all pediatric cancers involve the CNS; it is the most common childhood solid tumor.[citation needed] The survival rate for CNS tumors is around 60%. Pediatric brain cancer is the second leading cause of childhood death, just after leukemia. Recent trends suggest that the rate of overall CNS tumor diagnosis is increasing by about 2.7% per year. As diagnostic techniques using genetic markers improve and are used more often, the proportion of AT/RT diagnoses is expected to increase."


I have never heard of this type of cancer before but I will be working on this article to learn all I can about it. River has already undergone brain surgery, where they removed the tumor, but the doctors are afraid that they didn't get it all. He starts chemotherapy soon. I just want my stepfather to get a chance to spend some time with him in case the worse happens, or he's too sick to realize my stepfather is there. I never ask you guys for anything but I could use some help with donations. Even if you could just share the gofundme page, I'd appreciate it. Please put River on your prayer lists. His mother is pregnant now, so I'm terrified that all of this stress might make her lose the baby. My step sister is very dear to me and I want to help her as much as I can.

Again the link is: https://www.gofundme.com/help-step-father-see-nephew

Just know that I will be forever grateful and will definitely owe you one because I hate asking for money. However, I can't stand to see a 2 year old suffer and I would take it from him if I could. If you know of any charities or cancer foundations that may be able to help out my family, please list them in the comments. My step sister doesn't have much money and any kind of charity that could help out with medical expenses, traveling expenses, etc. would be welcomed. Thank you for taking the time to read this. It's been weighing on me greatly and the stress has caused my GP to go into overdrive.






Tuesday, October 28, 2014

Suicide and Chronic Illness

I am involved with a lot of gastroparesis groups on Facebook. A few weeks ago, we lost one of our members to suicide. I wanted to address this, so that her death had some meaning, and to reach out to anyone else who is feeling lost and lonely. Please know that you aren't alone. Many people with chronic illnesses have a higher chance of suicide, according to medical studies.

***THESE HELPLINES ARE NOT EXCLUSIVELY TO GPERs, SO IF YOU NEED THEM FOR ANOTHER FRIEND, PLEASE USE THEM! PRINT THEM AND PUT THEM ON YOUR FRIDGE!***





According to The Guardian (http://www.theguardian.com/society/2011/aug/23/suicide-chronic-illness-study,



"At least one person takes their life every day while suffering from a chronic or terminal illness, and the government is neglecting this hidden trend, the think tank Demos has said.

In a study, The Truth About Suicide, researchers found at least 10% of suicides in Britain are linked to terminal or chronic illness, accounting for more than 400 deaths a year. The think tank, which said the study marked the first attempt to estimate the scale of suicides related to illness, wanted to challenge the notion that taking one's own life is largely about a patient's mental health rather than physical state. Researchers also found some people were killing themselves at a "younger age in order to avoid severe symptoms and greater pain later in life".

The figures come from a mixture of sources, including data from freedom of information requests to 147 primary care trusts, which are supposed to conduct annual suicide audits.

Researchers also conducted a series of interviews with serving and recently retired coroners. Demos also had access to suicide inquest files in Norwich from May 2006 to December 2010 to identify the proportion of suicides that involved people with terminal or chronic health conditions. It said that of the 4,390 individual suicide cases last year, 10% concerned people "experiencing some form of serious physical illness as an influencing factor".

The researchers said patients with such conditions "should be considered a high- risk group for suicide within national policy, and much greater attention should be given to providing better medical, practical and psychological support". The issue has become a fixture in public debate as growing numbers of UK citizens with chronic or terminal conditions have traveled to the assisted-death organization Dignitas in Switzerland to be helped to end their lives. Last year, a coroner recorded a verdict of suicide over the death of Michelle Broad, wife of the former England cricketer and international referee Chris Broad, who had motor neurone disease.

Louise Bazalgette, author of the report, said the 'lack of attention paid to people with terminal or chronic illness committing suicide is a gross dereliction of duty on the part of the government and health services. The difficulty we experienced in tracking down evidence of the relationship between physical illness and suicide suggests a willful avoidance of what is an extremely important public health issue.

'The results are devastating: at least 400 people with terminal or chronic illness commit suicide every year and this cannot continue to be ignored.'

She said a government consultation on suicide prevention, issued last month, focused on the same 'at risk' groups identified by Labor in 2002: those using mental health services, prisoners and people with a history of self-harm.



Source: https://nacchocommunique.com/2016/08/23/naccho-aboriginal-health-racgp-calls-for-urgent-action-to-support-the-health-and-wellbeing-of-our-youth/</a>




'Eighty prisoners committed suicide last year. That is only a fifth of suicides of patients with chronic or terminal conditions. There's an urgent need for support,' she said.

Experts agreed hospital doctors and GPs could do more to identify patients at risk from suicide but warned that the issue was 'more complicated.'

Linda Gask, professor of primary care psychiatry at the University of Manchester, said it was wrong to think 'being depressed enough to commit suicide is either because of your mental health or your physical health: one is linked to another. We know that 30% of diabetes patients are depressed. Not all of them commit suicide.

'On the other hand, those traveling to Dignitas would say they are not depressed. They argue they are making a rational decision because they do not want to live like this.'

Charities were also wary of clearly ascribing the cause of a suicide to either physical or mental health problems.

Jo Ferns, director of research for the Samaritans, said the issue was one of 'risk' and what factors increased the chance of suicide.

'People with chronic conditions could be not suicidal but perhaps apathetic about living or dying. They are not saying they will kill themselves but taking decisions that do increase the risks. I think that's what we have to watch for.'

A Department of Health spokesman said its mental health strategy recognized 'that physical illness increases the risk of mental health problems and vice versa. We are consulting with bereaved families and experts in general practice, local government, and other organizations on a new strategy to prevent suicides.

"]'The consultation calls upon healthcare professionals to be alert to mental health issues, especially depression, in the patients that they see for known physical health problems, and to take the right steps to help people with long-term conditions have a better quality of life.'"





According to WebMD (http://www.webmd.com/depression/guide/chronic-illnesses-depression
,

"Dealing With Chronic Illnesses and Depression:

For millions of people, chronic illnesses and depression are facts of life. A chronic illness is a condition that lasts for a very long time and usually cannot be cured completely, although some illnesses can be controlled or managed through lifestyle (diet and exercise) and certain medications. Examples of chronic illnesses include diabetes, heart disease, arthritis, kidney disease, HIV/AIDS, lupus, and multiple sclerosis (I'm going to go ahead and say GP since I believe it's a chronic illness and just as debilitating, even though it's not in the article).

Many people with these illnesses become depressed. In fact, depression is one of the most common complications of chronic illness. It's estimated that up to one-third of people with a serious medical condition have symptoms of depression.

It's not hard to see the cause and effect relationship between chronic illness and depression. Serious illness can cause tremendous life changes and limit your mobility and independence. A chronic illness can make it impossible to do the things you enjoy, and it can eat away at your self-confidence and a sense of hope in the future. No surprise, then, that people with chronic illness often feel despair and sadness. In some cases, the physical effects of the condition itself or the side effects of medication lead to depression, too.

What Chronic Conditions Trigger Depression?

Although any illness can trigger depressed feelings, the risk of chronic illness and depression gets higher with the severity of the illness and the level of life disruption it causes. The risk of depression is generally 10-25% for women and 5-12% for men. However, people with a chronic illness face a much higher risk -- between 25-33%. Risk is especially high in someone who has a history of depression.
Continue reading below...




Depression caused by chronic disease often makes the condition worse, especially if the illness causes pain and fatigue or it limits a person's ability to interact with others. Depression can intensify pain, as well as fatigue and sluggishness. The combination of chronic illness and depression might lead you to isolate yourself, which is likely to make the depression even worse.

Research on chronic illnesses and depression indicates that depression rates are high among patients with chronic conditions:

Heart attack: 40%-65% experience depression
Coronary artery disease (without heart attack): 18%-20% experience depression
Parkinson's disease: 40% experience depression
Multiple sclerosis: 40% experience depression
Stroke: 10%-27% experience depression
Cancer: 25% experience depression
Diabetes: 25% experience depression
Chronic pain syndrome: 30%-54% experience depression

Symptoms of Depression

People with a chronic illness as well as their family members often overlook the symptoms of depression. They assume that feeling sad is normal for someone struggling with disease. Symptoms of depression are also often masked by other medical problems. The symptoms get treated, but not the underlying depression. When you have both a chronic illness and depression, you need to treat both at the same time.




Source: https://williamsonsource.com/save-lives-learning-warning-signs-suicide/




Treatment Options

Depression is treated much the same way for someone who is chronically ill as someone who isn't. Early diagnosis and treatment can ease distress along with the risk of complications and suicide. Many times, depression treatment can improve your overall medical condition, a better quality of life, and a greater likelihood of sticking to a long-term treatment plan.

When depressive symptoms are related to the physical illness or the side effects of medication, your doctor may need to adjust or change your treatment. When the depression is a separate problem, it can be treated on its own. More than 80% of people with depression can be treated successfully with medicine, psychotherapy, or a combination of both. Antidepressant drugs usually take effect within a matter of weeks. You should work closely with your doctor or psychiatrist to find the most effective medication.


My friend Melissa wrote this and I wanted to share it because it's true.



Tips for Living With a Chronic Illness

Depression, disability, and chronic illness form a vicious cycle. Chronic medical conditions can bring on bouts of depression, which, in turn get in the way of successful treatment of the disease.

Living with a chronic illness is a challenge, and it's normal to feel grief and sadness as you come to grips with your condition and its implications. But if these feelings don't go away, or you are having trouble sleeping or eating, or you've lost interest in the activities you normally enjoy, seek help.

To avoid depression:

Try not to isolate yourself. Reach out to family and friends. If you don't have a solid support system, take steps to build one. Ask your doctor or therapist about support groups and other community resources.

Learn as much as you can about your condition. Knowledge is power when it comes to getting the best treatment available and keeping your sense of independence and control.

Make sure that you have medical support from experts you trust and can talk to openly about your ongoing questions and concerns.

If you suspect that your medication is bringing you down, talk to your doctor about other possible treatments.

Talk with your doctor about pain management.

As much as is possible, keep doing the things you like to do. You'll stay connected as well as boost your self-confidence and sense of community.

If you think you're depressed, don't wait to get help. Find a therapist or counselor you trust."






If you ARE feeling suicidal, please reach out to someone for help - a friend, a family member, priest, counselor, or click on the links below for help. We don't want to lose you, you're too valuable and your life is not meaningless.







Suicide Prevention:

If you are feeling suicidal and you want help then I have some websites for you to look into:

The Suicide Prevention Hotline: 1-800-273-TALK (8255)

http://www.suicidepreventionlifeline.org/gethelp/online.aspx

http://www.helpguide.org/articles/suicide-prevention/suicide-prevention-helping-someone-who-
is-suicidal.htm


http://www.afsp.org/

http://suicide.org/

http://dbhdd.georgia.gov/suicide-prevention

Here is a link to determine whether someone is really suicidal or not:

http://www.onhealth.com/suicide/article.htm








I received a Crisis Management document when I was starting my fraternity chapter. I wanted to share it on this article because it might help someone else, and would definitely help someone dealing with something like this in college or in school:


Image Source: Psi Upsilon



According to Healthcare.org,

"Are You Feeling Suicidal?

How to Deal with Suicidal Thoughts and Feelings and Overcome the Pain

You're not alone; many of us have had suicidal thoughts at some point in our lives. Feeling suicidal is not a character defect, and it doesn't mean that you are crazy, or weak, or flawed. It only means that you have more pain than you can cope with right now. This pain seems overwhelming and permanent at the moment. But with time and support, you can overcome your problems and the pain and suicidal feelings will pass.



I'm having suicidal thoughts, what do I need to know?

No matter how much pain you’re experiencing right now, you’re not alone. Some of the finest, most admired, needed, and talented people have been where you are now. Many of us have thought about taking our own lives when we’ve felt overwhelmed by depression and devoid of all hope. But the pain of depression can be treated and hope can be renewed. No matter what your situation, there are people who need you, places where you can make a difference, and experiences that can remind you that life is worth living. It takes real courage to face death and step back from the brink. You can use that courage to face life, to learn coping skills for overcoming depression, and for finding the strength to keep going.




Remember:

Your emotions are not fixed - they are constantly changing. How you feel today may not be the same as how you felt yesterday or how you'll feel tomorrow or next week.
Your absence would create grief and anguish in the lives of friends and loved ones.
There are many things you can still accomplish in your life.
There are sights, sounds, and experiences in life that have the ability to delight and lift you - and that you would miss.
Your ability to experience pleasurable emotions is equal to your ability to experience distressing emotions.





Source: https://sicklervillesun.com/this-life-counts-suicide-awareness-and-prevention-program-set-for-oct-3-65b2f3134b51




Why do I feel suicidal?

Many kinds of emotional pain can lead to thoughts of suicide. The reasons for this pain are unique to each one of us, and the ability to cope with the pain differs from person to person. We are all different. There are, however, some common causes that may lead us to experience suicidal thoughts and feelings.




Why suicide can seem like the only option

If you are unable to think of solutions other than suicide, it is not that other solutions don’t exist, but rather that you are currently unable to see them. The intense emotional pain that you’re experiencing right now can distort your thinking so it becomes harder to see possible solutions to problems, or to connect with those who can offer support. Therapists, counselors, friends or loved ones can help you to see solutions that otherwise may not be apparent to you. Give them a chance to help.





Source: https://www.nimh.nih.gov/health/publications/suicide-faq/index.shtml






A suicidal crisis is almost always temporary

Although it might seem as if your pain and unhappiness will never end, it is important to realize that crises are usually temporary. Solutions are often found, feelings change, unexpected positive events occur. Remember: suicide is a permanent solution to a temporary problem. Give yourself the time necessary for things to change and the pain to subside.




Even problems that seem hopeless have solutions

Mental health conditions such as depression, schizophrenia, and bipolar disorder are all treatable with changes in lifestyle, therapy, and medication. Most people who seek help can improve their situation and recover. Even if you have received treatment for a disorder before, or if you’ve already made attempts to solve your problems, know that it’s often necessary to try different approaches before finding the right solution or combination of solutions. When medication is prescribed, for example, finding the right dosage often requires an ongoing process of adjustment. Don’t give up before you’ve found the solution that works for you. Virtually all problems can be treated or resolved.




Take these immediate actions

Step #1: Promise not to do anything right now
Even though you’re in a lot of pain right now, give yourself some distance between thoughts and action. Make a promise to yourself: 'I will wait 24 hours and won't do anything drastic during that time.' Or, wait a week.

Thoughts and actions are two different things—your suicidal thoughts do not have to become a reality. There is no deadline, no one's pushing you to act on these thoughts immediately. Wait. Wait and put some distance between your suicidal thoughts and suicidal action.

Step #2: Avoid drugs and alcohol
Suicidal thoughts can become even stronger if you have taken drugs or alcohol. It is important to not use nonprescription drugs or alcohol when you feel hopeless or are thinking about suicide.

Step #3: Make your home safe.
Remove things you could use to hurt yourself, such as pills, knives, razors, or firearms. If you are unable to do so, go to a place where you can feel safe. If you are thinking of taking an overdose, give your medicines to someone who can return them to you one day at a time as you need them.

Step #4: Don’t keep these suicidal feelings to yourself
Many of us have found that the first step to coping with suicidal thoughts and feelings is to share them with someone we trust. It may be a family member, friend, therapist, member of the clergy, teacher, family doctor, coach, or an experienced counselor at the end of a helpline. Find someone you trust and let them know how bad things are. Don’t let fear, shame, or embarrassment prevent you from seeking help. And if the first person you reach out to doesn’t seem to understand, try someone else. Just talking about how you got to this point in your life can release a lot of the pressure that’s building up and help you find a way to cope.

Step #5: Take hope - people DO get through this
Even people who feel as badly as you are feeling now manage to survive these feelings. Take hope in this. There is a very good chance that you are going to live through these feelings, no matter how much self-loathing, hopelessness, or isolation you are currently experiencing. Just give yourself the time needed and don’t try to go it alone.




Reaching out for help

Even if it doesn't feel like it right now, there are many people who want to support you during this difficult time. Reach out to someone. Do it now. If you promised yourself 24 hours or a week in step #1 above, use that time to tell someone what's going on with you. Talk to someone who won't try to argue about how you feel, judge you, or tell you to just 'snap out of it.' Find someone who will simply listen and be there for you.

It doesn’t matter who it is, as long as it’s someone you trust and who is likely to listen with compassion and acceptance.



Source: https://nicoa.org/national-suicide-prevention-week/




How to talk to someone about your suicidal thoughts

Even when you’ve decided who you can trust to talk to, admitting your suicidal thoughts to another person can be difficult.

Tell the person exactly what you are telling yourself. If you have a suicide plan, explain it to them.
Phrases such as, ‘I can't take it anymore’ or ‘I’m done’ are vague and do not illustrate how serious things really are. Tell the person you trust that you are thinking about suicide.

If it is too difficult for you to talk about, try writing it down and handing a note to the person you trust. Or send them an email or text and sit with them while they read it.





What if you don't feel understood?

If the first person you reached out to doesn’t seem to understand, tell someone else or call a suicide crisis helpline. Don’t let a bad experience stop you from finding someone who can help.


If you don’t know who to turn to:

In the U.S. - Call the National Suicide Prevention Lifeline at 1-800-273-TALK (8255) or the National Hopeline Network at 1-800-SUICIDE (1-800-784-2433).

In the UK and Ireland - Call the Samaritans at 116 123

In Australia - Call Lifeline Australia at 13 11 14

In other countries - Visit IASP or Suicide.org to find a helpline in your country.




How to cope with suicidal thoughts

Remember that while it may seem as if these suicidal thoughts and feelings will never end, this is never a permanent condition. You WILL feel better again. In the meantime, there are some ways to help cope with your suicidal thoughts and feelings.




Source: https://www.youthchg.com/product/adolescent-suicide-prevention-poster/




If You Have Suicidal Thoughts and Feelings Things to do:

Talk with someone every day, preferably face to face. Though you feel like withdrawing, ask trusted friends and acquaintances to spend time with you. Or continue to call a crisis helpline and talk about your feelings.

Make a safety plan. Develop a set of steps that you can follow during a suicidal crisis. It should include contact numbers for your doctor or therapist, as well as friends and family members who will help in an emergency.

Make a written schedule for yourself every day and stick to it, no matter what. Keep a regular routine as much as possible, even when your feelings seem out of control.

Get out in the sun or into nature for at least 30 minutes a day.

Exercise as vigorously as is safe for you. To get the most benefit, aim for 30 minutes of exercise per day. But you can start small. Three 10-minute bursts of activity can have a positive effect on mood.

Make time for things that bring you joy. Even if very few things bring you pleasure at the moment, force yourself to do the things you used to enjoy.

Remember your personal goals. You may have always wanted to travel to a particular place, read a specific book, own a pet, move to another place, learn a new hobby, volunteer, go back to school, or start a family. Write your personal goals down.





Source: http://www.laloyolan.com/news/lmu-raising-awareness-on-suicide-prevention/article_58e6305a-7345-520c-9de5-60fd6783da79.html




Things to avoid:

Being alone. Solitude can make suicidal thoughts even worse. Visit a friend, or family member, or pick up the phone and call a crisis helpline.

Alcohol and drugs. Drugs and alcohol can increase depression, hamper your problem-solving ability, and can make you act impulsively.

Doing things that make you feel worse. Listening to sad music, looking at certain photographs, reading old letters, or visiting a loved one’s grave can all increase negative feelings.

Thinking about suicide and other negative thoughts. Try not to become preoccupied with suicidal thoughts as this can make them even stronger. Don’t think and rethink negative thoughts. Find a distraction. Giving yourself a break from suicidal thoughts can help, even if it’s for a short time.




Recovering from suicidal thoughts

Even if your suicidal thoughts and feelings have subsided, get help for yourself. Experiencing that sort of emotional pain is itself a traumatizing experience. Finding a support group or therapist can be very helpful in decreasing the chances that you will feel suicidal again in the future. You can get help and referrals from your doctor or from the organizations listed in our Recommended reading section.




5 steps to recovery

Identify triggers or situations that lead to feelings of despair or generate suicidal thoughts, such as an anniversary of a loss, alcohol, or stress from relationships. Find ways to avoid these places, people, or situations.

Take care of yourself. Eat right, don’t skip meals, and get plenty of sleep. Exercise is also key: it releases endorphins, relieves stress, and promotes emotional well-being.

Build your support network. Surround yourself with positive influences and people who make you feel good about yourself. The more you’re invested in other people and your community, the more you have to lose—which will help you stay positive and on the recovery track.

Develop new activities and interests. Find new hobbies, volunteer activities, or work that gives you a sense of meaning and purpose. When you’re doing things you find fulfilling, you’ll feel better about yourself and feelings of despair are less likely to return.

Learn to deal with stress in a healthy way. Find healthy ways to keep your stress levels in check, including exercising, meditating, using sensory strategies to relax, practicing simple breathing exercises, and challenging self-defeating thoughts.





Where to turn for help

Suicide crisis lines in the U.S.:
National Suicide Prevention Lifeline at 1-800-273-8255 or IMAlive at 1-800-784-2433.

The Trevor Project offers suicide prevention services for LGBTQ youth at 1-866-488-7386.

SAMHSA's National Helpline offers referrals for substance abuse and mental health treatment at 1-800-662-4357.


Suicide crisis lines worldwide:

In the UK and Ireland: Call Samaritans UK at 116 123.

In Australia: Call Lifeline Australia at 13 11 14.

In Canada: Call Crisis Services Canada at 1-833-456-4566.

In other countries: Find a helpline near you at Befrienders Worldwide, IASP, or International Suicide Hotlines.




Sources: https://twitter.com/afspnational




Recommended reading

If you are thinking about suicide, read this first – Tips for getting you through when you’re feeling suicidal. (Metanoia.org)

About Suicide – Information for those considering suicide or have attempted suicide in the past. (NHS)

Coping with Suicidal Thoughts (PDF) – How to understand your suicidal feelings and how to develop a safety plan. (Consortium for Organizational Mental Health)


Authors: Jaelline Jaffe, Ph.D., Lawrence Robinson, and Jeanne Segal, Ph.D. Last updated: October 2018."




Source: https://en.wikipedia.org/wiki/Suicide

Monday, September 16, 2013

Gastroparesis Journals, Poetry, and Mentorship Program

I have a favorite poem that I wanted to share with all of you. It has been my favorite since high school. It really spoke to me because for the past few days, I've been very sad. Sometimes, it just seems like the Gastroparesis (GP) cycle is endless. Also, it feels like I'll never get better. I'm not usually so negative, but vomiting for the past three days and having the new doctor write me off just made me a bit depressed. Then, I thought about my favorite poem. It has always spoken to me and cheered me up when I've been at my lowest. It made me realize that I need to keep going. That things will get better and that I have the best Gastroparesis Warrior network that anyone could have.


"'If'
By: Rudyard Kipling


If you can keep your head when all about you
Are losing theirs and blaming it on you,
If you can trust yourself when all men doubt you,
But make allowance for their doubting too;
If you can wait and not be tired by waiting,
Or being lied about, don’t deal in lies,
Or being hated, don’t give way to hating,
And yet don’t look too good, nor talk too wise:

If you can dream—and not make dreams your master;
If you can think—and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you’ve spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build ’em up with worn-out tools:

If you can make one heap of all your winnings
And risk it on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breathe a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: ‘Hold on!’

If you can talk with crowds and keep your virtue,
Or walk with Kings—nor lose the common touch,
If neither foes nor loving friends can hurt you,
If all men count with you, but none too much;
If you can fill the unforgiving minute
With sixty seconds’ worth of distance run,
Yours is the Earth and everything that’s in it,
And—which is more—you’ll be a Man, my son!"
Poem can be found at: http://www.poetryfoundation.org/poems-and-poets/poems/detail/46473


The meaning behind the poem is this:

"‘If‘ by Rudyard Kipling: About the poem

The poem ‘If’ by the India-born British Nobel laureate poet Rudyard Kipling is a poem of ultimate inspiration that tells us how to deal with different situations in life. The poet conveys his ideas about how to win this life, and after all, how to be a good human being.

The poem, written in 1895 and first published in ‘Rewards and Fairies’, 1910 is 32 lines long with four stanzas of eight lines each. It is a tribute to Leander Starr Jameson. The poem is written in the form of paternal advice to the poet’s son, John. You may read more about the poem at Wikipedia.

For the theme, as already told, the poem basically tells us the conditions that we should meet to succeed in life and make this life happy and a beautiful one. The whole poem is written in a single complex sentence. So all the subordinate clauses begin with ‘if’ and the main clause concluding the entire theme comes at the end, and the poem ends with a full stop.

This structure of the poem was important to achieve the conditional goal. The poet speaks of the achievement at the end, after discussing all the requirements to reach there. This structure is actually symbolic in suggesting that you can get the rewards only after you have fulfilled the preconditions. Moreover, this makes the readers eager to know what would happen when we meet all these conditions, thus retaining the curiosity and interest till the end.

And, as the main theme of the poem is a combination of so many if’s, the title ‘If’ is an apt one for the poem."
The meaning of the poem can be found here: http://englicist.com/summary-analysis/poem-if-rudyard-kipling-summary-explanation




There are several pen pal groups in the Gastroparesis community, so I wanted to put out a warning to everyone:

**WARNING** Any Pen Pal groups that you join is to get to know people. If you feel comfortable, friend them, and then share your private information with them. The admins should NEVER ask you for your personal information, unless you get to know them and you want to share your information with them as pen pals, but that's if you are comfortable enough. Just be careful. Your personal information should not be posted on the wall for all to see, because you never really know who is looking at it. The admins try to screen our groups carefully, but occasionally, we miss someone who may be a scammer.

I just wanted to caution anyone who is joining a pen pal group because I've had that happen and it's a very scary feeling, especially if someone tries to steal your identity. I've had this happen to me, which is why I just want to caution people to be careful. Pen pal groups can be amazing because they make you feel less isolated and alone, and it's nice to get real mail instead of spam for a change. Just be diligent. And your information should NOT be in the files section of the group for all to see. Pen pals usually only need your address and maybe your birth month and day to send you things on your birthday. You don't have to give them the year unless you know that person and trust them completely. I'll reiterate, just be careful with who and where you give out your personal information.









We've added a mentorship program to the group so you can get or give support to another member of our community. I am excited to see all of us build stronger relationships with each other and hope you'll join. Facebook has implemented a mentor/mentorship app in the groups now. I have turned it on in our group. There are a lot of mentorees that could use mentors, so far!

If you would like to read about the program, it's below:

https://newsroom.fb.com/news/2018/08/people-can-now-find-mentors-and-mentees-in-groups/

If you would like to sign up to be a mentor (and please don't be nervous about it, because you could really make a difference in someone's life. If you are worried about mistakes, don't be. Mistakes are a learning tool anyway - it's not a mistake if you can learn from it. Plus, instead of having a pen pal group, this is easier and more personal) or a mentoree, please see the left sidebar of the group that says "Mentorship" and here is a link:

https://www.facebook.com/groups/strongerthanGP/mentorship_application/


Here's how the program works:

You sign up, match yourself with a partner, and get helpful conversation starters each week so you get to know each other better better. It's up to you how much time you want to spend together and what goals you want to work towards. It's a new feature FB just implemented and I thought it would be a great idea to add it to the group. I just wanted to point out that option, in case you would be interested in it. It is an option to the left of the group’s feed, under “mentorship.”


Please feel free to send the group link to any friends who might be interested in joining. If anyone is added to the group by another member, it's automatically declined, for the groups' safety. I have stories about this for why I made it a rule. If you have any questions, you can contact me, Emily Randolph Scherer. We just want to make sure that each group member wants to be here, and they also need to answer the questions. But, on a positive note, we LOVE having new members! <3









SMART PHONE APPLICATION - MYSYMPTOMS





If you have a smart phone, my friend Sarah recommended an app to me. It's called MySymptoms: Food Diary and it's a diary for your phone. You can add your medications, what you eat, how often you get sick, all of your symptoms, stress levels, sleep quality, energy level, bowel movements, and more. It's easy to keep up with it.

I downloaded it at the Google Play store.

The only drawback is that it's $2.99 for the application, but it's worth it since we all carry our phones with us everywhere - even when we go out to eat (as rare as that happens).

You can download your data and give it to your doctor as well. I downloaded it and would highly recommend it to anyone with Gastroparesis. It's easy to learn how to use and it is easier to add things to your phone than to write them down sometimes. But I know that we all carry phones with us. I'm still going to use my Gastroparesis journal and write in it but I'm also going to keep track of things on my phone now too. It never hurts to have a back up.












This is my Gastroparesis Journal. It's actually River Song's journal replica from Doctor Who.











Keep a written journal. Write down the date in each entry.

You do want to make it as detailed as possible and you might notice a pattern in yourself.


I started a Gastroparesis journal, which you know of from previous articles in this blog. My Gastroparesis diary is really useful when I'm not near my computer to blog. Write down what time you wake up, what time you take your medicine, what you took, what time you eat, how much you eat, and what you ate. Write down what time you get sick, with what you were sick with, how much, and make it as detailed as possible. Write down any questions you think of to ask your doctor, since the visits with them go by so quickly and you may forget your questions. My doctor actually copies my journal for my chart. This way, you can eventually recognize a pattern with yourself - what makes you sick and maybe what doesn’t. Since every GPer Is different, this is a way to find out what works for you. I know GP is trial and error when it comes to diet, but this written record (I have to admit, my brain fog and memory are terrible so it’s good to write things down) will help you so much. I even print out research or positive things and paste them or tape them in my journal too. I carry it with me everywhere, even when I actually get to leave the house and go to the pharmacy or the doctor. It can be a spiral notebook, binder, you can buy a blank journal from amazon or in a store, you can make anything a GP journal. Give it a try and see if it works for you.

It really helps to keep track of what's going on with my body for my doctor, including questions so that I don't forget to ask since I don't get a whole lot of time to talk to the doctor. I write in mine daily. I keep track of my medications, when I attempt to eat, when I vomit, if I have a bowel movement, and the times of all of it. I also vent in it because it's not healthy to keep your feelings bottled up, and writing helps me cope, but everyone has different coping mechanisms that help them. Your gastroparesis journal could be as simple as a spiral notebook. I would highly suggest that you start one, if you don't have one already, because it really does help keep track of things, especially if you have a hard time remembering things like I do. I call it, "GP brain."



















I'm also going to share a few images that have gotten me through the past few days. I usually cut out images I find like this and put them in my diary to remind me to be strong.