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Showing posts with label facebook. Show all posts
Showing posts with label facebook. Show all posts

Thursday, August 23, 2018

Bringing Awareness to Cyber Bullying

There has been a lot of bullying going on within the chronically ill community, a lot of which has been in the gastroparesis community, which is the only one I can really speak on. Furthermore, I cannot speak on behalf of my friends, but I can tell you that I have been cyber bullied to the point where I wanted to leave all social media altogether. I thought that since we are all chronically ill, and that we all share the diagnosis of gastroparesis, that we were supposed to be united. Instead, people or groups who are chronically ill find a person to target and make their lives a living nightmare.

We, the chronically ill, face enough adversity from doctors, nurses, family, and friends; people who do not understand gastroparesis or think it is all in our head. I had this notion that we should be working together to promote understanding and educate those who may not know about our illness. I never, in a million years, thought I would be the target of cyber bullying by the people who were the ones who were supposed to understand more than anyone, by the people who were supposed to be there to be help to support you, and by the people I thought I could count on. I never thought that I would be the victim of cyber bullying. I wrote this in August of 2013, but I updated it to include current information on and about Cyber Bullying: http://www.emilysstomach.com/2017/08/cyber-bullying-and-gp-community.html

My article in The Mighty about Cyber Bullying can be found here: https://themighty.com/2018/09/cyberbullying-gastroparesis-chronic-illness-community/

And I want to be sure to drive this point home. Chronically ill people have higher statistics of suicide and suicidal thoughts. If you are cyber bullied on top of being ill, that is A LOT to deal with. I wrote a blog article about suicide here: http://www.emilysstomach.com/2014/10/sucide-and-chronic-illness.html

Here is an article from The Mighty with the statistics: https://themighty.com/2017/06/chronic-illness-increase-suicide-risk/

According to Comparitech,

"Cyberbullying Facts and Statistics for 2016-2018


Cyberbullying is on the rise worldwide. We've gathered both local (US) and global cyberbullying statistics, trends, and facts that help illustrate the extent of this growing problem. Our article focuses on cyberbullying data from 2016, 2017, and 2018 before delving into some older, but relevant stats.

By: Sam Cook, Data privacy, internet security, and cord-cutting expert.
November 12, 2018

*This list of cyberbullying statistics from 2016-2018 is regularly updated with the latest facts, figures and trends.

All technology these days produces both good results and notable consequences. The internet is increasingly a perfect case study for this idea. While better connecting the world and democratizing information, the internet has also allowed individuals to hide behind masks of anonymity. The “faceless evil” of the internet is a growing threat for teens, specifically when it comes cyberbullying. Despite a more recent ramping up of awareness campaigns, cyberbullying facts and statistics indicate the problem is not going away anytime soon.




Cyberbullying around the World

We analyzed the results of an Ipsos international survey of adults in 28 countries which reveal an increasing number of parents have children who have experienced some form of cyberbullying.

In total 20,793 interviews were conducted between March 23 – April 6, 2018 among adults aged 18-64 in the US and Canada, and adults aged 16-64 in all other countries.

Of particular interest are Russia and Japan. In both countries, parents expressed extremely high levels of confidence that their children did not experience cyberbullying of any kind.

Meanwhile, Indian parents remained among the highest to express confidence that their children were cyberbullied at least sometimes, a number that only grew from 2011 to 2018. Across Europe and the Americas, it also appears more parents are either becoming aware of their children’s negative experiences with cyberbullying, or their children are increasingly experiencing such attacks online.










Percentage of parents that report their child has been a victim of cyberbullying. 2011-2018 Survey Results




Global perspectives on cyberbullying




The following chart includes additional perspectives and insight into cyberbullying from a global scale, including:

Percent of respondents aware of cyberbullying as a concept
Number of countries responding where specific anti-bullying laws exist
Respondents who believe current laws are enough to handle cyberbullying cases.






Cyberbullying facts and statistics for 2016-2018

*This list of cyberbullying statistics from 2016-2018 is regularly updated with the latest facts, figures and trends.

All technology these days produces both good results and notable consequences. The internet is increasingly a perfect case study for this idea. While better connecting the world and democratizing information, the internet has also allowed individuals to hide behind masks of anonymity. The “faceless evil” of the internet is a growing threat for teens, specifically when it comes cyberbullying. Despite a more recent ramping up of awareness campaigns, cyberbullying facts and statistics indicate the problem is not going away anytime soon.
Recent statistics show steady growth in cyberbullying

A 2007 Pew Research study found 32 percent of teens have been victims of some type of cyberbullying. Nearly a decade later, a 2016 study by the Cyberbullying Research Center found those numbers were almost unchanged. By 2016, just under 34 percent of teens reported they were victims of cyberbullying. Meanwhile, the National Crime Prevention Council puts that number much higher, at 43 percent.

According to the Cyberbullying Research Center, which has been collecting data on the subject since 2002, that number has doubled since 2007, up from just 18 percent. Disagreements in statistics and data gathering methods aside, a minimal increase in cyberbullying is a distinct positive. It’s also an indication that the increasing attention on cyberbullying in the intervening years has done little to stem the tide.

Google Trends data indicates much more attention is focused on cyberbullying than ever before. The volume of searches for “cyberbullying” increased threefold since 2004:




Source: Google Trends



Research presented at the 2017 Pediatric Academic Societies Meeting revealed the number of children admitted to hospitals for attempted suicide or expressing suicidal thoughts doubled between 2008 and 2015. Much of the rise is linked to an increase in cyberbullying. (Source: CNN). More teen suicides are also now attributed in some way to cyberbullying (1, 2, 3) than ever before.

It appears bullying has effects beyond self-harm. Javelin Research finds that children who are bullied are 9 times more likely to be the victims of identity fraud as well.




Where and How Cyberbullying Occurs

While data on cyberbullying growth rates are sometimes difficult to come by, there’s a much larger body of information regarding where and how cyberbullying occurs. Just as with bullying before social media and internet forums, those who bully others typically look for two things: opportunity and attention.

In the internet age, the opportunity to bully others has only increased. Prior to the internet, a physical presence was often needed outside of spreading rumors. Now, bullying can occur immediately, to a much larger audience, and can spread much faster. Additionally, those who choose to bully others can get more immediate gratification from likes, shares, retweets, and the “piling on” effect that often occurs when others add to an already negative situation.

As one 2010 study found, bystanders can have a significant impact on vulnerable students’ risk for victimization. According to the study’s findings, bystanders can “moderate the effects of individual and interpersonal risk factors for victimization.” While the study was conducted on physical bullying, by extension, “bystanders” can have a significant impact in online interactions by either calling out such behavior or, lacking that, not responding and diminishing the attention cyberbullies may be hoping to receive.

Data from numerous studies also indicate that social media is now the favored medium for cyberbullies. Other formats are still in use as well, however, including text messaging and internet forums such as Reddit.



Recent stats include:

20.1 percent of reported that they were affected by online rumors. (Source: Cyberbullying Research Center)
Just over 7 percent of middle school and high school students had a mean or hurtful web page created about them. (Source: Cyberbullying Research Center)
In a survey of parents and adults across Asia, 79 percent reported that either their child or a child they know had been threatened with physical harm while playing online games. (Source: Telenor)
Cyberbullying often occurs on Facebook or through text messages. (Source: American Journal of Public Health)





Direct Impact of Cyberbullying on Teens and Adolescents

The long-lasting impacts of cyberbullying are difficult to ignore. Alongside the increasing number of suicides directly linked to cyberbullying, other consequences arise for bullying victims. One 2016 study discovered that bullying victims are more likely to engage in substance abuse and nonviolent delinquency. Other cyberbullying research (listed below) indicates that cyberbullying carries over into how students feel about their physical safety at school. Additionally, cyberbullying can negatively impact a student’s’ overall success by cutting into their motivation.



Key research on the impact of cyberbullying includes the following:

As of August 2016, 16.9 percent of middle and high school students identified themselves as cyberbully victims. (Source: Cyberbullying Research Center)
Among adolescents, 36.7 percent of female respondents stated they’d be the victim of cyberbullying at some point in their lifetime, compared to 30.5 percent of boys. (Source: Cyberbullying Research Center)
Most online behaviors and threats to well-being are mirrored in the offline world (Source: Perspectives on Psychological Science)
34 percent of students claimed to have been bullied online at least once in their lifetime. (Source: Florida Atlantic University)
17 percent of students explained that they’d been bullied sometime within the past 30 days. (Source: Florida Atlantic University)
Roughly 64 percent of students who claimed to have been cyberbullied explained that it negatively impacted both their feelings of safety and ability to learn at school. (Source: Florida Atlantic University)








Suicide Rates Cyberbullying
Source: CDC


According to a decade-long Florida Atlantic University study of 20,000 middle and high school students, 70 percent of students said that someone spread rumors about them online. (Source: Florida Atlantic University)
More than one in 10 students (12 percent) admitted to cyberbullying someone else at least once. (Source: Florida Atlantic University)
Girls are more likely to be victims of cybercrime (except for those bullied within the last 30 days), while boys are more likely to be cyberbullies. (Source: Florida Atlantic University)
There are significant cross-overs between in-person and online bullying. 83 percent of students who had been bullied online in the last 30 days had also been bullied at school. Meanwhile, 69 percent of students who admitted to bullying others online had also recently bullied others at school. (Source: Florida Atlantic University)
Adolescents who engaged in cyberbullying were more likely to be perceived as 'popular' by their peers. (Source: Journal of Early Adolescence).










A need for more broad-reaching and open research

One common theme emerged as we researched various aspects of cyberbullying—a stunning lack of data. This is not to say that research on cyberbullying isn’t there. Even a simple search in research databases will reveal thousands of articles covering the topic in some form. However, most research on cyberbullying is either small in scale or lacking in depth. Most research is also based on surveys, resulting in a large variation in the results from survey to survey.

The Florida Atlantic University study represents one of the best sources of information to date. However, more is needed, including a meta-analysis of the data gathered from many other sources. Until then, publically available cyberbullying statistics paint an incomplete picture of the ongoing issue.
Past research still holds value

Despite a lack of consistent publicly or easily-accessible data, a plethora of data from beyond 2015 can still help shed some valuable light on the issue. Past research and statistics reveal where cyberbullying has been and help reflect on why this issue is still a concern today.



Older data on cyberbullying include the following:

Most teenagers (over 80 percent) now use a mobile device regularly, opening them up to new avenues for bullying. (Source: Bullying Statistics)
Half of all young adults have experienced cyberbullying in some form. A further 10-20 percent reported experiencing it regularly. (Source: Bullying Statistics)
Cyberbullying and suicide may be linked in some ways. Around 80 percent of youth that commits suicide have depressive thoughts. Cyberbullying often leads to more suicidal thoughts than traditional bullying. (Source: JAMA Pediatrics)
More than half of all teens who use social media have witnessed cyberbullying. (Source: NoBullying.com)
Over 50 percent of surveyed teens say they never confide in their parents after being victimized by cyberbullies. (Source: NoBullying.com)
The website Nobullying.com recorded over 9.3 million visits in 2016 from people seeking help with bullying, cyberbullying and online safety. (Source: NoBullying.com</a>)
Almost 43 percent of kids have been cyberbully victims. Around 25 percent have been victimized more than once. (Source:
DoSomething.org)








Source: DoSomething.org

Nine out of 10 teens who have been bullied through social media report that they’ve ignored it. A further 84% said they’ve seen others attempt to stop cyberbullies. (Source: DoSomething.org)
A UK survey of more than 10,000 youths discovered that 69 percent reported doing something about abusive online behavior directed toward another person. (Source: DoSomething.org)
The same U.K. survey also discovered that 71 percent of young adults believe social networks do not do enough to prevent cyberbullying. (Source: DoSomething.org)

Looking for more internet-related stats? Check out our roundup of identity theft stats and facts for 2017 -2019, or our Cybercrime statistics which runs to 100+ facts and figures."





Source: https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=imgres&cd=&cad=rja&uact=8&ved=2ahUKEwi3t9f7oITdAhUvneAKHd4WBzIQjRx6BAgBEAU&url=https%3A%2F%2Fwww.slideshare.net%2Fparulata%2Fabhishek-cyber-bullying&psig=AOvVaw2p615526q1dftVgPza3vZ6&ust=1535150920149901



Cyber bullying is a big deal. There have been cases of people committing suicide over being cyber bullied. The first person that comes to mind is Gabriella "Gabbie" Green, who committed suicide in January because of cyber bullying.

I wanted to bring this into the light and talk about this issue because words do hurt, more than people realize, and cyber bullying has become a BIG problem. I want to bring awareness to this issue because it might help save someone's life.

There is NO excuse for cyber bullying. I was just so shocked to learn that it was happening in the chronically ill community, not just the gastroparesis community. I understand that we are all sick and that we all have bad days, and that does happen when you have a chronic illness. However, that does not give a person a right to bully someone else. I do not understand the reason behind the cyber bullying or why people need to hurt others like that. With gastroparesis, this kind of stress for days (in my personal experience, I was cyber bullied across all of the social media sites I made an account with) can cause a horrible gastroparesis attack that may land people in the hospital.




Source: https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=imgres&cd=&cad=rja&uact=8&ved=2ahUKEwiCmqn4oITdAhUnneAKHYvvD0YQjRx6BAgBEAU&url=http%3A%2F%2Fwww.girlsarepowerful.com%2Fwhat-is-cyberbullying%2F&psig=AOvVaw06_ZcH1jHEf3UY5CNmcaRL&ust=1535150913398991



People need to understand that words hurt and can do some real damage. You never know what struggles the person on the other end of the computer may be facing. All people see is what is posted online, and that is it. The people who are cyber bullying may not realize that the person they are terrorizing just had a death in the family, had surgeries, or just found out they have another illness which could kill them at any moment. Like I said, you never really know what is going on in someone else’s life. I guess the chronically ill are easy targets for cyber bullying because people assume we are too weak and sick to stand up for our principles on the matter, but we are not.

I always envisioned ALL of the chronically ill, from fibromyalgia to gastroparesis, working together to get information out there and to help others whom battle chronic illnesses, especially if they are newly diagnosed. It is not about ganging up on people, controlling groups, pages, who has the most members on Facebook, etc. It is great to have so many options for support, and people can join more group. Joining groups on Facebook should not be a competition and the person should not be cyber bullied for making a decision on a group that fits them.

It's about support, pure and simple.



Source: https://west.ite.edu.sg/_layouts/showcase/2016/mwd/junhong/images/cyberbullying_diff_1.jpg



There are so many obstacles that we have to go through with gastroparesis, we shouldn't manufacture more, we should stand united. We need to educate those who may not know about gastroparesis and what that entails. It's August, Gastroparesis Awareness Month. We should rally together to educate, not tear each other down. Divided we fall, united we conquer.

I want to talk about cyber bullying, since I'm experiencing it firsthand, and what it's doing to the gastroparesis community and other chronic illness communities. I also want to help others who may be going through the same things. It's hard being bullied, especially if Facebook will not listen and you don't have any other recourse. I'll share some things I have learned and some tips from an anti-bullying site that I found. We should be lifting each other up, support one another, and working together to make a difference. All of this in community fighting hasgo ton stop before someone is pushed to suicide. While having gastroparesis is hard enough, and I will repeat this again because it’s important, we face enough adversity from doctors, nurses, ER staff, etc., we don't need it from each other.




Source: https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=imgres&cd=&cad=rja&uact=8&ved=2ahUKEwjFuMPtoITdAhUQPN8KHQJcAToQjRx6BAgBEAU&url=https%3A%2F%2Fwww.slideshare.net%2FYumnaAli6%2Fcyber-bullying-72410753&psig=AOvVaw0gw3aE5Gs7aMvX67PpT1of&ust=1535150890025499







Source: Imgur




So, here's what you can do to avoid cyber bullying.

1. Do not feed the troll. What I mean by that is, do not give the person fuel for their fire to keep attacking you. As hard as it is, stay silent. These people crave attention and will try to get it by any means necessary. There is a wonderful article that states,

"Narcissists and Psychopaths Online: The Narcissism of Cyberbullying and Trolling
by Shahida Arabi

Cyberspace provides malignant narcissists and those who have antisocial traits with easy access to victims and minimal effort. A recent study showed that online trolls demonstrated high degrees of sadism, psychopathy and Machiavellianism. Conclusion? In the words of Dr. Golbeck, internet trolls are narcissists, psychopaths and sadists.

This should come to no surprise to anyone who has encountered trolls or cyberbullies – they are notorious for attempting to provoke people in order to derive sick feelings of satisfaction that they apparently can’t get anywhere else. Their lack of compassion, tact and empathy when bullying others online is evident in the way they brandish their ill-informed opinions indiscriminately regardless of context, eagerly hoping to get recognition for their malice.

Cyberbullying and trolling are strategic ways for narcissists who lack adequate narcissistic supply or who are experiencing boredom to get a quick “fix” without being held accountable for their abuse.

In the context of intimate relationships, survivors of narcissistic abuse, an insidious form of psychological and emotional abuse that can cause what psychotherapist Christine Canon de Louisville calls “Narcissistic Victim Syndrome,” may be stalked, harassed and cyberbullied for years even after the ending of the relationship, especially if they were the ones to discard the narcissist first by exiting the relationship altogether.



Source: http://www.pngdown.com/research-paper-on-cyber-bullying/the-real-effects-of-cyber-bullying-nobullying-cyberbullying-research-paper-infogr/




To Report Bullying on Facebook

There are different ways to go about reporting being cyber bullied on Facebook. First and foremost, I would take screenshots of everything sent your way and keep it in a file.

Tom's Guide gives you step by step instructions on how to report bullying to Facebook: https://www.tomsguide.com/us/report-abuse-on-facebook,review-3591.html

You can also report abusive content on Facebook and this will show you how: https://blog.avast.com/how-to-stand-up-against-a-cyber-buylling-on-facebook

Here is another way to report abusive content on Facebook: https://www.facebook.com/help/181495968648557

The government also has tips on what you can do if you're being cyber bullied: https://www.stopbullying.gov/cyberbullying/cyberbullying-tactics/index.html

Prevent Cyber Bullying: http://stopcyberbullying.org/reportfbabuse/

How to Stop Bullying on Facebook: https://www.wikihow.com/Stop-Bullying-on-Facebook


If you have been cyber bullied on Facebook, this article talks about how to get your dignity back and how to rebuild your reputation: https://www.makeuseof.com/tag/abused-bullied-harassed-on-facebook-6-ways-to-get-back-your-dignity-weekly-facebook-tips/







When a narcissist suffers from an offense to their false sense of superiority and entitlement, they endure what is known as a narcissistic injury, often followed by narcissistic rage. This rage is a result of an injury to their ego when something or someone threatens their delusions of grandeur and “false self.”

Since survivors often implement No Contact with their abusers, narcissistic abusers feel a loss of power and attempt to regain that power through tactics like provocation, hoovering and post-breakup triangulation techniques.

On the internet, narcissists and those who have antisocial traits employ similar manipulation tactics in cyberspace to provoke and harm complete strangers.

Bullying in any form, especially anonymous bullying, can lead to devastating results. Research indicates that cyberbullying in schools leads to a higher rate of suicidal ideation and suicide attempts in victims of cyberbullying. There have been a number of suicides that were triggered by the words of anonymous sadists – the suicides of many teenagers, for example, were a direct result of cyberbullying.

Cyberbullying and trolling leave such a terrible psychological impact that there is even a movement against anonymous comments sections on media outlets. Since there is little accountability for cyberbullies and the laws against it in each state may not protect victims entirely from emotional abuse, it often goes unchecked and unpunished. If cyberbullies are ever reprimanded, it is usually after the fact of a tragic suicide or another form of publicity that draws attention to the consequences of cyberbullying.

Cyberbullying can also be retraumatizing and invalidating for survivors of abuse and trauma. Specifically, in the narcissistic abuse survivor community, narcissists tend to support other narcissists and both survivors as well as professionals may come under attack for speaking their truth about narcissistic abuse. There is, unfortunately, a great deal of victim-blamers and enablers online who support the actions of abusers or vilify advocates that expose the predatory nature of abusers with Narcissistic Personality Disorder or Antisocial Personality Disorder."
The article can be found here if you would like to read then rest of it: Narcissists and Psychopaths Online: The Narcissism of Cyberbullying and Trolling by Shahida Arabi




Source: Located on the Image.





2. Block these people. They have no control over your life unless you let them. You are better off without these toxic people in your lives. You ARE important, and don't let these people have control over what you do.

3. Write yourself an email. Every time these people hurt you and you want to say something back, write yourself an email and send it to yourself to get your feelings out. That way, you don't bottle it up and you can get out what you want to say. You don't need to send it to anyone else, this is just for you.

4. Do not be scared. Don't be scared to login to Facebook or wherever these trolls might be lurking. That would be giving them power over you. Don't let them. You're better than that, and like it or not, these people are going to be everywhere so there is really not a way to avoid them.

5. Do not give in. These people want something from you, don't give it to them. Bullies usually won't stop until they can get what they want. I will give an example. This is a popular one - in movies and T.V. shows - bullies want lunch money. They will not stop punching you in the gut until they get it and run off. So, don't give the bullies your "lunch money."

6. Do not stop living your life. The thing with bullies is that they will try to interrupt as much of your life as possible. Do not let them. The world spins on. You should keep living your life and do not let them make you deviate from it, because that is their goal.




Source: https://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=imgres&cd=&cad=rja&uact=8&ved=2ahUKEwjFuMPtoITdAhUQPN8KHQJcAToQjRx6BAgBEAU&url=https%3A%2F%2Fwww.slideshare.net%2FYumnaAli6%2Fcyber-bullying-72410753&psig=AOvVaw0gw3aE5Gs7aMvX67PpT1of&ust=1535150890025499





I would also check with your state and see what laws they may have in place about cyber bullying. If you are currently being cyber bullied, do not give up. I had to block many people on Facebook when I would first log in. You can also report those people, located on a drop down menu on their cover page, before you block them to let Facebook know. You can also look up their guidelines and there is an email address they give you to send your difficulties to them. Additionally, there are support groups on Facebook for cyber bullying you can join. I would also recommend talking with a psychiatrist about it, because your mental health is important, especially with gastroparesis, or any chronic illness.



Here is my group that I started to raise awareness about cyber bullying, and also to give a safe group environment for those being bullied right now:

 
Gastroparesis & Cyber Bullying
Closed group · 5 members
Join Group
Cyber bullying is a serious issue on Facebook. People have killed themselves over it. I've been a victim of it myself and I got anxiety attacks when...
 

















According to http://heyugly.org/cyberbullying,





This is another great article! You should read it in its entirety.


According to https://www.bullying.co.uk/cyberbullying/how-to-deal-with-cyberbullying/,



"It's very upsetting to get abusive emails, instant messages and to have nasty websites or social network profiles set up to invite people to post offensive remarks about you. This is called cyber bullying.

dealing with cyberbullying
There are ways that people who send emails can be tracked by internet service providers and the police. All emails carry information which shows the path the email has taken to get to your computer.

Internet service providers (ISP) have contact email addresses for complaints about email and Cyber Bullying coming from their network and this will normally be abuse@hotmail.com, abuse@btinternet.com or whichever system the sender is using. Don't reply to the email or delete it, get your parents to forward the whole thing to the sender's ISP.

We closed down a series of message boards in the Hertfordshire/north London area where pupils were being identified by name, school and year and others were invited to post abuse about them. These boards have been reported to Hertfordshire Police following complaints to us by parents and pupils.

Among problems we identified were:

A death threat
Numerous bogus messages posted in the names of people being targeted
A boy who lost all his friends as a result of postings made in his name
Numerous threats of violence
A girl who tried to kill herself due to abuse
a teenager on anti-depressants and afraid to go out due to threats
Sending abuse by email or posting it into a web board can be harassment and if this has happened to you then your parents or carers need to make a complaint to the police.

All message boards run by private individuals are hosted by firms and you can often find an address to complain to in the 'help' section of the board. In our experience firms usually act swiftly to shut down the board because allowing abuse to be posted is against their terms and conditions."



Source: On Image





Source: https://edtech4beginners.com/2017/03/21/how-do-you-deal-with-cyber-bullying-in-schools/




Source: http://sybasigns.com.au/digital-resources/web-2-0/digital-resource-freedom-from-cyber-bullying

Sunday, January 10, 2016

Gastroparesis Groups Should Come Together and Be for Support

I've heard from several different ‪#‎gastroparesis‬ groups and pages that there are different levels of "sickness." I want to reiterate that ‪GASTROPARESIS‬ IS NOT A COMPETITION, nor are any other invisible and chronic illnesses! There are people scared to post, in my gastroparesis groups even, because they do not have tubes, or they are not as skinny as some of the other members, or they do not vomit, because these people are scared they are not sick enough to post. Gastroparesis comes in MANY forms! But, in the end, it's all still gastroparesis. It's still a debilitating illness, one that we are striving to bring awareness to, to get research for, so that hopefully, we can find a cure. We cannot keep losing loved ones to this illness. I just lost one of my close gastroparesis friends right before Christmas. I want to make sure that her death was not in vain and neither were her awareness posts and activities.




If you see this behavior in another group or page, where members start attacking someone because they think that they are not sick enough or they think because the person posted a suicidal post that they need to be attacked, educate them and tell them that gastroparesis is gastroparesis, there is absolutely no need for ‪what I have termed to be Gastroparesis Shaming (#‎GPShaming)‬. Tell them what they are doing is wrong and that is not what a support group is for. According to http://dictionary.reference.com/browse/support-group is defined as,

"a group of people who meet regularly to support or sustain each other by discussing problems affecting them in common, as alcoholism or bereavement."

We are all sick, no two of us are a like, but there is not a race or competition that we are trying to win at because having gastroparesis definitely is NOT winning anything. These support groups are made up of a bunch of different people who maybe be in multiple support groups but that brings me to my next point, gastroparesis is NOT a numbers game for support groups. It is not a competition of how many members you have. I have seen some pretty nasty fights over members in "support" groups. People can be in multiple groups at once. Instead of wasting energy fighting on bringing up your numbers and trying to have the most people in your group, why don't all of us, all of the support groups, work together and join forces to bring awareness to Gastroparesis. One of my friends summed it up perfectly and I'm going to quote him here,

"When I first learned about gastroparesis it was from a friend active in the community.
Once I began to understand the impact that GP had on a person's life, and the lives of those around them, I knew I had to participate somehow in advocacy.

I started joining groups, reading posts, and becoming as intimately familiar as someone without the disease can become.

But I started to sense tension. Group A, B, C, D weren't WORKING TOGETHER. In fact it seemed like there was strife between the groups. I'm a grown up, I know how things work, I understood there would be fractures, but I believed (and still do) that the best way for the GP community to get the care and attention it NEEDS is for all the groups to lay down their arms and work together.

How is that to happen? I'm hoping someone smarter than me can figure it out but I have a few ideas.
Bless us all and may 2016 find us overcoming many of the obstacles that GP presents to it's sufferers.
Thank you Emily for building bridges."





Support groups fighting with other support groups needs to stop as well. We all need each other and we are all on the SAME TEAM! I can't stress that enough. It's not a competition for numbers, for who is sickest, for who has had the most procedures - it's a support group for SUPPORT! We need to make sure to take care of our own because GPers (gastroparesis patients) are the only ones who really understand what GPers go through on a daily basis because we live through it and we need to band together to help others realize this is a real illness, even though it's invisible, and stop fighting with each other to fight the much bigger fight of spreading awareness and having others take us seriously, not to mention helping others who have been newly diagnosed that do not know where to even begin! How can they take us seriously when we can't even align ourselves, all of the gastroparesis Facebook groups and pages, to unite for a common goal? If you think doctors and nurses don't join the gastroparesis support groups to try to learn more about the disease, then you would be wrong. Instead, they see all of backbiting, talking badly about other groups/people, and plans on how to get more members without addressing the concerns of members you already have - I mean, it happens. I chose to stay offline for a while because I felt like support groups were doing me more harm than good. The extra unnecessary drama was making me a lot more ill. But, I'm back because not all of the support groups are like that and I'm lucky to have found them.

I am going to take a stand, but I need YOUR help. I can't do this alone. It's going to take all of us working together to get rid of this stigma that has risen in "support" groups lately. So, as a result of that, I am making an event that will last for a month. The point of this event is to stop #GPShaming, bullying, number's games in support groups, and to get rid of any type of competition. I want to weed out the toxic groups so that people can find the love and support they need in order to live with this illness, because gastroparesis is hard enough and no one should have to deal with it alone.

Please invite them to join this event. Please don't let #GPShaming (please use this hashtag when talking about this event or when you post a photo for unification) happen in your group, or bullying, or anything that can be harmful to other groups. Support groups should be about support and not a popularity contest...it shouldn't look down on anyone who is having a bad GP day or who needs help. There shouldn't be judgements, just acceptance. I want to rid the groups of this stigma. I also want all of the GP support groups and pages to work together on this event - because we should be uniting to help spread awareness, education that leads to research, so that we can find a cure for this illness, our illness.

Over the next month, we're going to push this message really hard in hopes we can change the minds of the gastroparesis culture online that gastroparesis is NOT a competition but a serious medical illness that needs dedication, research, and a cure. That's all that matters - to stop the senseless deaths and the suffering because I'm tired of losing friends. We should all work together, not make a scale and judge people based on that "scale." The support groups should NOT be at war with each other, there is no point in fighting with one another - we hurt each other and others. People who have been recently diagnosed who come to a support group for advice and help become collateral damage, and that's NOT OK. This is in regards to Facebook Groups but seeing how some of this is done in some of these groups is almost like corporate espionage with how elaborate it is to tear a part other groups and take their members. People can join multiple support groups and we encourage that. But, mudslinging from different groups and having competitions on who can get the most members is silly and is missing the point of what a support group is here for. We want all of the Gastroparesis Support Groups to work together to do this...because we all need to support each other too.





Upload a picture of yourself to the wall, holding a poster or piece of paper that says something to the effect of GP Support Groups support each other and GP is not a competition. ♥ That way, we can all show our unity on this issue.

Updated Event for May 4, 2016: http://www.facebook.com/events/471111503080375/

Event Link: http://www.facebook.com/events/550356651796414/

PLEASE SHARE!






Again, let me reiterate, people in support groups are in there for SUPPORT. That means supporting that person in the decisions they make, WITHOUT JUDGEMENTS, and to offer advice and guidance for those who are new to this illness. It is NOT a place to start a who is sicker than who competition. Who cares? We're all sick. Does it matter who has what or who is sicker than who? No, it doesn't. We should all be working together, not judging each other and making others feel stressed because that makes the person sicker and lowers their immune systems. This in support group fighting thing is ridiculous. It makes me angry.

We should all be working towards a common goal. However, just like life, not everyone gets along. Also, there are different topics, different support groups to help people find the support group that is the right fit for them. Every GPer is different. You can't take all of the gastroparesis group members and put them in one big group - because everyone has different needs. They have the right to choose a group that works for them, personally, or make a group that works for them and other people. One of my friends told me tonight that she's tired of the "fracturing" of support groups. I cannot help with that, it is beyond my control. I have the groups I have - different topics, to help people. But, like I said, every GPer is different and they have different needs, different ways of coping, and they deserve to join a group that works for them and helps them through it. I do work with other group owners and send people their way when they ask certain questions I can't answer, and I point them to the group that would maybe answer their questions and give them better advice. I do my best to send people to already established groups about their particular issues. People can be a part of multiple groups. You don't have to leave one you like for another one you like. That's silly. I just want to help people. As for fracturing, that's beyond my control. I can't control what other people do and I understand we should all be working towards a common goal, but sadly, it's not a perfect world where everyone gets along so we can do that. But, I do try to work with other group owners and I do my best in my groups. I don't want people judging each other in there because you never know what a person is going through, you would have to, what's the saying? Walk a mile in that person's shoes to understand. People rush to judge without having all of the facts and that's not right. It's also not right to make it so that people are scared to post in support groups because they don't want to be attacked. That bothers me in groups as well. No one should be scared to post. They need to be able to express themselves without retribution. The support group may be the only place they can vent, and instead, they keep things bottled up and get sicker because they are too scared to post. That is NOT OK! I'm working so hard in my groups to make sure that doesn't happen.

It seems like the support groups have lost the meaning of support.

Support groups are also not a number's game, period. It does not matter how many people you have in a support group. That is NOT the purpose of having a group in a community for the chronically ill.

I will say that I am tired of the bullying, backbiting, and everything else going on in the groups today. There is a lot of cyber bullying in groups today which make individuals scared to post questions. If they post a question someone else does not like, they do not scroll past, but instead they start an argument and bully the person. The argument is not constructive and it is not civil. It's sad when people have to tear others down to make themselves feel important and relevant and it has been happening SO much lately. Because of people like this, the Gastroparesis community cannot come together, and work together towards a common goal. I am not sure where the toxicity came from that has invaded the gastroparesis community, but we all need to work together to address the issues and fix it. In the beginning, in about 2011, a handful of my friends and I started support groups for the community. We were a close knit group - but now, it seems like everything is fractured. There are cliques, people who want attention, people who bully others, power trips, and so many more toxic things that were not always there. There is so much drama now. There are also so many duplicated groups that it's a bit daunting.

We will not be able to unite until we get rid of the toxic people in the community who only hurt us, not lift us up. There are some really toxic people, almost like emotional vampires, staking out the groups and ready to pounce. They will disguise themselves as your friends, but you really have to be careful who you let into your life - especially someone you do not really know well that you met on the Internet. But, I digress. We need to do some spring cleaning in our gastroparesis community.

And that's the point of this article, we are already so sick, we need to lift each other up and to help, look out for one another.

So, if there is a story floating around about someone, I do not jump to the conclusion that it is true. I do not judge the person who is the subject of rumor and gossip. I do not believe everything I hear. Instead, I question it. There are always two sides to every story, whether people want to hear them or not. Likewise, if I see a post or comment in the groups that I do not like or with which I disagree, I ignore it and scroll on by, or hide the posts. Everyone is different. They come from all walks of life and should be treated with respect in the support groups. Most of these people are isolated because of their chronic illness, so their only contact with the outside world is through the Internet. Also, their gastroparesis is no less than mine, it does not matter if you have mild or severe, it's not a competition. And so I will continue to support those who need it. If someone asks a question and I do not have the answer, I will try and find it.

I do get upset and anxious a lot. It's hard to move past it most days. I know everyone has their bad days, gastroparesis is debilitating. It causes me a lot of pain and it causes me to vomit. I can tell you that when I have not been able to eat in a few days, or if I am in a lot of pain, it is really hard for me to keep my head clear. I usually have to take a break from the computer I order to get into a better headspace.

People make mistakes – we all do. We are all human and we do have the tendency to react out of anger or fear. We say things that we later regret because in the heat of the moment, with being sick on top of it, we respond rashly to simple things that would not warrant that kind of reaction. Once you say something like that on the Internet, it is forever. My suggestion would be to write out all of your feelings in an email and send it to yourself. Then, go do something else for a bit, and see if that helps you from making the mistake of something you would completely regret saying. Furthermore, I do not believe in publicly basting others on Facebook either. If you have an issue with someone, please leave it out of the groups. Instead, contact them directly and try to address it. If that does not work, block them. Just know that you tried your best.

I wrote this in one of the groups a while back, and I still mean it: Our community should be a welcoming and place for all to come and share their concerns, joys, heartaches, questions, and useful information. Support and helpful comments should be all we see. Our community should be a safe haven where people feel comfortable sharing their innermost concerns without the fear of negative repercussions and hurtful responses. We should be able to openly and honestly discuss anything in our lives that disturbs us, concerns us, keeps us from healing, fascinates us, or uplifts us. We should be able to be respectful of one another as well, even if we disagree. Minor disputes do not have to become wars.

Please, I am begging you to be kind to one another and strengthen the bonds between us. Simply refuse to believe the gossip, rumors, and lies. Refuse to perpetuate the drama and bad behavior. Ignore, scroll by, forgive, move on, and focus on what we all have in common. Focus on surviving and defeating this beast we call GP. Focus on fighting for our community, on supporting efforts to find better treatments and cures, on spreading awareness to those outside of our GP community who know nothing of our illness, and on offering support for our fellow GPers who so desperately need help.

I am going to be offline more than usual over the next few days, or weeks, or whatever it takes for me to continue. I am keenly aware that I am sick. I am keenly aware that none of us is promised another day – so none of this drama matters to me. People’s opinions of me don’t matter to me. Doing what is right, demonstrating compassion and kindness, and helping others – that’s what matters to me. Forgiving others and accepting them with all their weaknesses and flaws – that’s what matters to me. I will not spend my days engaged in conflict or constantly trying to defend myself or justify my actions. I do not wish to devote endless hours to sifting through and sorting out insignificant claims and disputes. I want to help people, really help people – ALL people. I care for absolutely everyone in this community, and if you need help, regardless of who you are, I will assist you to the best of my ability. I am not perfect, and I don’t have all the solutions. I also don’t have as much time as I would like and cannot always do everything that everyone asks of me. But I love my fellow GPers, and I want to continue to do my very best to fight for our gastroparesis community. I hope you all want the same. We need each other.















**Sidenote: I have never plagiarized intentionally on this blog. If I missed a quote here and there, I have always gone back to correct it. If anyone thinks that I have made an error, please contact me privately, and come to me as an adult so that we can discuss it. However, I took this screenshot in January because it does show my writing *AND* I was a part of a group who were pushing an event at this time. I can show you my writing and my timestamp. I DID NOT plagiarize, but this is what I have from January as proof below, even though I don't have to justify myself, but I have nothing to hide:


Tuesday, May 6, 2014

Information about Bezoars and a Personal Update

So the PCP and GI diagnosed me with a bezoar last week. According to the Mayo Clinic,

A bezoar (BE-zor) is a solid mass of indigestible material that accumulates in your digestive tract, sometimes causing a blockage. Bezoars usually form in the stomach, sometimes in the small intestine or, rarely, the large intestine. They can occur in children and adults.

Bezoars occur most often in people with certain risk factors, including if you:

Had gastric surgery that results in delayed stomach emptying
Have decreased stomach size or reduced stomach acid production
Have diabetes or end-stage kidney disease
Receive breathing help with mechanical ventilation

One type of bezoar (trichobezoar) may occur in people with psychiatric illness or developmental disabilities.



Bezoars are classified according to the material that forms them:

Phytobezoars are composed of indigestible food fibers, such as cellulose. These fibers occur in fruits and vegetables, including celery, pumpkin, prunes, raisins, leeks, beets, persimmons and sunflower-seed shells.

Phytobezoars are the most common type of bezoar.

Trichobezoars are composed of hair or hair-like fibers, such as carpet or clothing fibers. In severe cases, known as "Rapunzel's syndrome," the compacted fibers can fill the stomach with a tail extending into the small intestine. Rapunzel's syndrome is most common in adolescent girls.

Pharmacobezoars are composed of medications that don't properly dissolve in your digestive tract.

Bezoars can cause lack of appetite, nausea, vomiting, weight loss and a feeling of fullness after eating only a little food. Bezoars can also cause gastric ulcers, intestinal bleeding and obstruction, leading to tissue death (gangrene) in a portion of the digestive tract.

Small bezoars may pass through the digestive tract on their own or after you take medication to help dissolve the mass. Severe cases, especially large trichobezoars, often require surgery.

If you don't have one of the risk factors for bezoars, you're not likely to develop them. If you are at risk, reducing your intake of foods with high amounts of indigestible cellulose may reduce your risk.

A bezoar in someone's hand. Image courtesy of: http://www.bezoarmustikapearls.com/images/dewa1thumb.JPG


History of the Bezoar, according to Wikipedia:

Bezoars were sought because they were believed to have the power of a universal antidote against any poison. It was believed that a drinking glass which contained a bezoar would neutralize any poison poured into it. The word "bezoar" comes from the Persian pād-zahr (پادزهر), which literally means "antidote".

The Andalusian physician Ibn Zuhr (d. 1161), known in the West as Avenzoar, is thought to have made the earliest description of bezoar stones as medicinal items. Extensive reference to it is also to be found in the Picatrix, which may be earlier.

In 1575, the surgeon Ambroise Paré described an experiment to test the properties of the bezoar stone. At the time, the bezoar stone was deemed to be able to cure the effects of any poison, but Paré believed this was impossible. It happened that a cook at King's court was caught stealing fine silver cutlery and was sentenced to death by hanging. The cook agreed to be poisoned instead. Ambroise Paré then used the bezoar stone to no great avail, as the cook died in agony seven hours later. Paré had proved that the bezoar stone could not cure all poisons as was commonly believed at the time.

Modern examinations of the properties of bezoars by Gustaf Arrhenius and Andrew A. Benson of the Scripps Institution of Oceanography have shown that they could, when immersed in an arsenic-laced solution, remove the poison. The toxic compounds in arsenic are arsenate and arsenite. Each is acted upon differently, but effectively, by bezoar stones. Arsenate is removed by being exchanged for phosphate in the mineral brushite, a crystalline structure found in the stones. Arsenite is found to bond to sulfur compounds in the protein of degraded hair, which is a key component in bezoars.

A famous case in the common law of England (Chandelor v Lopus, 79 Eng Rep. 3, Cro. Jac. 4, Eng. Ct. Exch. 1603) announced the rule of caveat emptor, "let the buyer beware", if the goods they purchased are not in fact genuine and effective. The case concerned a purchaser who sued for the return of the purchase price of an allegedly fraudulent bezoar. (How the plaintiff discovered the bezoar did not work is not discussed in the report.)

The Merck Manual of Diagnosis and Therapy notes that consumption of unripened persimmons has been identified as causing epidemics of intestinal bezoars, and that up to 90% of bezoars that occur from eating too much of the fruit require surgery for removal.

A 2013 review of 3 databases identified 24 publications presenting 46 patients treated with Coca-Cola for phytobezoars. The cola was administered in doses of 500 mL to up to 3000 mL over 24 hours, orally or by gastric lavage. A total of 91.3% of patients had complete resolution after treatment with Coca-Cola: 50% after a single treatment, others requiring the cola plus endoscopic removal. Surgical removal was resorted to in four patients.

People used to make potions with bezoars as they were thought to ward off evil and used as antidotes. Image courtesy of: http://upload.wikimedia.org/wikipedia/commons/thumb/b/b6/Bezoare.jpg/250px-Bezoare.jpg


Gastric Surgery and Bezoars:

To read more on this amazing published paper, please visit: http://link.springer.com/article/10.1007%2FBF01299861#page-1.




My Struggle:


My doctor told me that medications will dissolve it but has yet to call them in. I've been drinking soda because I've read that it will help dissolve the bezoar. My PCP noticed something sketchy on my x-ray, and then the GI confirmed it once he looked at it. My vitamin D is really low, according to my blood work, so they're going to call in injections for me since I'm not handling anything by mouth hardly at all right now. I've been laying outside, trying to soak up some sun. I have really intense stomach pain and I keep vomiting. No food is staying down and now I'm having issues with liquids, too. I think I'm going to make an appointment with my GI. I can't go on living like this, something has to be done. He mentioned a version of the gastric bypass that he wants to do on me. He thinks it will help but I'm still weighing the pros and cons of having the surgery.

To pass the time tonight, and to keep my mind off of the pain, I started making a website. I wanted to have all of my GP things in once place - my resources/links, events, pictures, my Facebook Page (Emily's Stomach, which I want to get more likes for), a donation button to help me and my friends with medical bills), and the latest GP news. I've been thinking of making a website for a long time, but I haven't had time to do it. So, I sat down tonight, and in between bouts of vomiting, I've created it! I also made a logo that I might put on t-shirts with a gastroparesis design to fund raise money.


My Website is: https://emily-scherer.squarespace.com/

My blog entries will now be posted on my website. I also linked, at the bottom of the pages, to my tumblr account, my pinterest board, my personal Facebook, etc if you would like to follow me and/or read things on there as well.

Here is my logo that I designed:


I think I might do what my friend Melissa has done and make business cards with my logo, website, and blog on it. That way, I can help spread awareness. My goal is to have my own GP store so that I can help others with the proceeds in the future. It's been an idea that I've been thinking about for a long time. I'm just not artistic though, which means, I would have to depend on the designs of my friends.

Speaking of friends, I have so many friends who are struggling with medical bills that I really want to help. I also wouldn't mind having some extra money to put towards my own medical bills. GP is expensive. I need to find a charity to link the donate button on my website to, I guess. I'll have to remember to do that in the morning, pending I actually get some sleep. I've been vomiting so much tonight that I pulled a muscle in my back and in my abdomen. I have been violently projectile vomiting but I haven't eaten anything! So, it's just bile... and that is making my throat swell like I have strep.

I'm on a new anxiety medication, so I hope that helps. I'm really anxious and nervous about my website. I want people to use it as a resource. I want to put great information on there so that people will find it useful. All I have ever wanted was to help others. I hope I can do that by putting the latest news and resources on the site. I have also put pictures up that I've gathered over the past two years with various projects. I want people to see us and to understand GP. Sometimes, it's not real to someone unless they see a picture. I want all of my gp family to know that I think they're beautiful and brave for sharing their pictures.

That reminds me, I need to do another picture request on Emily's Stomach on Facebook (www.facebook.com/emilysstomach). I want family members, co-workers, and others to post pictures of themselves supporting those with GP. I don't have a photo album like that that I'm allowed to use, even though I've worked on that project in the past. I want to post those on my website to show others that people do care, even if they may not know you. It means a lot to us who suffer daily. Sometimes, we desperately need that smile, you know?

Monday, September 16, 2013

Gastroparesis Journals, Poetry, and Mentorship Program

I have a favorite poem that I wanted to share with all of you. It has been my favorite since high school. It really spoke to me because for the past few days, I've been very sad. Sometimes, it just seems like the Gastroparesis (GP) cycle is endless. Also, it feels like I'll never get better. I'm not usually so negative, but vomiting for the past three days and having the new doctor write me off just made me a bit depressed. Then, I thought about my favorite poem. It has always spoken to me and cheered me up when I've been at my lowest. It made me realize that I need to keep going. That things will get better and that I have the best Gastroparesis Warrior network that anyone could have.


"'If'
By: Rudyard Kipling


If you can keep your head when all about you
Are losing theirs and blaming it on you,
If you can trust yourself when all men doubt you,
But make allowance for their doubting too;
If you can wait and not be tired by waiting,
Or being lied about, don’t deal in lies,
Or being hated, don’t give way to hating,
And yet don’t look too good, nor talk too wise:

If you can dream—and not make dreams your master;
If you can think—and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you’ve spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build ’em up with worn-out tools:

If you can make one heap of all your winnings
And risk it on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breathe a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: ‘Hold on!’

If you can talk with crowds and keep your virtue,
Or walk with Kings—nor lose the common touch,
If neither foes nor loving friends can hurt you,
If all men count with you, but none too much;
If you can fill the unforgiving minute
With sixty seconds’ worth of distance run,
Yours is the Earth and everything that’s in it,
And—which is more—you’ll be a Man, my son!"
Poem can be found at: http://www.poetryfoundation.org/poems-and-poets/poems/detail/46473


The meaning behind the poem is this:

"‘If‘ by Rudyard Kipling: About the poem

The poem ‘If’ by the India-born British Nobel laureate poet Rudyard Kipling is a poem of ultimate inspiration that tells us how to deal with different situations in life. The poet conveys his ideas about how to win this life, and after all, how to be a good human being.

The poem, written in 1895 and first published in ‘Rewards and Fairies’, 1910 is 32 lines long with four stanzas of eight lines each. It is a tribute to Leander Starr Jameson. The poem is written in the form of paternal advice to the poet’s son, John. You may read more about the poem at Wikipedia.

For the theme, as already told, the poem basically tells us the conditions that we should meet to succeed in life and make this life happy and a beautiful one. The whole poem is written in a single complex sentence. So all the subordinate clauses begin with ‘if’ and the main clause concluding the entire theme comes at the end, and the poem ends with a full stop.

This structure of the poem was important to achieve the conditional goal. The poet speaks of the achievement at the end, after discussing all the requirements to reach there. This structure is actually symbolic in suggesting that you can get the rewards only after you have fulfilled the preconditions. Moreover, this makes the readers eager to know what would happen when we meet all these conditions, thus retaining the curiosity and interest till the end.

And, as the main theme of the poem is a combination of so many if’s, the title ‘If’ is an apt one for the poem."
The meaning of the poem can be found here: http://englicist.com/summary-analysis/poem-if-rudyard-kipling-summary-explanation




There are several pen pal groups in the Gastroparesis community, so I wanted to put out a warning to everyone:

**WARNING** Any Pen Pal groups that you join is to get to know people. If you feel comfortable, friend them, and then share your private information with them. The admins should NEVER ask you for your personal information, unless you get to know them and you want to share your information with them as pen pals, but that's if you are comfortable enough. Just be careful. Your personal information should not be posted on the wall for all to see, because you never really know who is looking at it. The admins try to screen our groups carefully, but occasionally, we miss someone who may be a scammer.

I just wanted to caution anyone who is joining a pen pal group because I've had that happen and it's a very scary feeling, especially if someone tries to steal your identity. I've had this happen to me, which is why I just want to caution people to be careful. Pen pal groups can be amazing because they make you feel less isolated and alone, and it's nice to get real mail instead of spam for a change. Just be diligent. And your information should NOT be in the files section of the group for all to see. Pen pals usually only need your address and maybe your birth month and day to send you things on your birthday. You don't have to give them the year unless you know that person and trust them completely. I'll reiterate, just be careful with who and where you give out your personal information.









We've added a mentorship program to the group so you can get or give support to another member of our community. I am excited to see all of us build stronger relationships with each other and hope you'll join. Facebook has implemented a mentor/mentorship app in the groups now. I have turned it on in our group. There are a lot of mentorees that could use mentors, so far!

If you would like to read about the program, it's below:

https://newsroom.fb.com/news/2018/08/people-can-now-find-mentors-and-mentees-in-groups/

If you would like to sign up to be a mentor (and please don't be nervous about it, because you could really make a difference in someone's life. If you are worried about mistakes, don't be. Mistakes are a learning tool anyway - it's not a mistake if you can learn from it. Plus, instead of having a pen pal group, this is easier and more personal) or a mentoree, please see the left sidebar of the group that says "Mentorship" and here is a link:

https://www.facebook.com/groups/strongerthanGP/mentorship_application/


Here's how the program works:

You sign up, match yourself with a partner, and get helpful conversation starters each week so you get to know each other better better. It's up to you how much time you want to spend together and what goals you want to work towards. It's a new feature FB just implemented and I thought it would be a great idea to add it to the group. I just wanted to point out that option, in case you would be interested in it. It is an option to the left of the group’s feed, under “mentorship.”


Please feel free to send the group link to any friends who might be interested in joining. If anyone is added to the group by another member, it's automatically declined, for the groups' safety. I have stories about this for why I made it a rule. If you have any questions, you can contact me, Emily Randolph Scherer. We just want to make sure that each group member wants to be here, and they also need to answer the questions. But, on a positive note, we LOVE having new members! <3









SMART PHONE APPLICATION - MYSYMPTOMS





If you have a smart phone, my friend Sarah recommended an app to me. It's called MySymptoms: Food Diary and it's a diary for your phone. You can add your medications, what you eat, how often you get sick, all of your symptoms, stress levels, sleep quality, energy level, bowel movements, and more. It's easy to keep up with it.

I downloaded it at the Google Play store.

The only drawback is that it's $2.99 for the application, but it's worth it since we all carry our phones with us everywhere - even when we go out to eat (as rare as that happens).

You can download your data and give it to your doctor as well. I downloaded it and would highly recommend it to anyone with Gastroparesis. It's easy to learn how to use and it is easier to add things to your phone than to write them down sometimes. But I know that we all carry phones with us. I'm still going to use my Gastroparesis journal and write in it but I'm also going to keep track of things on my phone now too. It never hurts to have a back up.












This is my Gastroparesis Journal. It's actually River Song's journal replica from Doctor Who.











Keep a written journal. Write down the date in each entry.

You do want to make it as detailed as possible and you might notice a pattern in yourself.


I started a Gastroparesis journal, which you know of from previous articles in this blog. My Gastroparesis diary is really useful when I'm not near my computer to blog. Write down what time you wake up, what time you take your medicine, what you took, what time you eat, how much you eat, and what you ate. Write down what time you get sick, with what you were sick with, how much, and make it as detailed as possible. Write down any questions you think of to ask your doctor, since the visits with them go by so quickly and you may forget your questions. My doctor actually copies my journal for my chart. This way, you can eventually recognize a pattern with yourself - what makes you sick and maybe what doesn’t. Since every GPer Is different, this is a way to find out what works for you. I know GP is trial and error when it comes to diet, but this written record (I have to admit, my brain fog and memory are terrible so it’s good to write things down) will help you so much. I even print out research or positive things and paste them or tape them in my journal too. I carry it with me everywhere, even when I actually get to leave the house and go to the pharmacy or the doctor. It can be a spiral notebook, binder, you can buy a blank journal from amazon or in a store, you can make anything a GP journal. Give it a try and see if it works for you.

It really helps to keep track of what's going on with my body for my doctor, including questions so that I don't forget to ask since I don't get a whole lot of time to talk to the doctor. I write in mine daily. I keep track of my medications, when I attempt to eat, when I vomit, if I have a bowel movement, and the times of all of it. I also vent in it because it's not healthy to keep your feelings bottled up, and writing helps me cope, but everyone has different coping mechanisms that help them. Your gastroparesis journal could be as simple as a spiral notebook. I would highly suggest that you start one, if you don't have one already, because it really does help keep track of things, especially if you have a hard time remembering things like I do. I call it, "GP brain."



















I'm also going to share a few images that have gotten me through the past few days. I usually cut out images I find like this and put them in my diary to remind me to be strong.