I was diagnosed with gastroparesis at the end of March. I hope this blog will help me keep track of everything and help me to feel better. Now, for some background.
I was hospitalized from March 28, 2012 until April 5, 2012. The doctors preformed a gastric emptying test, after preforming several blood tests, a cat scan (with dye and a barium swallow), and an MRI. All of the other tests came back normal except for elevated lipase levels and an ovarian cyst. The doctors determined that I had liver stones, which would explain the lipase levels.
My symptoms came out of nowhere. I couldn't keep food down, not even water. I was so sick and dehydrated that they admitted me to the hospital right away. I had a pretty good hospital experience until the night before I was released. I should explain.
I am a very hard stick and I have no veins left. I am usually a pretty good sport as I'm not scared of needles in any way but keep in mind that I've had a right elbow surgery, a left and right knee surgery, my appendix out, and my gallbladder out. I've also had several nerve blocks for my knee. So, with all of these surgeries comes lots of scar tissue. I don't have a lot in the way of veins anymore. When the nurse came in to change my infiltrated IV, she had to use a sonogram machine to find another vein. Then, she hit a nerve while trying to find a vein for my IV. I screamed. I've never screamed so loudly. I sobbed for hours. That had to be the worst shooting pain I've ever experienced. Remember that I had been in the hospital for a week before this, so I was bruised and sore everywhere. This event just exacerbated that. As it turns out, I found out later, I didn't even need the IV anymore. She was poking me based on the charge nurse's instructions. The charge nurse was later reprimanded by my very angry doctor. My blood pressure went down from 154/112 to 120/82 with fluids and medication. I always have high blood pressure when I'm in a lot of pain.
I was hospitalized again, overnight, on May 25th to May 26th. I received more fluids, pain and anti nausea medicine. My blood pressure was 150/111, and was still high when I left.
Well, yesterday I had my first colonoscopy. The doctor wanted to make sure that everything was normal and that I didn't have any other issues hiding like Crohn's Disease. Everything turned out to be normal. However, the anesthesia caused me to sleep all day. My blood pressure was high again but back down to 120/80 after I received fluids and medication.
One of my biggest problems is not being able to keep anything down, not even water. I can't keep my medicine down or food. I feel like I'm being conditioned not to eat because every time I do, it burns in my stomach horribly and then it feels like I've been sucker punched in the stomach. The pain is so intense and then I start throwing up. I HATE throwing up. I try not to, but this is persistent. Also, it's usually stomach acid, which irritates and burns my throat. Even the smell of food triggers it. I'm not sure what to do about it. I've been on a gluten free diet for a few months and that does help, but not enough. I eat bland, easy to digest foods. Lately, I've been on a liquids only diet because it's the only thing I can stomach. When I do manage to digest and keep down food, it stays in my stomach up to five days.
The doctor I'm seeing now is making me see a motility specialist. I'm scared that I may need a severe treatment like the pacemaker or a gastric bypass and worst case - a feeding tube. None of the "solutions" to this problem are really solutions. They are so life changing that I want to make sure before I attempt any of them. However, I am getting quite desperate. I miss food. I love cooking, it relaxes me and I can't even do that anymore. I can't play my favorite zombie games either, because I'll get motion sick. I haven't been able to leave my house (bathroom) to even go on a short car ride to the pharmacy. I feel like I'm on house arrest, almost. The antinausea meds, I'm taking phenergan AND zofran, aren't really helping. I'm on Levsin
now, too. The doctor didn't want me to take Reglan
because of all of the side effects.
I'm mainly just stressed out because I don't know what the future will hold for me. I feel like I've had so many tests and they always come out normal even though I know what's going on with me is far from normal. I have lost about 15 pounds and counting. My stomach is swollen and I'm consistently and constantly in pain. The pain gets overlooked by my doctors because the pain medicine they could give me would slow down digestion more and the nausea is a problem that needs to be controlled first. I hope this medicine helps.
The orthopedic doctor did an MRI and didn't see anything major. The doctor said I dislocated my knee cap again and tore some cartilage. However, the I did fail the physical exam when I was tested for a meniscus tear. I did some research and found that meniscus tears can be missed by an MRI. The doctor then sent me to an orthopedic surgeon, because he said that MRI's don't always catch EVERYTHING. The surgeon then proceeded to call me, "kiddo" throughout the appointment and was very condescending and rude. He wouldn't listen to me at all and told me that if I wanted to get a second opinion, it would be useless because he was right. He didn't fix me, he said I didn't need surgery. He injected me with cortisone again...specifically not asking first nor telling me what he was going to do. He was extremely condescending and rude. He told me not to seek a second opinion because I would get another doctor cutting into my knee when I didn't need it. He just really pissed me off.
The cortisone made it worse. >.< class="text_exposed_show">knee surgery because that could possibly make it worse but THERE IS SOMETHING WRONG and it's not in my head. I am pretty sure I have a tear and my doctor is too - that's why he sent me to a surgeon. The guy didn't even order more tests...he just referred to a MRI taken in June.
Also, this is the third time I've dislocated my knee and this feels DRASTICALLY different from the other two times. I have kept it elevated, iced, and rested as much as possible. When this happened before, I could put weight on it and get around with a brace. It never hurt to the point where I wanted to vomit. The doctor did give me a cortisone injection two weeks ago...and it helped the pain some but now it's back with a vengeance. I am currently using a brace for a torn ACL (it has a hinge to keep from straightening my leg) and crutches to get around. The brace only helps when I try and crutch around. I keep my leg elevated at work too. Nothing seems to be helping. The pain medicine takes the edge off a little but I'm still in *a lot* of pain with the pain medicine. I'm not fishing for drugs - I WANT THE PROBLEM FIXED.
I just don't want to do physical therapy for four weeks if it's not going to improve my leg but make it worse. Tuesday made it SO much worse. My leg is so swollen, almost to the size of a watermelon. This is the second doctor I've been to and Emory is supposed to be great. I really want to take fall classes, so if I have to have surgery - I would rather just schedule it and do it as to not miss class.. I just don't know what to do anymore. I can't eat, I'm having trouble sleeping, and I can't get comfy at work. It's just so frustrating.
Enclosed is the link I found about tears:
http://www.yorkshirekneeclinic.co.uk/cartilage-tear.htm