Today was the long dreaded, gastric emptying test. We arrived at Mayo at 7:15am to check in the registration desk in the Mayo Building. We were supposed to meet with a financial adviser but the person who checked me sent both my husband and myself up to the second floor, back to radiology.
After we got back up to Mayo 2 South, I checked in at the front desk for my 8:00am appointment. They told me to have a seat and that someone would be with me shortly. I sat down with my husband and put my head on his shoulder. I promptly fell asleep. Then, a tech comes out and calls four names, mine being one of the four. He told us to follow him to nuclear medicine. As we went down the long hallway, I passed sub-waiting room B that I had to wait in yesterday. I made it to the end of the hall and took a left until I got to nuclear medicine. He ushered all four of us in and sat us each separately down in different "rooms." I say rooms but they were covered by curtains. One of the techs came up to me and presented me with the radioactive eggs over toast.
They gave us whole milk to wash it all down with. I called one of the techs over because halfway through the eggs, I became full. I asked how much of the meal we had to eat in order for the test to work. She said for me to ignore the toast and eat the eggs, that they were the most important part. So, I tried to eat as much as I could, and I did finish the eggs but left a third of the toast unfinished. I washed it down with the milk because the food kept getting caught in my throat, much like the barium tablet did yesterday.
After I ate the meal, I stood in front of the gastric scanner and took my first picture. The tech had me stand there for two minutes while the picture was being recorded. He handed me a piece of paper that said I had to repeat the scanning at 9:10am, 10:10am, and 12:10pm. The piece of paper had me circle whether or not I had a bowel movement in between scannings. Of course, I didn't have any bowel movements.
I went back to the front desk and checked in for the 9:10am scan. The receptionist sent me back to nuclear medicine and I made my way back there. I stood in front of the scanner and the food was still sitting in my stomach an hour after I had eaten the eggs. I stood there for two minutes while the tech captured another picture.
I waited until 10:00am and checked in with the front desk. On the way back to nuclear medicine, I vomited in the bathroom. I only threw up some of the eggs and toast. Then, I began to get nervous. I remember the doctor telling me in the hospital that if I threw up, the would have to start the test all over again. I made it back to nuclear medicine and told the tech what happened. He positioned me in front of the gastric scanner and started my two minute picture capture. He analyzed the results in the computer in the other room and talked to a colleague. He said that I had only thrown up 10% of the meal and that we still had enough to finish the test. He said that he was going to inform the doctor about the vomiting.
On a side note, they wouldn't let me take any kind of nausea medicine or pain medicine for this test because the doctor didn't want my medicine to skew the results of the test.
The next image was going to be at 12:10pm. I found a chair and got out my kindle and headphones. I managed to curl up in that tiny chair, in a ball, and get some sleep. Which is good, because the gastric spasms started about 20 minutes after I ate the radioactive meal and it was either try and sleep or cry because of the pain. I slept until my next picture was due.
At 12:00pm, I checked in with the front desk and went back to nuclear medicine. I had my final gastric scan done and I could still see all of the food in my stomach. It didn't move hardly at all. I gave them the sheet that said I didn't have a bowel movement between the different image captures.
Now, I'm exhausted. I think I may try and nap for a bit. My stomach is swollen and the spasms are still happening. I'll be happy when the rest of this toast finally comes up so that I don't have to deal with the pain anymore.
Tomorrow, I have an EKG and a scope. Wish me luck!
The idea was suggested to me (by my MD) that a blog/diary might help me feel better by venting my frustrations and struggles with Gastroparesis. Also, I hope I can help others who may have the same thing through my own experiences. For more information, please email: emilysstomach[at]gmail.com or follow on Twitter: http://twitter.com/emilysstomach or like us on Facebook: http://www.facebook.com/emilysstomach or Instagram: http://www.instagram.com/emilysstomach
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Showing posts with label swollen. Show all posts
Showing posts with label swollen. Show all posts
Tuesday, February 5, 2013
Wednesday, June 27, 2012
Severe Emotional and Physical Pain
For the past few days, the abdominal cramps have gotten so much worse. I've had esophageal spasms more than I usually do. My stomach feels like I've been sucker punched and I have NO interest in eating at all.
I've been keeping a food diary to keep track of what and when I eat and I haven't eaten very much in the last week. I miss food. I hate that food is the enemy. I don't understand how I'm not losing more weight though. I mean, my weight, I've lost about 15 pounds total, but now it's staying steady. But I'm not really eating...so I don't understand.
My friend has been staying with me and she helped take care of me this past weekend when everyone was gone. My husband was at a convention, my roommate was in San Fransisco, and my other roomie was visiting her parent's. I'm glad my friend was here because I went hypoglycemic about four times. This is still new to me but she was able to make me eat and get some food in me, it didn't stay down, but it got me to stop slurring my words so I guess some of it stayed down.
I'm frustrated and tired. I just want to give up. I've got a lot of unnecessary stress on me right now and it's making me feel worse. The depression has really hit me today and usually, I'm not a depressed person. I had dreams last night and each dream had me buried alive or trapped in some way. It was horrible.
I'm worried about school and if I don't take this one class I need then I have to wait ANOTHER year to graduate. However, at the rate my stomach is going, I won't be able to take a class because I vomit about 6 to 8 times a day, even if there's nothing left. It burns. My throat is so swollen that I can barely swallow pills. I have no energy today. I feel drained. Emotionally drained too, like I have just gotten done with a funeral.
I'm really just upset and sick. Last night was horrible. I need to get out of this house, somehow, for a little while. I really want to go and watch Abraham Lincoln Vampire Hunter to get out of the house. I know that the smell alone will make me ill but I wonder if it would be worth it, just to get out. Or even have my husband drive me around the neighborhood to the park so I can swing for a bit. I just need to do SOMETHING! I feel useless and unloved, which is stupid because I know I'm loved.
My birthday is on Saturday. I was looking forward to my party because it's zombie themed and everything is just going to be amazing. But now, I just am so lethargic that I feel like, why am I doing this? I don't have the energy for this? I just feel so extremely tired - like the fight is gone out of me. I'm tired, so very tired.
I've been keeping a food diary to keep track of what and when I eat and I haven't eaten very much in the last week. I miss food. I hate that food is the enemy. I don't understand how I'm not losing more weight though. I mean, my weight, I've lost about 15 pounds total, but now it's staying steady. But I'm not really eating...so I don't understand.
My friend has been staying with me and she helped take care of me this past weekend when everyone was gone. My husband was at a convention, my roommate was in San Fransisco, and my other roomie was visiting her parent's. I'm glad my friend was here because I went hypoglycemic about four times. This is still new to me but she was able to make me eat and get some food in me, it didn't stay down, but it got me to stop slurring my words so I guess some of it stayed down.
I'm frustrated and tired. I just want to give up. I've got a lot of unnecessary stress on me right now and it's making me feel worse. The depression has really hit me today and usually, I'm not a depressed person. I had dreams last night and each dream had me buried alive or trapped in some way. It was horrible.
I'm worried about school and if I don't take this one class I need then I have to wait ANOTHER year to graduate. However, at the rate my stomach is going, I won't be able to take a class because I vomit about 6 to 8 times a day, even if there's nothing left. It burns. My throat is so swollen that I can barely swallow pills. I have no energy today. I feel drained. Emotionally drained too, like I have just gotten done with a funeral.
I'm really just upset and sick. Last night was horrible. I need to get out of this house, somehow, for a little while. I really want to go and watch Abraham Lincoln Vampire Hunter to get out of the house. I know that the smell alone will make me ill but I wonder if it would be worth it, just to get out. Or even have my husband drive me around the neighborhood to the park so I can swing for a bit. I just need to do SOMETHING! I feel useless and unloved, which is stupid because I know I'm loved.
My birthday is on Saturday. I was looking forward to my party because it's zombie themed and everything is just going to be amazing. But now, I just am so lethargic that I feel like, why am I doing this? I don't have the energy for this? I just feel so extremely tired - like the fight is gone out of me. I'm tired, so very tired.
Friday, June 8, 2012
More vomiting
Today was rough. I have been up for 24 hours straight now. I couldn't sleep last night because I kept vomiting and now I can't sleep tonight because of vomiting. I managed to have a semi productive day while working with my brothers to try and tackle Fraternity business.
While walking my friend out to her car, I vomited in the front yard and was assaulted by lady bugs. It's really unnerving to have a bug fly in your hair while you're vomiting and not being able to look and see what it is. Lady bugs are supposed to be good luck though, right?
I've been vomiting ever since. I haven't eaten anything today, other than dinner my brother brought over. So, there's not much to purge but I keep throwing up stomach acid. My stomach is swollen and painful. Also, I keep whacking my bad knee on the toilet when I'm sick.
I have a sharp, burning pain at the top of my stomach. It feels like the pins and needles nerve pain that I have in my knee plus burning. That's the best way I can describe it. I'm wondering if seeing a neurologist might be helpful? I have nerve damage in my knee and now my stomach. I'm scared that it might be a nerve related autoimmune disease or worse. I hope it's just coincidence.
I ate one small meal today. That was all I could eat. I would be happy if I could just turn a valve to cut my stomach off so that I could sleep. I haven't had a good night's rest in a while. I'm sitting upstairs watching TV so that I don't wake my husband up.
I just feel exhausted and miserable. There has to be something the doctor can do so that I can sleep. I really need rest but I can't lay on my sides like I normally do. My stomach pains intensify when I do that (I sleep in a fetal position). At least I have a bucket beside the bed in case I don't make it in time.
Please, let me make it in time. Please?
While walking my friend out to her car, I vomited in the front yard and was assaulted by lady bugs. It's really unnerving to have a bug fly in your hair while you're vomiting and not being able to look and see what it is. Lady bugs are supposed to be good luck though, right?
I've been vomiting ever since. I haven't eaten anything today, other than dinner my brother brought over. So, there's not much to purge but I keep throwing up stomach acid. My stomach is swollen and painful. Also, I keep whacking my bad knee on the toilet when I'm sick.
I have a sharp, burning pain at the top of my stomach. It feels like the pins and needles nerve pain that I have in my knee plus burning. That's the best way I can describe it. I'm wondering if seeing a neurologist might be helpful? I have nerve damage in my knee and now my stomach. I'm scared that it might be a nerve related autoimmune disease or worse. I hope it's just coincidence.
I ate one small meal today. That was all I could eat. I would be happy if I could just turn a valve to cut my stomach off so that I could sleep. I haven't had a good night's rest in a while. I'm sitting upstairs watching TV so that I don't wake my husband up.
I just feel exhausted and miserable. There has to be something the doctor can do so that I can sleep. I really need rest but I can't lay on my sides like I normally do. My stomach pains intensify when I do that (I sleep in a fetal position). At least I have a bucket beside the bed in case I don't make it in time.
Please, let me make it in time. Please?
Labels:
doctor,
gastroparesis,
insomnia,
meals,
nerve,
nerve pain,
neurologist,
rest,
sick,
stomach acid,
swollen,
vomiting
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