The idea was suggested to me (by my MD) that a blog/diary might help me feel better by venting my frustrations and struggles with Gastroparesis. Also, I hope I can help others who may have the same thing through my own experiences. For more information, please email: emilysstomach[at]gmail.com or follow on Twitter: http://twitter.com/emilysstomach or like us on Facebook: http://www.facebook.com/emilysstomach or Instagram: http://www.instagram.com/emilysstomach
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Tuesday, July 10, 2012
Motility Specialist Appt Tomorrow
Also, my insurance doesn't cover Lyrica, which is for nerve damage/pain. They will cover Neurontin, so my doctor called that in instead. I start it tonight and I hope that it helps. Maybe it will calm down my stomach enough to keep me from vomiting, pending that it stays down.
I see the Motility specialist in the morning. I'm a bit nervous and I'm not sure what to expect. I know that I need to ask her about the implant the pain management doctor recommends and how that would work with a pacemaker in my stomach if they decide to go that route. Maybe they'll do a gastric bypass ... I'm not sure. The GP is so severe that any relief would be possible.
The drug cocktail I'm on now, that I can keep down anyway, is making me incredibly sleepy. I've slept for the past two days. I'm not entirely sure if that's from shear exhaustion or the drugs.
I need to think up a list of questions for the motility specialist. I think she's going to give me a diet to follow - but I've already cut out all of the gluten. I've been almost on a liquid diet. But everything I eat, like clockwork two hours later comes right back up. Soup, drinks, etc, it doesn't matter. It ALL comes back up.
To be sure that it wasn't food spoiling in my stomach, I went two days without eating (well, I forgot to eat to be honest), so there was NOTHING in my stomach. I ate half of a can of tomato soup followed by some V8 kiwi strawberry juice. I did this around 11:30pm and two hours later, it all came back up.
I'm just tired of not being able to eat. I want to be normal again. I'd like to go and see the new Batman movie, but I can't. The smell of popcorn alone would make me ill. I want to hike and drive without throwing up. I just feel lost and hopeless sometimes. I hope this doctor can help me. I would be game for almost anything to be able to be normal. I want to finish school - I only have a year left to become a Geologist. I'm scared that I won't be able to take classes this fall unless it's an online class. Also, if I have the surgery, I don't want to start out the semester like that. I would like one semester where I can attend classes without ANY absences and coherent so that I can actually learn what I need to know. I'm just so scared.
I'm just so uncertain of what the future holds and that scares me. I really want to graduate. I've worked so hard to graduate. It's so hard to explain to my professors how sick I am. You can tell people you're sick, but they won't understand until they see it for themselves. I had friends come over to hang out with me and they didn't realize how bad it was until I went to the bathroom about 6 to 8 times while they were at my house.
I wonder if anyone else with GP has this issue. I just don't want a feeding tube. I'm scared of that option. I don't think it will come to that, but I have been losing a lot of weight. I've dropped a pants size and a bra size. This isn't the way I wanted to lose the weight. I gained a lot of weight after the knee problems. But, I didn't want to starve myself. I want to eat my favorite foods again. I know all of this sounds completely selfish because I know there are people who have this worse than me.
My mother told me today that my grandfather had something similar. He would vomit after eating too. I'm not sure if he had gastroparesis or not, and I can't ask him now, which makes me sad because I miss him so much. I am not even sure if it's hereditary.
I guess I'll have more to report tomorrow after I talk to the specialist. Please wish me luck!
Friday, April 10, 2009
Rocks made of Quartz, hornblende, biotite, and muscovite
Lenticular Lenses and Foliation off of Buford Hwy
Rocks Show Blasting/Drilling/Lineations
Structural Field Trip
Injury & School - Where it all Began
So, I managed to hurt my knee while hiking on a Geology field trip. My professor took us up and down very steep inclines...(not really hills...they were steeper than that) and I managed to put all of my weight on my right leg and strained the heck out of it. I haven't been able to put weight on it since and this took place on March 21st. So, I've been pretty much trying to keep off of it and have been on pain medicine. I went for an MRI and the doctor told me the results yesterday. Apparently, the ligaments are intact but my bones in my knee are swollen. I didn't even realize that bones could swell. So, I have to see an orthopedist and possibly get steroid injections into my leg to make it feel better.
Additionally, I've also been working on August Wilson's Joe Turner's Come and Gone which is an upcoming production at my school. I'm one of three assistant stage managers. Needless to say, I h aven't been able to do very much since a majority of my job was walking around, setting up, etc. So, I feel really useless. Everyone has been really understanding but it still makes me feel bad. I'm getting paid the same amount as the other two assistants but I'm doing a lot less. To be fair, I tried to resign but the stage manager wouldn't let me. I have never worked with her before but she seems to like me ok. She keeps telling me that she's going to steal me and that I should change my major to theatre. I would love to do so as I've always loved theatre but I probably wouldn't make any money whatsoever. :( And, I really need to make money when I graduate so my husband can go to school. I think one of the ASMs really doesn't like me (it's the first time I've worked with her as well and she's not getting a very good first impression of me).
Anyway, tomorrow is another geology field trip. I have to go or else I'll have to write another research paper AND give another presentation. Now, the first one is due next week and I'm still working on it. The graduate students have to give two talks and two papers, so I'm lumped in with them if I don't go tomorrow. This rubbed me the wrong way because I had a guy in my class who missed the first field trip and he was told to write a paper...NOT a research paper or a presentation, but just a paper. This bugs me and makes me feel like my teacher either really hates me or is sexist...not sure which.
Also, I am pretty sure that I failed the test on Tuesday. Well, I'm pretty sure everyone in the class failed it because we usually do. On the last test, I made the lowest grade in the class. I hope that I was able to bring my grade up slightly so that he can see improvement for my final grade. I'm scared I'm either going to make a C or a D in his class. I was told he doesn't fail anyone, but I could very well be the first. It's not like I don't try and I don't study...but it's A LOT of information crammed into such a short period of time. I mean, I have mostly A's and B's on my transcript. I have a couple of C's but nothing lower than that. :/ I mean, I know I could be doing better but I'm trying my hardest. I've had a lot going on also. My mom had an accident and was in ICU for a bit, I broke my arm and had to have surgery, my mom's side of the family quit speaking to me because my uncle caused some issues, and just recently I injured my knee. I really need to write a book but no one would believe half of the things I've been through. I think I'm holding up rather well and making good grades despite everything else. It IS true that I procrastinate and that I can do better and I'm working on that. However, I managed to make all B's last semester even though I had surgery on my arm in the middle of the semester. My husband is a little worried that I'm going to flunk out of school. I'm not planning on it. I just have a little bit more left and then I graduate.