Hello everyone,
I wanted to make a personal plea to all of my friends and family. This petition effects me personally. I would like to spread awareness about this rare condition, for doctors to find better treatment options (I've been hospitalized 16 days so far with a lot of invasive procedures, which you guys have read about), and I want a cure found for this condition. I know that you read my blog, so you know how bad I've been sick for the past seven months.
This would mean a lot to me. We need 25,000 signatures and we only have 130 so far. Please, take a moment to sign your name and please share with your friends. I can't tell you how miserable I am and I would like some more research to be done on this condition.
For those of you who may not know what gastroparesis is, it's when your stomach muscles are paralyzed, so you have delayed gastric emptying. In my case, my food doesn't stay down and I vomit at least 6 to 8 times daily. I have to carry a bucket in the car when I go anywhere. This is no way to live. And of course, the doctors can give me pills to control the nausea, but those don't stay down either.
Please, I'm begging you from the bottom of my heart, please sign this. I really need your support right now. There are many people out there who have this condition worse than I do. The only treatment options currently are sticking a pacemaker into your stomach, having a gastric bypass, and a feeding tube. None of those sound like fun.
I would like to finish my last year of school. I can't do that vomiting the way I do now. So, please, take the time to just put your name on THIS PETITION.
I thank you in advance for being a good friend and supporting this cause. It means a lot to me. Really and truly. I want a normal life again. While that may not be any time soon, this petition gives me hope. Please, give me hope by signing it.
The url is: https://petitions.whitehouse.gov/petition/gastroparesis-gp-we-need-more-awareness-and-funding-it-effects-all-ages-and-races-more-research-no/SNw7GMp8
Showing posts with label rare condition. Show all posts
Showing posts with label rare condition. Show all posts
Saturday, October 20, 2012
Thursday, October 4, 2012
Research sheds light on debilitating medical condition
Researchers from the Auckland Bioengineering Institute (ABI) have accurately mapped the patterns of abnormal gastric electrical activity that occurs during gastroparesis, a debilitating stomach condition.
Dr Gregory O'Grady, from the Auckland Gastrointestinal Research Group based at the ABI, says the new findings provide for the first time an accurate and detailed description of gastric dysrhythmias in humans that will help in the development of new diagnostic and treatment options.
Gastroparesis, which affects predominately women and 10 per cent of diabetics, is a medical condition that affects the stomach's ability to empty itself resulting in a reduced quality of life due to chronic nausea, vomiting, abdominal bloating and pain.
Abnormal electrical activity in the stomach or gastric dysrhythmias was known to be associated with gastroparesis but until now no accurate descriptions of these abnormalities existed, says Dr O’Grady.
“This is because previous research had been impeded due to there being no adequate methods to investigate gastric electrical activity,” he says.
The research project involved surgeons, engineers and biomedical scientists from The University of Auckland, the Mayo Clinic in the US, and The University of Mississippi.
The Gastrointestinal Group’s research, which was published in the prestigious international medical journal Gastroenterology, required several years of technical development.
“We developed new clinical devices consisting of sheets of hundreds of electrodes that could be laid over the stomach to precisely track electrical patterns during surgery. A new software platform for processing these patterns also had to be developed by the research team, says Dr O’Grady.
“Gastroparesis is a devastating disease that is particularly difficult to diagnose and treat, and its causes have been poorly understood. Our research provides significant new insights into the disease, and opens the door to advanced new treatment options such as the use of gastric pacemakers, he says.
“We hope that over the next few years our devices will evolve into routine clinical tools for diagnosing gastroparesis as well as other significant disorders of stomach function,” says Dr O’Grady.
The research programme was led for many years by the late Professor Andrew Pullan, a principal investigator with the ABI and a member of the Department of Engineering Science within the Faculty of Engineering, who passed away earlier this year.
The research is continued by Dr O’Grady, and the other lead investigators of the study Drs Leo Cheng and Peng Du from the ABI and Professor John Windsor from the Faculty of Medical and Health Sciences.
The research was funded primarily by a project grant from the Health Research Council of New Zealand (HRC).
The University of Auckland
The Link is HERE.
Also, I feel this way right now:
Dr Gregory O'Grady, from the Auckland Gastrointestinal Research Group based at the ABI, says the new findings provide for the first time an accurate and detailed description of gastric dysrhythmias in humans that will help in the development of new diagnostic and treatment options.
Gastroparesis, which affects predominately women and 10 per cent of diabetics, is a medical condition that affects the stomach's ability to empty itself resulting in a reduced quality of life due to chronic nausea, vomiting, abdominal bloating and pain.
Abnormal electrical activity in the stomach or gastric dysrhythmias was known to be associated with gastroparesis but until now no accurate descriptions of these abnormalities existed, says Dr O’Grady.
“This is because previous research had been impeded due to there being no adequate methods to investigate gastric electrical activity,” he says.
The research project involved surgeons, engineers and biomedical scientists from The University of Auckland, the Mayo Clinic in the US, and The University of Mississippi.
The Gastrointestinal Group’s research, which was published in the prestigious international medical journal Gastroenterology, required several years of technical development.
“We developed new clinical devices consisting of sheets of hundreds of electrodes that could be laid over the stomach to precisely track electrical patterns during surgery. A new software platform for processing these patterns also had to be developed by the research team, says Dr O’Grady.
“Gastroparesis is a devastating disease that is particularly difficult to diagnose and treat, and its causes have been poorly understood. Our research provides significant new insights into the disease, and opens the door to advanced new treatment options such as the use of gastric pacemakers, he says.
“We hope that over the next few years our devices will evolve into routine clinical tools for diagnosing gastroparesis as well as other significant disorders of stomach function,” says Dr O’Grady.
The research programme was led for many years by the late Professor Andrew Pullan, a principal investigator with the ABI and a member of the Department of Engineering Science within the Faculty of Engineering, who passed away earlier this year.
The research is continued by Dr O’Grady, and the other lead investigators of the study Drs Leo Cheng and Peng Du from the ABI and Professor John Windsor from the Faculty of Medical and Health Sciences.
The research was funded primarily by a project grant from the Health Research Council of New Zealand (HRC).
The University of Auckland
The Link is HERE.
Also, I feel this way right now:
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