Find us on Google+ Gastroparesis: food

Copyright

“You agree that you will not modify, copy, reproduce, sell, or distribute any content in any manner or medium without permission."
Showing posts with label food. Show all posts
Showing posts with label food. Show all posts

Thursday, June 20, 2013

Aversions to Food and Why the Smells Make You Ill

I recently received a request to cover this subject. I have to admit that I was a bit curious too. If anyone cooks (my room is off of the kitchen) or makes coffee, I start vomiting. If I sit down and try to eat, I can't I'm being conditioned not to eat by my scumbag brain and here's why:




The psychology of food aversions
Written by: David Solot with CNN

He writes,
Is there a food you just don’t like, and you can’t explain why? Or perhaps a food that made you sick once, and now you can’t come near it? It could be the result of a million-year-old survival mechanism.

When I was about six years old, I started hating cherry Jell-O. There was no apparent reason for it. I liked cherry Kool-Aid and shaved ice, and I was fine with other flavors of Jell-O. But the sight or smell of cherry Jell-O would instantly make me nauseated.

My reaction to it was so bad that my parents used to tell people I was allergic to it, just to avoid my reaction. They even wrote it down under “allergies” on a school form. I just couldn’t touch it without feeling sick.

Perhaps you feel the same way about raw tomatoes, yogurt, or eggs. If there’s a food that makes you feel sick on sight, chances are that your brain is enacting a behavior that’s been passed down for millions of years. It’s called taste aversion, and it’s one of the strongest conditioned reactions in humans.

Here’s how taste aversion works: You and your buddies go out for a few drinks. You’re young and wild and love drinks with the strong coconut flavor of Malibu Rum. Things get a little out of hand, and you spend part of the night praying to the porcelain god. You recover, and next weekend go out for drinks again. The bartender passes you your favorite drink, but this time the smell of coconut immediately makes you want to vomit. You loved Malibu for years, but now, the very thought of it makes you sick.

What you’re experiencing is your brain protecting you from being poisoned. When we were primitive creatures, we weren’t sure what was safe to eat so we tested things out.

If you survived the experience, your brain had to make sure that you never ever ate that same thing again. So, if you ate something that made you feel ill, your brain decided "better safe than sorry," and conditioned you to feel sick anytime you saw, smelled or even thought about that same food.

The next time you went foraging for food and came across a berry that made you feel sick in the past, you would get hit with an overwhelming feeling of nausea and go eat something else. The people who were good at developing taste aversions lived and had children. The ones who were bad at it - well - they largely got poisoned and died. So over the centuries, our ability to form taste aversions got stronger and stronger.

The reason your night of drinking resulted in a hatred of Malibu is due to this same survival mechanism. When you felt nauseated at 3am, your brain sensed that you had been poisoned. Your brain didn’t know for sure what caused it, but it did remember a really strong coconut flavor from earlier that night.

To protect you, your brain decided "better safe than sorry," and assumed that the coconut flavor was to blame. To make sure you don’t poison yourself in the future, it set up a conditioned response so that the smell or taste of coconut will make you feel sick.

That’s how taste aversions work properly - you no longer want to eat the thing that made you sick. But it can get more complicated than that.

You may find that you suddenly hate coconut shavings on ice cream. A year later, you may push away a plate of coconut-battered shrimp at a restaurant, and have no idea why you find it so repulsive. Taste aversions are just that powerful, and they can last for years after only one bad experience.

To make matters more confusing, sometimes aversions form for the wrong food. Imagine that on the way to work one morning you stop off for your traditional cup of coffee. Later that day, your coworkers all go out for Indian food. You’ve never had Indian food before, but you’re up for something new. You have a delicious meal and try lots of new items. But around 3pm, you start feeling queasy. It gets worse and worse, and by the evening you’re sick to your stomach and not able to hold anything down.

Your brain senses that you’ve been poisoned. Once again, it isn’t sure what did it, but it does remember a lot of strong spices and flavors that it never tasted before. To make sure you don’t poison yourself in the future, your brain decides “better safe than sorry,” and conditions you to feel sick any time you smell, taste or even think about Indian food.

The problem is, it turns out that there was nothing wrong with the Indian food - it was the creamer in your morning coffee that had gone bad! “No way,” says your brain, “we’ve had that coffee every day for a year. We know that it’s safe. It had to be that weird new food we ate.”

Suddenly you have a strong aversion to Indian food, even though it tasted good and there was nothing wrong with it. To make matters worse, you’ll probably never know your hatred of Indian food is irrational, because you don’t know that the real cause of your illness was your coffee. You’ll likely think that Indian food makes you sick and avoid it in the future.

This kind of thing is happening to us all the time, and we’re mostly oblivious to it. Have you ever had a really bad cold, and decided to make yourself feel better by eating your favorite food? You might find a few days later that you’ve stopped liking your favorite food. That’s taste aversion in action! Your brain assumes that the illness was caused by the food, and is teaching you to not like that food any more.

This effect is so strong that people undergoing chemotherapy (which can cause severe nausea) are cautioned to avoid their favorite foods. You might think you’re comforting yourself, but what you’re really doing is teaching your brain that "favorite food = feeling sick."

Luckily, our conscious minds are mostly able to overcome this effect. The key is to recognize what is happening and to think about the reason for the reaction.

Consciously reminding yourself that what you’re about to eat is not poisonous can help you to interrupt the automatic survival mechanism. With practice, you may find that you are able to stomach the foods that used to hate. You may even start to like them again.

The key is to go slowly, and expose yourself to the food in positive surroundings. Teach your brain that there’s no connection between the food and feeling bad.

As for my cherry Jell-O aversion, I remembered that back in kindergarten I was served room temperature cherry Jell-O and whipped cream, all swirled together. I got sick to my stomach, and that’s when I started hating it. By thinking about the cause of my reaction, I was able to teach myself to enjoy cherry Jell-O again. But if I put whipped cream on it, I still get a little queasy. A million years of evolution is hard to overcome!

Is there a food that you just can't eat because you got sick from it? Please share below.



There is another website where the scientists are conducting research on food aversion. You can read more about it http://www.answers.com/topic/aversion-to-food.

With my personal experience, I keep vomit bags in my purse in case my husband has to meet with people, and that usually involves a restaurant. I would actually sneak off and vomit because I didn't want to embarrass myself. But, the food smell at the restaurant really bothered me. I haven't been to a restaurant in a while because of that. As a matter of fact, it's been but three days since I've eaten because my stomach is still spasming from botox.

I hope this helps somewhat! But there is a scientific reason behind it - your brain is trying to protect you.

Saturday, January 12, 2013

Gastroparesis Diet From Mayo

Having trouble figuring out what to eat because you have GP? If you are looking for a specific diet plan, Mayo recommends this diet. It is as follows:

Bread/Grains Foods to Avoid:
Whole Grain flour products, popcorn, granola, corn bread, ALL products containing whole grains or high fiber, potato skins, fried potatoes, brown or wild rice, and no sweet potatoes. Oatmeal should be limited to 1/2 a cup or less.

Fruits to Avoid:
ALL raw fruit, dates, figs, prunes, apples, berries with seeds, peaches, grapes, pears, pineapple, rhubarb, oranges, and grapefruit. You can have ripe bananas, canned peaches, canned pears, fruit cocktail, and fruit juices without pulp or seeds.

Vegetables you CAN eat:
Mild-flavored canned vegetable juices, well-cooked/ tender vegetables like carrots, only the tips of asparagus, well-cooked beats, green beans, and acorn squash (no skin or seeds though). Veggies to avoid: ALL others.

Beverages:
Milk (if tolerated and only up to 2 cups per day), Coffee, tea, cocoa, and carbonated drinks (if tolerated), and non-dairy creamer.

Meat to Avoid:
Tough meat or high in fiber meat, chunky peanut butter, dried beans, or peas, legumes, lentils, or highly seasoned meat/meat alternatives.

Desert to Avoid:
ALL products with coconut, nuts, seeds, fibrous fruits, or things made from whole wheat flour or things that are high in fat.

Monday, December 3, 2012

Another Sleepless Night & Another New Symptom

I am so exhausted.

I can't sleep and all I can do is to curl up in a ball and whimper. The pain hurts. It's one huge spasm after another and the vomiting makes the pain worse. I'm pretty sure I pulled a muscle in my back vomiting this last time.

My fraternity's local alumni association had a holiday get together today. My husband is deeply involved in this organization and he's been here to support me, so I wanted to be there today to support him. The holiday get together was at a local soul food restaurant. Now, just the smell or image of food had me gagging this week, but I was determined that I was going to get through this lunch. I felt like I was marching to an execution and praying I didn't get sick at the restaurant. I took all of my medicine before I got into the car which includes Bentyl, Levsin, Zofran, Phenergan, Zanaflex, and my vitamins I've started taking. I added a multivitamin to the mix along with Vitamin B, because that was recommended to help my new symptoms of confusion. I've also been trying to add more potassium to my "diet."

I was quite proud of myself. I didn't get sick in the car and when I walked into the restaurant, the smell didn't knock me out like I thought it was going to. I managed to make myself eat a teaspoonful of dressing, two teaspoonsful of lima beans, and a few bites of banana pudding. After that, I was full. Also, a new symptom developed. Right after I ate, my belly started to swell. It looked like I was pregnant or that I had a balloon under my shirt. It was very uncomfortable and full of cramps. I actually had to change my pants later because they were too tight after I ate.

I managed to last the entire lunch without vomiting several times. I had to leave and get some air towards the end of lunch because the smells were making me extremely nauseated.

After getting into the car, the nausea became worse. Nothing helped. Not looking outside, not counting trees, not trying to relax, nothing. My stomach felt like someone was banging on it with a hammer. It was this intense, throbbing, sharp pain. It continued to do this until I got home. The spasms started happening and then I started vomiting. At least I had something in my stomach to vomit up, so it wasn't just stomach acid. My throat is still rather swollen from previous vomiting and it probably sounds and looks like I have strep throat.

I was up all last night vomiting and now I've been up all tonight vomiting. One of my friends said something, probably not meaning to be offensive but it came out that way, and I finally just broke down and cried. I sat there and cried for a good two hours. My wonderful husband, who lost his father this week, sat there and held me while I cried. He didn't ask what was wrong, he just stroked my hair. I felt so guilty because I feel like I should be comforting him, you know?

After crying, I vomited again. At this point, I left my bedroom to come upstairs to watch TV. I don't want to wake my husband up and my stomach isn't going to let me sleep anytime soon.

I managed to read all of, Gastroparesis: My Personal Journey and realized that I have the same symptoms. This isn't in my head. I can't tell you how many doctors have told me that the sickness is in my head and nothing more. I've had several friends remark about how strong I am but I don't feel strong. Then, I read something like this book and what this woman went through and it motivates me to be an advocate for myself.

I'm going to stick with facts and what I do know. I know that I vomit 6 to 8 times a day. I know that I'm dehydrated. I know that I'm still technically overweight but I've lost about 25 pounds since I was diagnosed. I've dropped a bra size and pants size. I can put two photos of me side by side from this year and last year and you can see that my face has thinned out considerably. I know that I look sick and that my skin is a weird pasty color. I know that if I make myself eat, even small and frequent meals (liquids), I will vomit.

I know that I can't leave the house without a a bucket of some sort to vomit in. I know that I have a year of college left and I'm not sure how I'm going to go to labs. I know my GI doctor doesn't know what to do for me at this point so he's referring me to the Mayo clinic. I know that I have mental confusion, depression, and my stomach becomes really swollen if I do manage to eat something. It doesn't matter what I eat, it all comes up. Liquids, solids, gluten free, gluten, etc. I've tried all of the different diets. I know that I'm scared (and I have a suspicion that I have an autoimmune disease at the heart of this problem - but I don't know what I've been tested for).

I also know that I am determined. I know that other GP fighters suffer worse than I do. I know I have loving family and friends who support me, even when I post six million times a day on Facebook to keep myself distracted. I appreciate all of the help my husband has given me and his support. Without him, I'm not sure I could do this. I know that I've found a wonderful support group online that has helped me so much with venting and answering most of my gastroparesis questions. Also, it makes me feel better to know that I'm not the only one.

I know that I'm going to keep fighting.

Saturday, October 20, 2012

Updates on GP Management

I just downloaded a book that I hope will help that I found through the Gastroparesis community on Facebook. It's called, "Living Well with Gastroparesis" by Crystal Saltrelli. It has 75 recipes that should be easier for me to digest. I'm also going to try and keep a food journal to see what works and what doesn't.

What makes me happy about this book is that the author's story sounds strangely like mine. She went to the doctor and was diagnosed with Gastroparesis without hearing that word before, ever. Then, she went to the Motility Specialist who wrote her off because the Specialist felt that she wasn't a severe case, even though she was hospitalized over and over (much like me) for nausea, vomiting, and severe pain. It's just scary how similar my situation is to this woman.

The recommendation is to eat six small meals a day but that's challenging for me. I'm usually full after one small meal for several days, IF it stays down. I went to the doctor yesterday, dehydrated, and my blood pressure was back up to 140/110 because I was in pain and spent the last three days vomiting. I vomit, on average, about 6 to 8 times a day. Mostly, it's just green stomach acid because there's nothing left to come up at this point. Liquids won't even stay down.

I hope this book will help me learn to manage this condition. She says that the gastric pacemaker worked wonders for her and helped her to digest food easier. This was mentioned to me once by my GI doctor, but I haven't heard much else about it.

I can't live this way anymore. I can't leave my house without a bucket. I barely eat. I've lost 20 pounds. The doctors aren't sure what to do. The Motility Specialist doesn't want to see me until I need a feeding tube but I'd prefer not to have it come to that, you know?

I'm lethargic and tired. My friends don't want to hang around me, because let's face it, I can't go anywhere with my head shoved into a bucket. I just feel isolated and alone sometimes - and it hurts because no one understands this condition. My husband has been my rock and has been really supportive. But, I miss going out, even little things like to the movies or camping. The smell of food makes me really ill. I have to hide away from it when people are cooking downstairs.

I went to my regular doctor yesterday. He gave me Phenergan and Bentyl, which have helped in the past but it's hard for me to keep pills down. My stomach is bloated and swollen with severe pain. My skin is clammy because I have a fever. I managed to catch some kind of stomach virus ... and let me tell you, that plus gastroparesis makes me feel like I'm dying. The doctor wanted to put in an IV to hydrate me, but I was so dehydrated that he couldn't find a vein...not even in my FOOT! He said I should go to the emergency room but I just couldn't bring myself to go. I didn't want to wait 6 to 8 hours to be given pain and nausea medicine to be sent home just to have it all repeat over again. I want help managing the problem - not masking the symptoms.

Tuesday, I have a surgery scheduled for the Spinal Cord Electrical Stimulator (back surgery to control the nerve damage). This should help the nerves in my knee from misfiring me to tell me my knee is in severe pain. I'm hoping this will cut the vomiting in half as vomiting is also my pain response. That way, I can tell what is coming from my stomach and my stomach alone. Also, this will help me to walk again without making me feel like I've broken a bone in my knee. Walking is supposed to help digestion.

I will start the food journal tomorrow. I'm going to browse through these recipes to see if I can find anything worth making. I might have to make my husband do it because anything involving cooking or being near food makes me ill. I don't know if it's just in my head or what, but I can't deal with strong smells right now. I've been resting and trying not to push myself. I've been trying to drink gatorade, apple juice, and eat yogurt. Soft things that won't be too harsh on my stomach. I ate rice last night which was a bad mistake because now I have horrible gastric cramping. Before long, I just might have to buy some baby food and go from there.

What's even worse is that I've felt too sick to do anything. It's like everything I used to care about isn't even a priority at the moment because I am just so ill. I hate feeling that way. I miss my friends. I miss my family. It's even hard for me to play a video game because the games make me motion sick.

I just wish doctors wouldn't write me off because I'm not in need of a feeding tube yet. You think that they'd try to keep me from getting one, right? I'm just not sure what to do at this point. I don't want to be hospitalized for another 8 days but at the same time, I'm too weak to even take a shower to wash my hair.

Wednesday, June 27, 2012

Severe Emotional and Physical Pain

For the past few days, the abdominal cramps have gotten so much worse. I've had esophageal spasms more than I usually do. My stomach feels like I've been sucker punched and I have NO interest in eating at all.

I've been keeping a food diary to keep track of what and when I eat and I haven't eaten very much in the last week. I miss food. I hate that food is the enemy. I don't understand how I'm not losing more weight though. I mean, my weight, I've lost about 15 pounds total, but now it's staying steady. But I'm not really eating...so I don't understand.

My friend has been staying with me and she helped take care of me this past weekend when everyone was gone. My husband was at a convention, my roommate was in San Fransisco, and my other roomie was visiting her parent's. I'm glad my friend was here because I went hypoglycemic about four times. This is still new to me but she was able to make me eat and get some food in me, it didn't stay down, but it got me to stop slurring my words so I guess some of it stayed down.

I'm frustrated and tired. I just want to give up. I've got a lot of unnecessary stress on me right now and it's making me feel worse. The depression has really hit me today and usually, I'm not a depressed person. I had dreams last night and each dream had me buried alive or trapped in some way. It was horrible.

I'm worried about school and if I don't take this one class I need then I have to wait ANOTHER year to graduate. However, at the rate my stomach is going, I won't be able to take a class because I vomit about 6 to 8 times a day, even if there's nothing left. It burns. My throat is so swollen that I can barely swallow pills. I have no energy today. I feel drained. Emotionally drained too, like I have just gotten done with a funeral.

I'm really just upset and sick. Last night was horrible. I need to get out of this house, somehow, for a little while. I really want to go and watch Abraham Lincoln Vampire Hunter to get out of the house. I know that the smell alone will make me ill but I wonder if it would be worth it, just to get out. Or even have my husband drive me around the neighborhood to the park so I can swing for a bit. I just need to do SOMETHING! I feel useless and unloved, which is stupid because I know I'm loved.

My birthday is on Saturday. I was looking forward to my party because it's zombie themed and everything is just going to be amazing. But now, I just am so lethargic that I feel like, why am I doing this? I don't have the energy for this? I just feel so extremely tired - like the fight is gone out of me. I'm tired, so very tired.

Monday, June 18, 2012

Woke up at 6am - and My Stomach Hates Me

My stomach managed to wake me up and I went straight to the bathroom and vomited. So much for that. I thought I was having a good day yesterday. I vomited up some of the food that I ate at the wedding reception, some of it wasn't digested (OK, I know that's probably TMI - but my blog is to help keep track of these things to tell the doctor). I have very intense stomach cramps. I also feel very tired, exhausted, and fatigued even though I slept yesterday and some last night.

I just took:

1 pain pill

2 anti-spasmotic pills

1 anxiety pill

1 muscle relaxer

2 anti-nausea pills

Between all of those, and I hope I can keep those down, hopefully I'll go back to sleep. I just hate waking up with that immediate need to be sick. And, as per usual, I whacked my knee on the side of the toilet again.

I just want to feel better. I'm going to call and make an appointment with the motility specialist. She's at Crawford Long, so that's a bit closer to me to get to. When I do drive, I have to drive around with a bucket. I've gotten pretty good at vomiting outside of moving cars though. I don't feel safe driving because I might get sick while I'm driving.

I need to find a primary care doctor closer to my house as well. I feel bad just walking in and saying, "Hey, I've got gastroparesis and I'm your new patient!" I would like all of my records in one place, though. My knee records, my stomach records, my records from my old primary care doctor. I feel as though my medical records are scattered all across Atlanta.

I have to say that it was good to leave the house for a little bit. I've been confined here since March since my GP has been so severe. I slept on the car ride back because the nausea started to hit. Then, I went to bed and didn't wake up until about 10pm or so. This new medication knocks me out.

The medicine that helps the most is the muscle relaxer. It relaxes my stomach enough for me to eat and not be in as much pain.I don't know if they'll keep me on it or not but it's the only thing that seems to help.

Maybe one day this Summer, I will get to go to the beach! I miss the salty smell of the air... there's nothing quite like it. I'm leaving Wednesday or Thursday for a car ride up to Connecticut for convention for my fraternity with my friends. I hope that I can make it up there with no problems. I'm more worried about the car ride. If I don't eat while at convention, I won't be sick. I know that sounds absolutely horrible. I didn't each much before or after the wedding, so I didn't get sick like normal. So, I'm going to have to monitor myself very closely with food. Most of the time, I'm not hungry anyway. But, social conventions seem to be centered around food and drinking. I can't do either.