I met with the doctor today at Mayo to go over all of my test results from this week of testing.
We started off talking about my lab work. My labs were normal, except for my enzymes. The number was 108 and normal is around 40. That kind of bothers me because my liver enzymes were also really high in the hospital, in the 440s to 500s. He is going to recheck my labs in three months to rule out chronic liver disease, which sounds a bit scary. My white blood cell count was up, at 12.8. I don't have any explanation for that except for the throat infection I vomited myself into last week.
My 48 hour BRAVO TEST was positive. The test came back showing three different occasions for heartburn. The regurgitation I had did not correspond with reflux events on the Bravo meter device.
I want to address the heartburn thing. I know what heartburn feels like and I swear that I did NOT feel the heartburn while doing the Bravo test. I have been vomiting up stomach acid, but I thought that was because there was nothing left on my stomach. Am I just so used to the acid reflux that I can't tell when it's occurring now?
My esophagus looked normal and there wasn't any damage. I'm not sure how that happened because it was so swollen and sore last week. I still have issues swallowing and I have the bravo capsule attached to my esophagus until it falls off.
I have to manage this like GERD. I've tried Protonix, Pepcid, Prevacid, Prilosec, and Dexilant in the past to control acid reflux. So, the doctor called in some ACIPHEX to help control my symptoms. He told me to try this for three months. He also told me to learn DIAPHRAGMATIC DEEP BREATHING. Dr. Bouras said that will help me to help control the vomiting. I have to come back to the Mayo Clinic to meet with behavioral specialists to learn how to this technique but it will have to be approved by my insurance before I can schedule the appointment. But, the deep breathing will help me hold the food down.
If the medication does NOT work, then he will have to do surgery. He recommended a NISSEN FUNDOPLICATION.
The doctor also cleared me to start back on BENTYL. This is great news because my stomach spasms hurt SO much! This will help them subside. He did caution me to be careful about these types of medication because they can make gastric emptying even slower.
If I'm still having issues three months from now on the new PPI and with the deep breathing, he also mentioned doing a Sleuth Study which is a reflux study that isn't just about acid, but any kind of reflux. I'm sorry that I don't have a link for you but I can't find anything on the Internet about it. He also mentioned the Nissen, as I mentioned before. That would make it impossible for me to vomit and could create issues for me swallowing.
I also have severe constipation. Nothing goes down and everything comes back up so he suggested Milk of Magnesium at night. I've been doing that but I guess I'll up the dosage. He said that in some cases, severe constipation can lead to upper GI motility issues. I'm to take 2 - 4 tablespoons of Magnesium at bedtime and avoid any medications that could cause constipation.
He may eventually do rectal testing on me. Man, that sounds like fun! Kidding. Anyway, he said that even though your colon could be normal (mine was via a colonoscopy) that you can still have rectal issues. There are tests to see if the muscles are functioning properly and he would also check for any possible blockages. He also mentioned doing another test called the PELVIC FLOOR TEST. I had never heard of such a thing. It's a group of muscles that control your bladder and bowel movements and this test makes sure that group of muscles work properly.
I asked him if there was anything else I could take for the nausea because the Zofran is hit or miss and Phenergan, well, doesn't last that long. I think I'm building up a tolerance. he said that I could take SCOPOLAMINE patches, which you put behind your ear and wear for three days but they have the potential to make you sleepy. So, I'll ask my doctor about those when I get home. I am going to straight up ask for pain patches too until the spasms are under control.
So, I still have motility issues. I'm meeting with a new PCP this week as well so that I can actually get more refills on Phenergan (more than 2 refills at a time), ask about the patch, and talk to him about everything that's been going on. I know he can't help with GP or motility issues, but he can help me with the stress and coping with such things. I had been seeing another doctor as my PCP but he's been at the practice less and less, having his PA's cover it instead and some of them really aren't that bright. If I am paying for a visit and I haven't slept in three days because of vomiting - don't turn me away with a prescription for 12 phenergan tablets and a pat on the head. That was the last straw for me, I think. I'm in the process of getting ALL of my medical records together for the new doctor. He might be a bit overwhelmed. My file looks like 100 Stephen King novels packed into one.
TRDL; my liver enzymes are high and need to be tested in three months to rule out chronic liver disease. Severe acid reflux is causing me to keep vomiting everything up. The doctor gave me medicine and if it doesn't work, along with deep breathing, I will need to have a stomach operation wherein, basically, they wrap my stomach around itself as well as other testing.
Friday, February 8, 2013
Thursday, February 7, 2013
Mayo Clinic - Day Four. Bravo Test
Today was day two of my Bravo pH test. I have to keep a log of all of my pain, nausea, vomiting, food intake, etc. It is very similar to the Smart Pill test that I had earlier last year. When they went in for my endoscope yesterday, the doctor attached a small capsule to my esophagus. This capsule measures the acid and reflux that my body produces to determine whether or not I really do have acid reflux. When the capsule is finished after three days, it falls off.
This is the Bravo pH log that they gave me to keep track of everything:
This is the receiver that they gave me. I have to wear it for the next two days:
The test is a bit miserable because I can only drink water in between meals. I can't sip it, I have to actually drink it at once. I can only have pedalyte, soda, and other things like that to drink with my meals. I have to eat normally, like I would if I didn't have Gastroparesis which is a bit hard for me. I am scared I am going to vomit and vomit this capsule loose. If that happens, I have to call the doctor at Mayo and let him know.
I go back to consult with Dr. Bouras before I leave tomorrow. I'm a bit nervous as to what he'll have to say. I was kind of hoping they would hospitalize me to give me fluids because I'm still very dehydrated and sick. I guess I'll wait and see what he says and waiting is always the hardest part.
This is the Bravo pH log that they gave me to keep track of everything:
This is the receiver that they gave me. I have to wear it for the next two days:
The test is a bit miserable because I can only drink water in between meals. I can't sip it, I have to actually drink it at once. I can only have pedalyte, soda, and other things like that to drink with my meals. I have to eat normally, like I would if I didn't have Gastroparesis which is a bit hard for me. I am scared I am going to vomit and vomit this capsule loose. If that happens, I have to call the doctor at Mayo and let him know.
I go back to consult with Dr. Bouras before I leave tomorrow. I'm a bit nervous as to what he'll have to say. I was kind of hoping they would hospitalize me to give me fluids because I'm still very dehydrated and sick. I guess I'll wait and see what he says and waiting is always the hardest part.
Wednesday, February 6, 2013
Mayo Clinic - Day Three. EKG & Endoscope
I reported for my 10:35am appointment this morning for my EKG. The appointment was in Davis Building 2 East.
I didn't have very long to wait. As soon as I sat down, the nurse appeared and called about four of us back. The nurse led me to a dressing room in the back and gave me a gown to change into to. She told me to leave my stuff in my dressing room and to take the key with me. Then, I went around the corner and laid on the table in the room while my EKG was done. The tech doing my EKG talked to me about the Falcons and how disappointed he was that the Ravens won the super bowl. We started talking about UGA games, since I have to deal with the drunk people after the games. He was telling me how horrible the UGA and Florida games were. The other tech behind the curtain working on someone else was also commenting on our conversation and chiming in on what he felt strongly about. They told me that I was their favorite patient for the day. That made me smile. I think they were amused that I love football.
So, the EKG was normal and I was released. My next appointment is at 1:30pm today for my endoscope and my Bravo test. I'm going to take a nap until then.
I started a new page last night based on humor. When I went to sleep last night, it only have fifteen likes. Now, it has over 100. The page is LAUGHTER THROUGH GP. I figured that Gastroparesis needed a little humor to cheer members up and it was a niche that hasn't been carved out yet. =)
At 1:30pm I reported to the patient registration desk in the Mayo building to register for my endoscope.
The receptionist sent me up to Mayo 5 North to check in for my procedure.
Before I did anything else, I stopped and looked at the views from the fifth floor. They were amazing, so I took some pictures of that as well.
I sat down and went over my medication list. I crossed a bunch out that the doctor took me off of and answered a questionaire about past surgeries and medical issues. I sat with papers in hand waiting for the nurse to call me back.
The nurse called me back and had me put on a gown. The attached me to a blood pressure cuff (my BP was high, no changes there), and got my IV in my right hand on the first try. She asked me a lot of questions and then I met the doctor. He was nice. Then, I met the anesthesiologist who was nice as well. They didn't waste any time and they wheeled me back in my bed for the endoscope. They had me lay on my side and bite down on a green plastic ring. The anesthesiologist pushed the drugs to make me sleep. I remember looking at the screen and then waking up in recovery. I cracked jokes with the nurse after I woke up.
The nurse told me that I would feel like there's something stuck in my throat because of the BRAVO TEST. The capsule attached to my esophagus will fall away by Friday. I came back to the hotel, ate a bit, and then went to sleep. I'm about to go back to sleep now because I still feel exhausted.
I didn't have very long to wait. As soon as I sat down, the nurse appeared and called about four of us back. The nurse led me to a dressing room in the back and gave me a gown to change into to. She told me to leave my stuff in my dressing room and to take the key with me. Then, I went around the corner and laid on the table in the room while my EKG was done. The tech doing my EKG talked to me about the Falcons and how disappointed he was that the Ravens won the super bowl. We started talking about UGA games, since I have to deal with the drunk people after the games. He was telling me how horrible the UGA and Florida games were. The other tech behind the curtain working on someone else was also commenting on our conversation and chiming in on what he felt strongly about. They told me that I was their favorite patient for the day. That made me smile. I think they were amused that I love football.
So, the EKG was normal and I was released. My next appointment is at 1:30pm today for my endoscope and my Bravo test. I'm going to take a nap until then.
I started a new page last night based on humor. When I went to sleep last night, it only have fifteen likes. Now, it has over 100. The page is LAUGHTER THROUGH GP. I figured that Gastroparesis needed a little humor to cheer members up and it was a niche that hasn't been carved out yet. =)
At 1:30pm I reported to the patient registration desk in the Mayo building to register for my endoscope.
The receptionist sent me up to Mayo 5 North to check in for my procedure.
Before I did anything else, I stopped and looked at the views from the fifth floor. They were amazing, so I took some pictures of that as well.
I sat down and went over my medication list. I crossed a bunch out that the doctor took me off of and answered a questionaire about past surgeries and medical issues. I sat with papers in hand waiting for the nurse to call me back.
The nurse called me back and had me put on a gown. The attached me to a blood pressure cuff (my BP was high, no changes there), and got my IV in my right hand on the first try. She asked me a lot of questions and then I met the doctor. He was nice. Then, I met the anesthesiologist who was nice as well. They didn't waste any time and they wheeled me back in my bed for the endoscope. They had me lay on my side and bite down on a green plastic ring. The anesthesiologist pushed the drugs to make me sleep. I remember looking at the screen and then waking up in recovery. I cracked jokes with the nurse after I woke up.
The nurse told me that I would feel like there's something stuck in my throat because of the BRAVO TEST. The capsule attached to my esophagus will fall away by Friday. I came back to the hotel, ate a bit, and then went to sleep. I'm about to go back to sleep now because I still feel exhausted.
Tuesday, February 5, 2013
Mayo Clinic - Day Two. Gastric Emptying Test
Today was the long dreaded, gastric emptying test. We arrived at Mayo at 7:15am to check in the registration desk in the Mayo Building. We were supposed to meet with a financial adviser but the person who checked me sent both my husband and myself up to the second floor, back to radiology.
After we got back up to Mayo 2 South, I checked in at the front desk for my 8:00am appointment. They told me to have a seat and that someone would be with me shortly. I sat down with my husband and put my head on his shoulder. I promptly fell asleep. Then, a tech comes out and calls four names, mine being one of the four. He told us to follow him to nuclear medicine. As we went down the long hallway, I passed sub-waiting room B that I had to wait in yesterday. I made it to the end of the hall and took a left until I got to nuclear medicine. He ushered all four of us in and sat us each separately down in different "rooms." I say rooms but they were covered by curtains. One of the techs came up to me and presented me with the radioactive eggs over toast.
They gave us whole milk to wash it all down with. I called one of the techs over because halfway through the eggs, I became full. I asked how much of the meal we had to eat in order for the test to work. She said for me to ignore the toast and eat the eggs, that they were the most important part. So, I tried to eat as much as I could, and I did finish the eggs but left a third of the toast unfinished. I washed it down with the milk because the food kept getting caught in my throat, much like the barium tablet did yesterday.
After I ate the meal, I stood in front of the gastric scanner and took my first picture. The tech had me stand there for two minutes while the picture was being recorded. He handed me a piece of paper that said I had to repeat the scanning at 9:10am, 10:10am, and 12:10pm. The piece of paper had me circle whether or not I had a bowel movement in between scannings. Of course, I didn't have any bowel movements.
I went back to the front desk and checked in for the 9:10am scan. The receptionist sent me back to nuclear medicine and I made my way back there. I stood in front of the scanner and the food was still sitting in my stomach an hour after I had eaten the eggs. I stood there for two minutes while the tech captured another picture.
I waited until 10:00am and checked in with the front desk. On the way back to nuclear medicine, I vomited in the bathroom. I only threw up some of the eggs and toast. Then, I began to get nervous. I remember the doctor telling me in the hospital that if I threw up, the would have to start the test all over again. I made it back to nuclear medicine and told the tech what happened. He positioned me in front of the gastric scanner and started my two minute picture capture. He analyzed the results in the computer in the other room and talked to a colleague. He said that I had only thrown up 10% of the meal and that we still had enough to finish the test. He said that he was going to inform the doctor about the vomiting.
On a side note, they wouldn't let me take any kind of nausea medicine or pain medicine for this test because the doctor didn't want my medicine to skew the results of the test.
The next image was going to be at 12:10pm. I found a chair and got out my kindle and headphones. I managed to curl up in that tiny chair, in a ball, and get some sleep. Which is good, because the gastric spasms started about 20 minutes after I ate the radioactive meal and it was either try and sleep or cry because of the pain. I slept until my next picture was due.
At 12:00pm, I checked in with the front desk and went back to nuclear medicine. I had my final gastric scan done and I could still see all of the food in my stomach. It didn't move hardly at all. I gave them the sheet that said I didn't have a bowel movement between the different image captures.
Now, I'm exhausted. I think I may try and nap for a bit. My stomach is swollen and the spasms are still happening. I'll be happy when the rest of this toast finally comes up so that I don't have to deal with the pain anymore.
Tomorrow, I have an EKG and a scope. Wish me luck!
After we got back up to Mayo 2 South, I checked in at the front desk for my 8:00am appointment. They told me to have a seat and that someone would be with me shortly. I sat down with my husband and put my head on his shoulder. I promptly fell asleep. Then, a tech comes out and calls four names, mine being one of the four. He told us to follow him to nuclear medicine. As we went down the long hallway, I passed sub-waiting room B that I had to wait in yesterday. I made it to the end of the hall and took a left until I got to nuclear medicine. He ushered all four of us in and sat us each separately down in different "rooms." I say rooms but they were covered by curtains. One of the techs came up to me and presented me with the radioactive eggs over toast.
They gave us whole milk to wash it all down with. I called one of the techs over because halfway through the eggs, I became full. I asked how much of the meal we had to eat in order for the test to work. She said for me to ignore the toast and eat the eggs, that they were the most important part. So, I tried to eat as much as I could, and I did finish the eggs but left a third of the toast unfinished. I washed it down with the milk because the food kept getting caught in my throat, much like the barium tablet did yesterday.
After I ate the meal, I stood in front of the gastric scanner and took my first picture. The tech had me stand there for two minutes while the picture was being recorded. He handed me a piece of paper that said I had to repeat the scanning at 9:10am, 10:10am, and 12:10pm. The piece of paper had me circle whether or not I had a bowel movement in between scannings. Of course, I didn't have any bowel movements.
I went back to the front desk and checked in for the 9:10am scan. The receptionist sent me back to nuclear medicine and I made my way back there. I stood in front of the scanner and the food was still sitting in my stomach an hour after I had eaten the eggs. I stood there for two minutes while the tech captured another picture.
I waited until 10:00am and checked in with the front desk. On the way back to nuclear medicine, I vomited in the bathroom. I only threw up some of the eggs and toast. Then, I began to get nervous. I remember the doctor telling me in the hospital that if I threw up, the would have to start the test all over again. I made it back to nuclear medicine and told the tech what happened. He positioned me in front of the gastric scanner and started my two minute picture capture. He analyzed the results in the computer in the other room and talked to a colleague. He said that I had only thrown up 10% of the meal and that we still had enough to finish the test. He said that he was going to inform the doctor about the vomiting.
On a side note, they wouldn't let me take any kind of nausea medicine or pain medicine for this test because the doctor didn't want my medicine to skew the results of the test.
The next image was going to be at 12:10pm. I found a chair and got out my kindle and headphones. I managed to curl up in that tiny chair, in a ball, and get some sleep. Which is good, because the gastric spasms started about 20 minutes after I ate the radioactive meal and it was either try and sleep or cry because of the pain. I slept until my next picture was due.
At 12:00pm, I checked in with the front desk and went back to nuclear medicine. I had my final gastric scan done and I could still see all of the food in my stomach. It didn't move hardly at all. I gave them the sheet that said I didn't have a bowel movement between the different image captures.
Now, I'm exhausted. I think I may try and nap for a bit. My stomach is swollen and the spasms are still happening. I'll be happy when the rest of this toast finally comes up so that I don't have to deal with the pain anymore.
Tomorrow, I have an EKG and a scope. Wish me luck!
Monday, February 4, 2013
Mayo Clinic - Day One. Bloodwork & Barium Swallow
I woke up bright and early this morning around 5am - and by woke up, I mean, just stayed awake. I got up and made it to Mayo for my 6:30am blood draw.
The doctor wanted to check my CORTISOL LEVELS as well as do a complete blood panel - CBC, liver enzymes, etc.
When I walked in, I checked in at the desk in the front after reporting to Davis Building 1 East. I gave them my name and birthday. Then, I sat in a waiting room with five doors. Each door had a lab tech come to it and call people back. It was very efficient. This is what I saw in the waiting room.
The lab tech called my name. She was a small, Asian lady who was extremely nice. She sat me down in the blood drawing chair that we're all familiar with. She looked at my arms and applied the tourniquet. She thumped my veins a few times, clucking and telling me that I didn't have anything to really work with. I've been REALLY dehydrated but yesterday, I sucked down about half a case of Dasani with Pedalyte powder to hydrate myself. It wasn't enough. She went into the first vein and got a bit of blood out for the tube for the CBC, but almost let the tube clot because she didn't shake it slowly back and forth the way I was taught to do in high school. Mrs. Gray would be proud to know that I still remember how to do that. And, she kept digging the needle in and out of the vein, which resulted in that vein blowing. That was in my upper right arm.
Next, she tried my left hand. She pulled the needle back too suddenly while trying to change vials and blew that vein too. Then, she tried my upper left arm. That was probably the worst vein blow I've ever felt. It still hurts. She managed to blow that one pretty good without even really getting a good blood return in the butterfly needle that she used. The Mayo Clinic doesn't put bandaids on the site. Instead, the put gauze over it and then wrap it with gauze. After the tech blew another vein, she called a colleague over.
The other tech scanned my arms and I finally just presented my wrist to her. She told me that she didn't like to use the wrists because they were usually painful places. At this point, I knew my wrist would work and told her that I was used to it because that was the go to place for my doctor. She listened to me, got a butterfly and got blood on the first try. Instead of messing up the site by switching vials, she didn't want to lose the vein so she took blood into two syringes. She then took the syringes and put them into each different tube for the blood panel. After that, I was free to make my way upstairs to Radiology.
This is my left arm:
This is the blown vein in my right arm but it doesn't hurt nearly as badly as my left arm:
I then left the lab to go to the Mayo building and find Mayo 2 South for Radiology.
I checked in at the desk, noticing that they had a policy that you can't check in more than 30 minutes ahead of your appointment.
The waiting area was closed off.
After I checked it, I was told to go through the double doors and down the hallway until I got to the substation waiting area. I was at another, smaller check in area. The nurse gave me a bag and a dressing gown. The dressing gowns are new, so she had to give me a demonstration on how to wear them. They have three arm holes. You put the tag in the back and put your arm through the two holes, and then you wrap the gown around you, putting your arm through the final hole. There were no ties or anything like that. I had a seat in another waiting room, waiting room B. Unfortunately, it was packed so I wasn't able to take a picture. I didn't want to violate anyone's privacy.
After sitting there for about ten minutes, a tech called my name along with three others. He walked us down the hall and swung a left. He led us to an even smaller waiting room and told us that the techs would come and call us soon. I sat in the cramped waiting room. An older man was kind enough to move over on the bench so that I would have a place to sit. They called about three people before it was my turn.
The tech took me back to this cold room and told me to have a seat and that the doctor would be with me shortly. My appointment was at 7:45am and I noticed it was 8:18am while I was waiting for the doctor. I will say that Mayo is very efficient and the staff I have encountered so far has been extremely nice.
The x-ray tech was pouring barium into a cup and also placed a cup of water next to that. When I saw the barium I was a bit scared. The x-rays I've had in the past, I was always told to drink two big things of barium before I took pictures. However, this test was different. I had an emesis bag, just in case. It's better to be safe than sorry and I tend to vomit up barium.
The doctor came and and then the test was started. I took in this enclosed space, with the x-ray machine in front of me and the screen to the right of me. I could see my skeleton and organs in the screen. It was extremely neat! The doctor gave me the cup of barium and told me to take three big gulps. As I did, he took screen shots at the screen to my right so that I could see what was happening. I got to watch myself swallow the barium, which distracted me from how uneasy my stomach was becoming.
He then told me to turn facing left, facing the wall. I drank a few more gulps of barium as he took pictures. The doctor told me to stand with my back against the wall of the machine. Then, the x-ray machine I was halfway inside, standing in, started to rotate and I was on my back. I was told to lay on my stomach (which is hard for me to do because it makes me even more ill) and was told to cross my left leg over my right, making a triangle. I had my right arm down by my side and my left arm up by my head holding the cup of barium with a straw. I had to drink it while the doctor took pictures that way, and he instructed me to turn on my left and right sides, also while taking pictures.
Then, I was instructed to lay on my back again and the machine started to straighten back up and I was standing again. The tech gave me a cup of water and a barium pill. The doctor instructed me to swallow the pill but it got stuck halfway down, like everything has been lately because my esophagus is burnt and swollen.
He said, "interesting."
He instructed me to drink more water and finally it went down as he was taking pictures. Then, he informed me that my test was done.
Honestly, that's the best barium test I've ever taken because I didn't have to down two huge things of barium. I barely had a cupful. And, that's all I really need. It's fighting to come back up, even now.
That was the end of day one at Mayo. Tomorrow, I get to look forward to the gastric emptying test at 8am. Four hours of pictures after I eat radioactive eggs. That's the test that I'm scared of because if I get sick, I have to repeat it all over again.
I will try and take more pictures and let you know what I think of tomorrow.
As for today, I am very pleased with the treatment I received today. My only complaint is that I have one blown vein in my upper left arm that really hurts. She blew it good. It's going to bruise something horrible. I just hope for my scope that they'll be able to find an IV site. I'm going to be chugging Pedalyte from here until Wednesday. I hope it hydrates me enough for that.
Other than the blown veins, everyone here has been extremely nice and helpful. My wait times weren't long at all. I am very happy that I didn't have to swallow more barium than needed and the doctors here are truly the best at what they do. However, they don't just treat me like a diagnosis, they treat me like a person. I really do appreciate that.
The lab tech this morning told her colleague that I was a fantastic patient because I didn't flinch once while they were poking me. =)
The doctor wanted to check my CORTISOL LEVELS as well as do a complete blood panel - CBC, liver enzymes, etc.
When I walked in, I checked in at the desk in the front after reporting to Davis Building 1 East. I gave them my name and birthday. Then, I sat in a waiting room with five doors. Each door had a lab tech come to it and call people back. It was very efficient. This is what I saw in the waiting room.
The lab tech called my name. She was a small, Asian lady who was extremely nice. She sat me down in the blood drawing chair that we're all familiar with. She looked at my arms and applied the tourniquet. She thumped my veins a few times, clucking and telling me that I didn't have anything to really work with. I've been REALLY dehydrated but yesterday, I sucked down about half a case of Dasani with Pedalyte powder to hydrate myself. It wasn't enough. She went into the first vein and got a bit of blood out for the tube for the CBC, but almost let the tube clot because she didn't shake it slowly back and forth the way I was taught to do in high school. Mrs. Gray would be proud to know that I still remember how to do that. And, she kept digging the needle in and out of the vein, which resulted in that vein blowing. That was in my upper right arm.
Next, she tried my left hand. She pulled the needle back too suddenly while trying to change vials and blew that vein too. Then, she tried my upper left arm. That was probably the worst vein blow I've ever felt. It still hurts. She managed to blow that one pretty good without even really getting a good blood return in the butterfly needle that she used. The Mayo Clinic doesn't put bandaids on the site. Instead, the put gauze over it and then wrap it with gauze. After the tech blew another vein, she called a colleague over.
The other tech scanned my arms and I finally just presented my wrist to her. She told me that she didn't like to use the wrists because they were usually painful places. At this point, I knew my wrist would work and told her that I was used to it because that was the go to place for my doctor. She listened to me, got a butterfly and got blood on the first try. Instead of messing up the site by switching vials, she didn't want to lose the vein so she took blood into two syringes. She then took the syringes and put them into each different tube for the blood panel. After that, I was free to make my way upstairs to Radiology.
This is my left arm:
This is the blown vein in my right arm but it doesn't hurt nearly as badly as my left arm:
I then left the lab to go to the Mayo building and find Mayo 2 South for Radiology.
I checked in at the desk, noticing that they had a policy that you can't check in more than 30 minutes ahead of your appointment.
The waiting area was closed off.
After I checked it, I was told to go through the double doors and down the hallway until I got to the substation waiting area. I was at another, smaller check in area. The nurse gave me a bag and a dressing gown. The dressing gowns are new, so she had to give me a demonstration on how to wear them. They have three arm holes. You put the tag in the back and put your arm through the two holes, and then you wrap the gown around you, putting your arm through the final hole. There were no ties or anything like that. I had a seat in another waiting room, waiting room B. Unfortunately, it was packed so I wasn't able to take a picture. I didn't want to violate anyone's privacy.
After sitting there for about ten minutes, a tech called my name along with three others. He walked us down the hall and swung a left. He led us to an even smaller waiting room and told us that the techs would come and call us soon. I sat in the cramped waiting room. An older man was kind enough to move over on the bench so that I would have a place to sit. They called about three people before it was my turn.
The tech took me back to this cold room and told me to have a seat and that the doctor would be with me shortly. My appointment was at 7:45am and I noticed it was 8:18am while I was waiting for the doctor. I will say that Mayo is very efficient and the staff I have encountered so far has been extremely nice.
The x-ray tech was pouring barium into a cup and also placed a cup of water next to that. When I saw the barium I was a bit scared. The x-rays I've had in the past, I was always told to drink two big things of barium before I took pictures. However, this test was different. I had an emesis bag, just in case. It's better to be safe than sorry and I tend to vomit up barium.
The doctor came and and then the test was started. I took in this enclosed space, with the x-ray machine in front of me and the screen to the right of me. I could see my skeleton and organs in the screen. It was extremely neat! The doctor gave me the cup of barium and told me to take three big gulps. As I did, he took screen shots at the screen to my right so that I could see what was happening. I got to watch myself swallow the barium, which distracted me from how uneasy my stomach was becoming.
He then told me to turn facing left, facing the wall. I drank a few more gulps of barium as he took pictures. The doctor told me to stand with my back against the wall of the machine. Then, the x-ray machine I was halfway inside, standing in, started to rotate and I was on my back. I was told to lay on my stomach (which is hard for me to do because it makes me even more ill) and was told to cross my left leg over my right, making a triangle. I had my right arm down by my side and my left arm up by my head holding the cup of barium with a straw. I had to drink it while the doctor took pictures that way, and he instructed me to turn on my left and right sides, also while taking pictures.
Then, I was instructed to lay on my back again and the machine started to straighten back up and I was standing again. The tech gave me a cup of water and a barium pill. The doctor instructed me to swallow the pill but it got stuck halfway down, like everything has been lately because my esophagus is burnt and swollen.
He said, "interesting."
He instructed me to drink more water and finally it went down as he was taking pictures. Then, he informed me that my test was done.
Honestly, that's the best barium test I've ever taken because I didn't have to down two huge things of barium. I barely had a cupful. And, that's all I really need. It's fighting to come back up, even now.
That was the end of day one at Mayo. Tomorrow, I get to look forward to the gastric emptying test at 8am. Four hours of pictures after I eat radioactive eggs. That's the test that I'm scared of because if I get sick, I have to repeat it all over again.
I will try and take more pictures and let you know what I think of tomorrow.
As for today, I am very pleased with the treatment I received today. My only complaint is that I have one blown vein in my upper left arm that really hurts. She blew it good. It's going to bruise something horrible. I just hope for my scope that they'll be able to find an IV site. I'm going to be chugging Pedalyte from here until Wednesday. I hope it hydrates me enough for that.
Other than the blown veins, everyone here has been extremely nice and helpful. My wait times weren't long at all. I am very happy that I didn't have to swallow more barium than needed and the doctors here are truly the best at what they do. However, they don't just treat me like a diagnosis, they treat me like a person. I really do appreciate that.
The lab tech this morning told her colleague that I was a fantastic patient because I didn't flinch once while they were poking me. =)
Sunday, February 3, 2013
Sunday Night - Before all of the Testing at Mayo Begins
G-PACT wrote something today that I thought was worth putting into my blog:
The link can be found HERE.
I want to ask all of my friends to please be patient with me in the next few weeks. I'm going through an entire week of testing at Mayo this week and I'm really nervous. I feel so awful that I wouldn't be surprised if I cried a lot more than usual. All of these procedures may leave me broken and exhausted by Friday. I can't eat after 6pm and I can't have anymore water after midnight, tonight.
Tomorrow, I report bright and early at Mayo at 6:30am for them to draw my blood to check my CORTISOL LEVELS.
At 6:40am, they are drawing more blood to do a complete panel. Thyroid, CBC, and other tests.
At 7:45am, I report for my barium swallow x-ray. Please keep your fingers crossed for me. I almost always throw up the barium. If I can't keep it down, I'm not sure they can do the test.
Tuesday, I get to go through another gastric emptying test. I'm not looking forward to that either. If I vomit up any of the eggs and toast, I will have to do the test all over again. They're going to take x-rays every 30 minutes for 4 hours. Last time I had this done, it hurt so badly.
Oh! And I'm going to take a picture of each Mayo building and review my procedures as well. I want to help ease anxiety of those who may be heading here later.
I love the hotel room. It's absolutely beautiful. It's a lot cheaper than the hotel we stayed at previously. We're staying in The Hampton Inn off of the mainland, closer to the Jacksonville beaches. Here are some pictures:
"We tell people they are “strong” when we are uncomfortable with their pain and would prefer that they shut up and not bother us with it. To say “but you are strong” is telling someone “I don’t think you should feel that way,” and it’s not a compliment. I don’t think that strength means being invulnerable, or pretending that you are.
You don’t owe it to your friends to be the “strong” one. Just because you have always been the good listener and the shoulder to cry on, doesn’t mean you have to maintain that role now when you need a good listener and a shoulder to cry on.
Be sad. Be angry. Let your heart break – in the diner, on someone’s futon, in the park, on the way to the zoo, at brunch, over drinks, in the therapist’s office, on the bus – Wherever it breaks, let it break all the way open, let it run out and down and spread out in a soggy puddle at your feet. Say, “I’m sorry, I can’t listen to you today, my heart is broken. Will you sit with me a while and I’ll tell you about it?“
Say, “I can’t take care of you today, but you can take care of me, and maybe tomorrow I will take care of you, and we can trade off like that for a while, okay?”
Say, “I love you, and I love that you think I’m strong, but I don’t feel like being strong today. I feel like being angry and crazy and sad. Can we go to the movies or just sit here quietly or take a walk or talk about it or not talk about it?“
Your friends may get scared when you do this. If you, the “strong” one can break, what does that say about them? That’s why they push back at you and try to remind you of your strength, when what you need is for them to stand by you in your pain and weakness. They don’t have to solve that pain, they just have to bear witness to it. Maybe they don’t know how – a lot of people don’t know what to do in the face of other people’s pain.
They want to fix everything, and if they can’t fix it they feel inadequate. As the “strong” one you can help them out with this by saying “You don’t have to fix it. You don’t have to do anything. Just be with me, and listen, and love me, and I’ll love you back. That’s all I need – to know that you love me, even when I’m sad and scared and don’t know what to do next.”
To ask for help is strength.
To admit you don’t know is strength.
To tell the truth about what’s happening is strength.
To be imperfect and to trust that imperfect people will love you despite those imperfections (albeit imperfectly) is strength.
To let the people you love see how you really feel – without trying to hide or stage manage their perception of you – is strength."
--The lie of strength, Captain Awkward
The link can be found HERE.
I want to ask all of my friends to please be patient with me in the next few weeks. I'm going through an entire week of testing at Mayo this week and I'm really nervous. I feel so awful that I wouldn't be surprised if I cried a lot more than usual. All of these procedures may leave me broken and exhausted by Friday. I can't eat after 6pm and I can't have anymore water after midnight, tonight.
Tomorrow, I report bright and early at Mayo at 6:30am for them to draw my blood to check my CORTISOL LEVELS.
At 6:40am, they are drawing more blood to do a complete panel. Thyroid, CBC, and other tests.
At 7:45am, I report for my barium swallow x-ray. Please keep your fingers crossed for me. I almost always throw up the barium. If I can't keep it down, I'm not sure they can do the test.
Tuesday, I get to go through another gastric emptying test. I'm not looking forward to that either. If I vomit up any of the eggs and toast, I will have to do the test all over again. They're going to take x-rays every 30 minutes for 4 hours. Last time I had this done, it hurt so badly.
Oh! And I'm going to take a picture of each Mayo building and review my procedures as well. I want to help ease anxiety of those who may be heading here later.
I love the hotel room. It's absolutely beautiful. It's a lot cheaper than the hotel we stayed at previously. We're staying in The Hampton Inn off of the mainland, closer to the Jacksonville beaches. Here are some pictures:
Monday, January 28, 2013
A Week Until the Mayo Clinic
On the 24th, I woke up with a headache - the same headache I've had for a while now. I can only describe it as a dehydration headache.
Do you ever have the feeling that sometimes you're an easy target because you're sick, and usually alone? I've felt that way the past week. I have certain friends who don't usually want anything to do with me until they need or want something. It shouldn't bother me, but it does. I felt I should write about it public-ally because it makes me feel worse than I already do. I also have a bad habit of not saying no. I need to fix this issue but then I'll be called selfish behind my back. I think I care too much about what other people think about me. It's a problem that I've had since middle school and I'm really not sure how to turn that switch off. But, I do need to find the off button. The last thing I need is to make myself even more ill over what someone thinks about me.
I think I have too much time to think. =)
My symptoms are still:
1. Swollen throat - it's hard to sip on water or swallow anything still.
2. Headache - my head still aches and my best guess is that it's because of dehydration.
3. Fever - chills and fever above 101. I can't keep down pills to get rid of it.
4. Teeth - my teeth are really sensitive on both sides so I can't really chew.
5. Vomiting/nausea - vomiting up green stomach acid. There is nothing left in my stomach and I have a dry mouth, too.
I'm going to take what medications I'm still allowed to take and lie down for a bit. I shouldn't be tired but I keep almost falling asleep, even just sitting up typing. I feel awful and a bit sad.
On the 26th, I didn't sleep for two days. I'm exhausted but it's been hard for me to sleep without getting up to vomit or from bouts of pain. I've had terrible, gastric spasms. I call them, "gastroparesis attacks." Everyone is pretty worried about me. I've also vomited myself into a throat infection and now, I'm on antibiotics, if I can keep them down.
I vomited day before yesterday and got fluids at the doctor. My blood pressure was 145/105. I was running a fever and I just want to cry. I'm terrified. I'm tired of vomiting and I'm tired of pain. The IV had to go into my foot because the nurse couldn't find veins anywhere else.
I go back to Mayo next week. I hope that they're able to help me. I'm having lab work done on Monday and I'm there for the entire week full of testing. I hope they'll hospitalize me and give me fluids. My urine is also dark in color which tells me that I'm dehydrated - that and I've only gone to the bathroom once today. That's not a good sign.
I had Miso soup and hot tea for dinner. I'm trying to do clear liquids. The Gatorade keeps coming back up so, I'm going to try clear liquids for a bit. I'm incredibly tired and I hope that I can sleep tonight. I managed to fall asleep around 2pm yesterday - just out of pure exhaustion. I didn't wake up until 1pm today. I hope I can sleep tonight because I REALLY need the rest.
I hope that my GP friends have a pain free and nausea free night. <3
Do you ever have the feeling that sometimes you're an easy target because you're sick, and usually alone? I've felt that way the past week. I have certain friends who don't usually want anything to do with me until they need or want something. It shouldn't bother me, but it does. I felt I should write about it public-ally because it makes me feel worse than I already do. I also have a bad habit of not saying no. I need to fix this issue but then I'll be called selfish behind my back. I think I care too much about what other people think about me. It's a problem that I've had since middle school and I'm really not sure how to turn that switch off. But, I do need to find the off button. The last thing I need is to make myself even more ill over what someone thinks about me.
I think I have too much time to think. =)
My symptoms are still:
1. Swollen throat - it's hard to sip on water or swallow anything still.
2. Headache - my head still aches and my best guess is that it's because of dehydration.
3. Fever - chills and fever above 101. I can't keep down pills to get rid of it.
4. Teeth - my teeth are really sensitive on both sides so I can't really chew.
5. Vomiting/nausea - vomiting up green stomach acid. There is nothing left in my stomach and I have a dry mouth, too.
I'm going to take what medications I'm still allowed to take and lie down for a bit. I shouldn't be tired but I keep almost falling asleep, even just sitting up typing. I feel awful and a bit sad.
On the 26th, I didn't sleep for two days. I'm exhausted but it's been hard for me to sleep without getting up to vomit or from bouts of pain. I've had terrible, gastric spasms. I call them, "gastroparesis attacks." Everyone is pretty worried about me. I've also vomited myself into a throat infection and now, I'm on antibiotics, if I can keep them down.
I vomited day before yesterday and got fluids at the doctor. My blood pressure was 145/105. I was running a fever and I just want to cry. I'm terrified. I'm tired of vomiting and I'm tired of pain. The IV had to go into my foot because the nurse couldn't find veins anywhere else.
I go back to Mayo next week. I hope that they're able to help me. I'm having lab work done on Monday and I'm there for the entire week full of testing. I hope they'll hospitalize me and give me fluids. My urine is also dark in color which tells me that I'm dehydrated - that and I've only gone to the bathroom once today. That's not a good sign.
I had Miso soup and hot tea for dinner. I'm trying to do clear liquids. The Gatorade keeps coming back up so, I'm going to try clear liquids for a bit. I'm incredibly tired and I hope that I can sleep tonight. I managed to fall asleep around 2pm yesterday - just out of pure exhaustion. I didn't wake up until 1pm today. I hope I can sleep tonight because I REALLY need the rest.
I hope that my GP friends have a pain free and nausea free night. <3
Thursday, January 24, 2013
Gastroparesis Inspired Art
I'm looking for Gastroparesis inspired jewelry, art, and clothing. I have a few friends who are working on art to share with the rest of the GP community. If you're like me, then you probably don't have a lot of green clothing or GP related jewelry items or wrist bands. If you find great Gastroparesis type art, please leave me a comment with a link and a description! I love to see and learn about new things - websites, etc.
For Gastroparesis Inspired Jewelry:
NERDY GIRL CREATIONS ON ETSY. This is a Green's Not Easy Member's friend who makes jewelry. She's amazingly talented and decided to help further our cause for awareness by making GP themed jewelry. An example of her work is below:
JUST BREATHE JEWELRY. This is a collection of handmade, from scratch, unique and chic jewelry, created in part to donate to gastroparesis research! Use Coupon Code BLYSSBREATHEXX for free shipping! As always, $1.00 of every purchase goes to the GPD Foundation for a cure for gastroparesis! An example of her work is below:
GASTROPARESIS INSPIRED JEWELRY BY LORA ON FACEBOOK.
For Gastroparesis Inspired Art:
RARE ARTIST. EveryLife's Art Contest for Rare Diseases 2013 is accepting submissions! www.RareArtist.org The Art Contest was established to empower those affected by rare diseases to express their unique power through art. Please share the invitation, & share your art! This image, "Trusting Hands", won a special artistic merit award in our 2011 contest, by Gastroparesis patient Shelley Bertrand. RareArtist.org was created for artists affected by a rare disease. The EveryLife Foundation for Rare Diseases received many exceptional works of art during our inaugural EveryLife Art Contest which inspired us to create a venue to display this art. It is intended to showcase the Artwork and the Artist, in order to bring awareness to the rare disease community. There are almost 7,000 rare diseases that affect more than 25 million Americans. For more information on the EveryLife Foundation for Rare Diseases’s work to support the rare disease community please visit www.everylifefoundation.org.
For Gastroparesis Ribbons and Wrist Bands:
A member of the GASTROPARESIS Facebook group as designed awareness ribbons for GP. He is in the very beginnings of creating this magnetic ribbon by getting price quotes and coming up with a plan to sell them in bulk, either in his own store or somewhere else. He wants to donate all proceeds to GP research. As soon as the link is available to order these ribbons, I will post it. The image of the ribbon is below:
For Gastroparesis Inspired Jewelry:
NERDY GIRL CREATIONS ON ETSY. This is a Green's Not Easy Member's friend who makes jewelry. She's amazingly talented and decided to help further our cause for awareness by making GP themed jewelry. An example of her work is below:
JUST BREATHE JEWELRY. This is a collection of handmade, from scratch, unique and chic jewelry, created in part to donate to gastroparesis research! Use Coupon Code BLYSSBREATHEXX for free shipping! As always, $1.00 of every purchase goes to the GPD Foundation for a cure for gastroparesis! An example of her work is below:
GASTROPARESIS INSPIRED JEWELRY BY LORA ON FACEBOOK.
Gastroparesis is an insidious disease meaning literally "stomach paralysis". An estimated 5 million American's suffer from this disease, which causes them to slowly starve to death, because they can't eat the food in front of them. Many suffer from malnutrition because their bodies simply cannot process food/nutrients appropriately. This her way of helping to build awareness. An example of her work is below:
For Gastroparesis Inspired Art:
RARE ARTIST. EveryLife's Art Contest for Rare Diseases 2013 is accepting submissions! www.RareArtist.org The Art Contest was established to empower those affected by rare diseases to express their unique power through art. Please share the invitation, & share your art! This image, "Trusting Hands", won a special artistic merit award in our 2011 contest, by Gastroparesis patient Shelley Bertrand. RareArtist.org was created for artists affected by a rare disease. The EveryLife Foundation for Rare Diseases received many exceptional works of art during our inaugural EveryLife Art Contest which inspired us to create a venue to display this art. It is intended to showcase the Artwork and the Artist, in order to bring awareness to the rare disease community. There are almost 7,000 rare diseases that affect more than 25 million Americans. For more information on the EveryLife Foundation for Rare Diseases’s work to support the rare disease community please visit www.everylifefoundation.org.
For Gastroparesis Ribbons and Wrist Bands:
A member of the GASTROPARESIS Facebook group as designed awareness ribbons for GP. He is in the very beginnings of creating this magnetic ribbon by getting price quotes and coming up with a plan to sell them in bulk, either in his own store or somewhere else. He wants to donate all proceeds to GP research. As soon as the link is available to order these ribbons, I will post it. The image of the ribbon is below:
Tuesday, January 22, 2013
It's Not Easy Being Green: Hold On or Let Go?
This is from the blog of one of my former friends and the creator of the Green's Not Easy Page on Facebook; She started writing a blog based on her experiences and I would like to reblog this because it's a great article on how relationships change when you have an invisible illness. Please click on the link below to read her blog entry:
It's Not Easy Being Green: Hold On or Let Go?: One of the largest struggles I’ve had to overcome since I’ve been sick is how to deal with social situations.
If you have gastroparesis and you're looking for a support group, please click to join the Gastroparesis Support Group on Facebook: http://www.facebook.com/groups/StrongerthanGP/
It's Not Easy Being Green: Hold On or Let Go?: One of the largest struggles I’ve had to overcome since I’ve been sick is how to deal with social situations.
If you have gastroparesis and you're looking for a support group, please click to join the Gastroparesis Support Group on Facebook: http://www.facebook.com/groups/StrongerthanGP/
Detoxing - Twelve Days to go Until Mayo
This past week has by far been the hardest I've ever had to endure, GI wise. I didn't realize how much of the medication actually did help, even though I was still sick on the medication. This detox is like being in my own, personal hell. The stomach spasms have not subsided, even though the last time I ate was the day before yesterday and it was just broth. My throat burns, and is swollen from vomiting up bile. I can barely swallow the pills I'm still allowed to take. The Zofran does nothing and I took my last Phenergan pill tonight.
I hope the doctor will call in a refill tomorrow (or later today). At the specialist today, while I was having my spinal cord stimulator checked to make sure it was scarring in all right, my blood pressure was 145/105. I'm guessing that's because of staying up vomiting for two days and the gastric spasms. My blood pressure always sky rockets when I'm in pain. Since my blood pressure had been fine the previous times I had seen that specialist, he wasn't worried. Since I can't take the Vicodin right now for the surgical pain where my stimulator is still scarring in, he prescribed me lidoderm patches to wear throughout the night or day to numb the spot where the muscles are still inflamed. He said it's going to take a while longer for my body to stop fighting the fact that it has a foreign object there. He also told me that if I notice that the stimulator isn't covering the area it's supposed to or if it's taking longer than usual to charge, to let him know and he would call the Boston Scientific Representative in to tweak the stimulator to adjust it. He said that I'm probably going to need it adjusted a few more times since it's still in the process of scarring in.
My throat is so irritated. I might try to drink some hot tea and honey to see if it will soothe the irritation. Sadly, the only juice in the house is cranberry and I can't stand cranberry juice. It's too bitter for me to handle right now. I managed to drink all of the apple juice.
Twelve days to go until my week of testing. I just don't know how I'm going to make it through the next twelve days. This almost feels like cruel and unusual punishment. I feel like I have a charlie horse in my belly along with someone hitting me in the stomach with a metal bat over and over again. The gastric spasms keep inducing vomiting, which is just dry heaves right now because there's nothing left to come up. I've burnt my throat and I'm miserable.
I'm tempted to take a pain pill just to get some sort of relief and to be able to sleep but I don't want to screw up any testing that Mayo will do. I really want them to find the issue that's making the Gastroparesis worse and fix it.
I was hoping to get out of the house tomorrow. I have a project I want to do as a gift to my husband for Valentine's (I usually call it, "the Hallmark holiday") Day. I'm scared with the way things have been going, I was lucky enough to make it to the doctor and back today.
My stomach is swollen and hard to the touch right now. It's been that way for three days. I'm not quite sure why and it's a bit scary.
This is night two of staying up without sleep. I'm so exhausted and I wish I could just pass out. The Nature Made Sleep Aid isn't helping and my throat is killing me. I may have to go to my primary doctor tomorrow. Maybe he can give me some advice on what to do while I'm detoxing. I have chloraseptic spray - but I can only use it so often.
I just really need some sleep. I think that would make a world of difference.
I hope the doctor will call in a refill tomorrow (or later today). At the specialist today, while I was having my spinal cord stimulator checked to make sure it was scarring in all right, my blood pressure was 145/105. I'm guessing that's because of staying up vomiting for two days and the gastric spasms. My blood pressure always sky rockets when I'm in pain. Since my blood pressure had been fine the previous times I had seen that specialist, he wasn't worried. Since I can't take the Vicodin right now for the surgical pain where my stimulator is still scarring in, he prescribed me lidoderm patches to wear throughout the night or day to numb the spot where the muscles are still inflamed. He said it's going to take a while longer for my body to stop fighting the fact that it has a foreign object there. He also told me that if I notice that the stimulator isn't covering the area it's supposed to or if it's taking longer than usual to charge, to let him know and he would call the Boston Scientific Representative in to tweak the stimulator to adjust it. He said that I'm probably going to need it adjusted a few more times since it's still in the process of scarring in.
My throat is so irritated. I might try to drink some hot tea and honey to see if it will soothe the irritation. Sadly, the only juice in the house is cranberry and I can't stand cranberry juice. It's too bitter for me to handle right now. I managed to drink all of the apple juice.
Twelve days to go until my week of testing. I just don't know how I'm going to make it through the next twelve days. This almost feels like cruel and unusual punishment. I feel like I have a charlie horse in my belly along with someone hitting me in the stomach with a metal bat over and over again. The gastric spasms keep inducing vomiting, which is just dry heaves right now because there's nothing left to come up. I've burnt my throat and I'm miserable.
I'm tempted to take a pain pill just to get some sort of relief and to be able to sleep but I don't want to screw up any testing that Mayo will do. I really want them to find the issue that's making the Gastroparesis worse and fix it.
I was hoping to get out of the house tomorrow. I have a project I want to do as a gift to my husband for Valentine's (I usually call it, "the Hallmark holiday") Day. I'm scared with the way things have been going, I was lucky enough to make it to the doctor and back today.
My stomach is swollen and hard to the touch right now. It's been that way for three days. I'm not quite sure why and it's a bit scary.
This is night two of staying up without sleep. I'm so exhausted and I wish I could just pass out. The Nature Made Sleep Aid isn't helping and my throat is killing me. I may have to go to my primary doctor tomorrow. Maybe he can give me some advice on what to do while I'm detoxing. I have chloraseptic spray - but I can only use it so often.
I just really need some sleep. I think that would make a world of difference.
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